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Aug 22, 2010
kenneyhl
My son Levi is 13 weeks old. We figured out he has reflux @ 2 weeks. We have tried 4 different formuls (Currently Neocate) and he is taking Pepcid, Prevacid, Mylanta, Grip Water
New and in need of help!
My son is 8 weeks old and has GERD. He was diagnosed with it at 2 weeks old. I have tried 3 differnt formulas (now on Similac Alimentum) and we have tried Mylanta, Grip water, Zantac and now are on Pepcid and Sugar water (for when he is in pain.) He has apnea (which i was told is very normal but i have 9 neices and none of them had apnea)also has a very bad rash that started on his face and now is almost all over his body, but the pediatrician says its chicken skin. I was wondering if there is any advice that you guys could give me? I fear this may be more than just GERD, I think it could be MSPI. Some one told me to take him to a Pediatric Chiroprator and have him adjusted. She says it worked wonders on her son, but I'm kinda weary about letting someone crack my son's back. Its been so difficult for me because I'm a single mom and i have to go back to work in 3 weeks. I cant send him to daycare because of the vomitting and i cant afford to be out of work. I know there is no miricle drug, but im jjust hoping for something that will take away my son's pain. Its the worst feeling when he is in soo much pain and i cant seem to comfort him. Im very glad i found this site because my friends and family try to be there for me but they just dont understand because their kids didnt have issues like this.
Aug 23, 2010
dcd
I am so sorry for what you're going through. You will find here though that we are all going through similar trials with our own children. It helps a little to know you're not alone.

It sounds like you need to get a referral to see a pediatric GI. Most of us have found that pediatricians and family practitioners know little in the way of reflux and MSPI. We have our first appointment with the GI specialist on Wednesday.

Also, in the meantime, check out Marci-Kids.com It will give you an education in reflux medications and treatments, making the options so much easier to understand. You'll learn that TIMING and DOSING of PPI medications can make all the difference. My Kylie is on Prevacid administered via the Marci-Kids "Buffer Babies" suspension (www.refluxsolutions.com) - so we know it should be working properly.

However, we have not seen satisfactory results and I am more convinced than ever that her reflux is a SYMPTOM of a severe milk protein allergy.

We tried NAET treatments at a local chiropractic/accupressure office, which temporarily clear her of the milk protein sensitivity but have not "stuck." Our practitioner consulted with some colleagues and they believe cranio misalignment is interferring with the normal nerve response to NAET, which is why isn't not sticking. They recommend cranio adjustments in combination with the NAET.

You can read about NAET in some of the previous posts. There is also a mom on here who uses the cranio therapy and I hope to get more feedback from her soon.

We have tried every OTC formula there is. K is currently on the hypoallergenic Nutramigen and we've seen little improvement. The next step is a prescription formula in which the milk proteins are completely hydrolized. But, I have the most terrible time getting her to drink the OTC hypo stuff (it's disgusting) - so I know she would flat refuse the prescription stuff.

Which is why I think we may try the cranio adjustments/NAET combination first.

I know it's exhausting, frustrating, heartbreaking, to see your little one in pain, but I believe you will find the answer to help him. I believe I will find the answer to help my daughter too! We won't give up until we do. You will learn a lot and become more empowered as you research. This board is an amazing resource. Welcome!

Aug 24, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Just my opinion but the first thing I would do is to find a new pediatrician. A 2nd opinion is always a good thing. I cant say that I have heard of a baby having Keratosis Pilaris (chicken skin) all over their body. Sounds more like an allergy to me. I also have never heard of giving an 8 week old sugar water especially for pain. Apnea in an infant is not "normal" in my book either. A pediatric GI will take a while to get into. In the mean time find a different pediatrician. Write down every thing that has been going on and everything that you have been told by the doctor and everything you have tried. Date it as best as you can, stick to the facts and be succinct. Dont wait around on this.
Aug 24, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
If you feel that it could be MSPI, can you switch him to a formula (I highly recommend Neocate) for a period of time to see whether or not it helps your son. We went through HELL for close to 2 years with vomiting, rashes, crying, pain, etc. before finding out it wasn't all due to GERD. He cleared up and was happy for the first time ever around 17 mths. when we finally switched to unflavored Neocate. Any history of allergies or either side? Even seasonal/environmental or asthma/eczema. It isn't entirely necessary in order for the kid to be allergic, but genetics do seem to come into play here. Hope you can find out what exactly is going on. I remember how bad it can be. El
Aug 27, 2010
kenneyhl
My son Levi is 13 weeks old. We figured out he has reflux @ 2 weeks. We have tried 4 different formuls (Currently Neocate) and he is taking Pepcid, Prevacid, Mylanta, Grip Water
Thank you all for your feedback! It was actually the G.I Dr that told me to give him sugar water for pain. Mix 1 tsp of sugar in 2 tsp of water, then give 1/2 tsp. after 5 min give another 1/2 tsp. It actually is working for his pain which i find very weird. I have been taking him to a chiropractor also we go 3 times a week. I was just at my pediatricians today and she said i might be over feeding him. But i dont see how that makes any sense because he is 2 months and eats 4 oz at a feeding. So this weekend i have to try 2 oz every 3 hours and see if he still vomits. I really like my pediatrician, she has been very helpful and even the G.I doctor said that she ordered all the right tests before i went to see her. We did an ultrasound to check for pyloric stenosis and a barium swallow. Im waiting to hear back from the g.i. doctor because the pediatrician said we should have seen some results by now (been on Similac Alimentum for 3 wks and Pepcid for 2 1/2 weeks) Im going to suggest switching his formula to Neocate because is see here that it has had positive results with alot of people when the over the counter stuff doesnt.
Check with your
doctor first!