Posted By Posting
Aug 14, 2010
Intro and questions
Hello - I have a 12 week old son who began showing signs of silent reflux at about 3 weeks. He would scream during bottles, arch his back, excessively gassy, lots of hiccups, etc. He was tried on Zantac twice which did not help him. Currently, he is seeing a pediatric G.I. We started him on Alimentum and Prevacid Solutabs about 3 weeks ago. Since that time, he has been doing a bit better during feedings (much less screaming), but he is also taking less formula and seems more congested. Just yesterday, his dose of Prevacid was increased to 7.5 mg twice a day. Our next step will be either Nexium (10mg/day) or elecate, but obviously we're hoping this works. . I have a few questions for you :) - Do you think the Alimentum or the Prevacid Solutab could have caused the decrease in formula intake? He went from about 27 ounces/day to 24. I know Prevacid can cause appetite suppression but I wasn't sure if it was more drastic than this. - Can thickening the formula with rice cause increased congestion? Why would the congestion increase as some of the other symptoms have gotten better? - Did anyone's little one have MPSI without stool or rash issues? The only symptoms my son has are the silent reflux, congestion, and irritability. Thanks so much for any input you have!
Aug 14, 2010
My dd has MSPI without stool or rash issues (and we confirmed with a blood test). She also has the same symptoms as you have described. I am also curious regarding the congestion. My dd (19 months) has been on prilosec capsules 10 mg and zantac 2.5ml once a day for 5 days now and is more congested (that reflux congested sound) than was on zantac alone twice a day. I don't know if the prilosec hasn't started working yet or if the dose is just too low.
Aug 15, 2010
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Welcome! I don't have answers to your specific questions, but my experience was that silent reflux, congestion and irritability all went hand in hand and the only thing that medication helped was, to some degree, the irritability.... Sorry, kind of depressing, I know... It is important, I think, to remember that h2 blockers and PPI's aren't designed to stop reflux, they just alter the acidity level, so it is possible for LO's to still reflux (and get congested, and irritable, because acidic or not it sucks to throw up in your throat) even when they are doing their job. Some do have reduced reflux episodes on h2 blockers and PPI's but not all....
Aug 16, 2010
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
HI and welcome. Regarding your question on the intake decrease... 3 oz a day decrease is really good when switching to Alimentum. That stuff tastes and smells aweful. Once your LO gets use to the taste, I would expect to see the ounces increase.

Regarding the congestion... Congestion and other ear, nose and throat issues are very common with refluxers. Go to and click on EER Article. and then effects of reflux on pharynx, sinuses and ears. I started Ryan on Claritin at 6 months old to keep the swelling and irritation of his adenoids. That helped a lot.

Aug 16, 2010
My daughter also has MSPI and until very recently had no stool or rash issues.

Her milk protein allergy was confirmed by NAET treatments. Before the NAET I'd wondered whether she might have problems with milk, but because she didn't have the rash or stool issues figured her symptoms were strictly reflux related.

Though she's had reflux since she was 2 weeks old (she'll be 6 months this Wednesday), it didn't start seriously affecting her sleep/quality of life until she was about 3 1/2 months old. Still, she only developed a rash two weeks ago - up until then, it was all reflux type stuff.

At first the rash was just under her eye, but then it spread and now she has little red bumps around her nose and on her chin. I read that a "sandpaper-like facial rash" is a symptom of MSPI, so I'm assuming her allergy has just progressed to the point of developing the rash. I am almost positive it's related to the MSPI and not something else - our family doctor gave us a gel to put on it twice a day and it's done nothing to clear it up.

We now have K on Nutramigen and are having a terrible time with it. We know we need to keep her on it for at least two weeks to make sure the milk is out of her system and see if her symptoms improve. But two weeks seems like an eternity! She absolutely hates the stuff.

Her intake has drastically decreased. She used to drink 4 6-oz bottles and 1 8-oz bottle every day. Right now she's struggling to drink 3 oz at a time, and even then we have to offer her the bottle repeatedly over the course of an hour or more with each feeding. The only time she'll drink a full bottle is in the middle of the night, when she's half-asleep.

We originally tried the gradual approach...just a little Nutramigen in each regular bottle to get her used to the taste, but that was getting us nowhere so we switched over completely this weekend and it is not going well. We tried adding Nestle syrup to her bottles, then applesauce. Neither helped much. Now I'm waiting on Neocate to send me some samples of their flavoring packets. I'm just hoping she will get used to the taste soon. It's agonizing to see her starving for the bottle but reject it and cry as soon as she tastes it.

In terms of congestion, my experience is that K's nighttime coughing/congestion has not noticeably improved with Prevacid. I'm waiting now on our Buffer Babies kit to see whether that will make the medicine more effective.

Check with your
doctor first!