Posted By Posting
Aug 23, 2010
Elecate/Neocate Feedback
Those with kiddos on Elecate, Neocate, or any other prescription formula -

Do these formulas taste even worse than the OTC hypos? If so, how long did it take for your little ones to adjust? Did they go cold turkey from regular formula to Rx formula, or from OTC hypo to Rx hypo? How expensive are these formulas? Are they covered by insurance? If so, partially or fully?

Any other feedback on prescription formulas is much appreciated.

Aug 23, 2010
*I mean Elecare
Aug 23, 2010
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
The chances of getting any ins co to cover formula is slim to none. I know families that fight and fight and fight and never get it covered, we didn't.

Can you apply for your states WIC program and they will cover formula even for children over 1 years of age if the child needs it medically and you have an RX for the GI for it.

From what I've heard, Vanilla Elecare isn't too bad, but doesn't taste all that great compared to cow's milk.

Jedd was on Peptamen Jr with Prebio Fiber. It's a broken down formula to help with his GERD and DGE. He took it orally without a problem.

When I tasted it, I didn't care too much for it but it was 100% better than the stinky puke smelling Alimentum he was taken before he turned one.

Jedd's Peptamen Jr was cost $195 for 24 eight ounce cans. Or the price of a mortgage payment a month. He was using between 4-5 cans a day, sometimes more if he would vomit it up and I had to refeed him. I also lost some formula due to tube feedings.

If it were not for WIC we would have had to sell our house and move in with my parents in order to pay for it.

Aug 23, 2010
Do you think the prevacid is also causing her to have a decrease in appetite and so she might be fighting the hypo formula even more if she doesn't have much of an appetite? The reason I mention this is because Kavya was drinking the Nutramigen without any issues on the zantac. Now with the prevacid she makes a big fuss to drink it and in general is not at all interested in eating anything (even some of her favorite foods).
Aug 23, 2010
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
^^^ you are on the right track with this one.

We used to see DGE worse when Jedd was on a high dose of Prilosec. We added in Erythromycin and he improved.

At one point I googled, DGE and PPis and hit the mother load of info about how even when high doses of a PPI are needed it can take away too much stomach acid which in turn will slow down the stomach's digestion.

Aug 23, 2010
Thanks for the info... the cost certainly sounds intimidating. I'm not sure that we'd qualify for WIC; I guess I would need to look into that. I do know that we can't afford a 2nd mortgage payment in formula every month!

So, for babies younger than 1 year, is Neocate the only Rx option? Sounds like there are more (and better-tasting) choices for older kids.

Kavyamom, I had not considered that. It is certainly possible she's experiencing a decrease in appetite with the Prevacid. I think we increased her med dosage about a week before we switched to the Nutramigen, though my brain is foggy from sleep deprivation so I don't know for sure... It could be that she was originally fighting the Nutramigen b/c of taste but is now fighting it more b/c she's not hungry. Probably, it's both. I don't know that there's any way of knowing though...whatever it is, bottletime is NOT FUN.

Aug 23, 2010
How interesting about the high PPI/decreased appetite correlation. It certainly makes sense.
Aug 23, 2010
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you tried adding digestive enzymes to the mix. It helped Ryan when he was on 30mg of prevacid a day. He didnt need it anymore once I lowered him down to 15.
Aug 24, 2010
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
We switched our son to Neocate (unflavored) around 17 mths. of age. We did 50/50 first (old & new formula), then 100%. He adjusted fine, and everything cleared up (rashes, crying, etc.). The formula smells horrible, but he still drinks it (at age 4) - prefers it cold. This is all he has ever really known. Insurance covered some at first, then they cut us off. They are expensive. If you qualify, WIC can help up to age 5. We have no choice but to buy it (our son has MFA/EE). Neocate can be purchased over the internet w/o a 'script. El
Aug 25, 2010
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
my kid has been on elecare since 6 months..he'll be 3 next month and we still have vanilla elecare left over (state birth to 3 program provided it ..thank GOD)...anyway, it tastes halfway decent and smells a lot better...ugh regular elecare is like rotten potatoes!! but he took to it right away with no issues...I add a scoop to his pediasure still for extra calories...Insurance refused to cover it...I'm so thankful to the state program for doing it. We paid for it for a long time and it was about 700/ month...ugh.
Check with your
doctor first!