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Aug 10, 2010
dcd
How to make hypoallergenic formula taste better?
My baby has a milk protein intolerance. She is being treated for this with NAET, but I am thinking about Plan B in case the NAET treatments don't work.

We put her on soy for several days and she did much better. But it caused her such terrible constipation that we had to take her off it.

We tried Enfamil's hypoallergenic formula (Nutramigen), but it was so bitter and disgusting that she flat refused to drink it.

Now what? I would like to get her to take the Nutramigen just to see if that makes a difference with her protein allergy and/or reflux. But I won't force her to drink it...especially because I already live in fear that "today will be the day she develops her feeding aversion" - she often cries and fusses with her bottles so I'm scared it's only a matter of time before she starts refusing to eat period.

Anyone have any ideas for how to make the Nutramigen taste better so she'll drink it? Have any of you had success adding something to your bottles?

Aug 10, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
How long did you try the Soy formula? Was it long enough for her to work through the constipation issues, ie a couple of weeks. It takes time for their GI systems to adjust to new things.
Aug 10, 2010
dcd
Hi Karen, I'm Danielle. I thought I'd "introduce" myself since we've been corresponding the past few days!

K was only on the soy from Thursday to Sunday. But it made her so terribly constipated right off the bat...I admit I didn't have it in me to let her suffer. She's already dealing with so many other (reflux-related) discomforts. Mercifully, we've been spared any bowel issues so far, and I just couldn't stand to add that to the list. As soon as we put her back on the Gentlease Monday, she returned to normal with two regular dirty diapers.

While on the soy, we tried to manage the constipation with apple prune juice, water in her bottles, and peach and pear purees. My picky girl basically refused to drink the juice and water, and she did not like either the peaches or the pears...at all. The doctor suggested Karo syrup in her bottles, but I have reservations about that (botulism?) - plus that's obviously not a long-term solution. Neither are suppositories, which was the other suggestion.

:(

Aug 10, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I know alot of families that use Nestle Quick or the syrup kind to add to yucky formulas to mask the awful taste.
Aug 11, 2010
kavyamom
Not sure how old your daughter is but wanted to mention that I gave my daughter coconut water for constipation and it worked great (she was 1 year at the time). The O.N.E brand is good and coconut water is nutritious as well. Also, good for treating ulcers, etc.
Aug 11, 2010
dcd
K is 5 1/2 months old. And the coconut milk sounds good, except it's probably not a real long-term solution, right? I feel like if we kept her on soy she'd just be constipated all the time. Also I wonder if I could even get her to drink the coconut milk...she seems to hate apple prune juice, peaches, and pears. I think maybe she is not fond of sweets? Well, it's a good tip to know to try. Thanks!

I have heard of the Nestle powder or syrup for flavoring bottles. What about the fact that it contains chocolate and all that sugar? It seems like that can't be good for a baby, in every bottle, several times a day.

Does anyone know any more about this?

Aug 11, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
I switched my son over to Neocate (from Nutramigen and before that Similac) when he was about 17 mths. old. Believe me, it is unflavored and smells horrible, but it was the best thing for him. When they are that young, they can get used to it. I would start slow, then have a 50/50 mix, until you are using nothing but the desired formula. A lot of EE kids are on feeding tubes, because they refuse to drink the nasty stuff. But, because my son got started early (drinking it), he is used to it. He prefers it cold at this point.
Aug 11, 2010
kavyamom
dcd, it is coconut WATER and not milk. These are different. The coconut water is almost clear and not very sweet. The milk could actually aggravate reflux, so if you are going to try it make sure to get the coco water. Also, try just 2 tsp first and see how her poop is and gradually increase until you get a poop consistency that you want! It is a natural laxative and in many Asian and South American countries people drink this every day.
Aug 11, 2010
haylee bug
Mother of a reflux baby
How to make hypolallergenic formula taste better?
I don't know if this is an option for you, but if you wanted to keep her on soy since she did better on it, did you consider giving her Miralax daily for the constipation issues. (It is not uncommon for soy to cause constipation). Under doctors supervision, I have been giving my daughter a small amount of miralax for her constipation daily since she was six months old (now 11 months) and it has worked wonders for us. At first we over corrected, but once I found the right dose everyone was happy! I don't advise switching around formulas too much. I did that at first with my daughter at it caused major GI upset. I think mixing is the easier way until you phase out the other formula and are only on the hypolallergenic. Neocate and Nutramigen both smell terrible, but my daughter did perfer Neocate. She really had a tough time with the Nutramigen.
Aug 11, 2010
dcd
Thanks for the advice. Definitely understanding there's a huge difference between coconut water and coconut milk!

I'm not crazy about the idea of giving her Miralax every day, but Haylee Bug, I'm sure you weren't either at first. We have to do what we have to do to get them some relief. I will discuss options, including this one, with my doctor. I really do think she will do better on a milk protein-free formula, I just have to figure out which is best and how to get her to drink it!

If anyone has any other ideas for flavoring the hypoallergenic bottles, please share. In the meantime we are going to see if the NAET is able to remedy the protein allergy. If not we will move on to the next step...

Aug 11, 2010
dcd
ps. I have heard that it's best to do a gradual approach when switching formulas...just one scoop in the regular bottle slowly adding more until the whole bottle is the desired formula. We will definitely go this route when we give the hypo formula another try.
Aug 11, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
As far as sugar goes in the syrup, we just did anything we could to get Jedd off of his feeding tube...if that meant adding those things to his formula, we did it.....I guess I have a different take on things.

At one time with our O.T. approval, we would feed Jedd one Reese's PB Cup and 4 ounces of milk and that was considered lunch!!!! LOL ;-)

As long as he was eating orally, and it was enough cals not to tube him, we had very LOW standards for what he could eat and drink.

Now at 3.5 (he will be 4 in oct) he will eat many different veggies, with out masking the flavor and has no problems with some fruits.......if can be weaned later.

Like Jedd's cardiologist told us when we asked about all the pure butter we were being told to add to his foods, it's only a short amount of time in their lives. In the long run, what you eat for the first few years, really won't affect them medically and health wise.

It's years of food abuse that leads to medical/health issues.

Also, Jedd's GI is perfectly happy with him taking Miralax every day in order to keep his bowels moving properly. He takes a capful a day in two doses, a half a capful int he morning and another in the afternoon in his juice.

Aug 11, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Oh also, when W.I.C. was providing Jedd's Peptamen Jr formula they also ordered the nestle flavor packets for us to add to it to make it taste better!!! LOL

Those are now discontinued but man, they sooo should have kept them on the market. They had all sorts of flavors....bubble gum, chocolate, strawberry, lime, lemon, orange.....there were at least 8 flavors!!!!

Aug 12, 2010
dcd
JeddsMommy - You are a warrior...we are not going through anything close to what it sounds like you've been through, but still I understand that you end up doing things you never thought you would when you have a sick baby...and your perspective completely changes on so much! We are definitely at that point.

If I have to add something to K's bottles to get her to drink the hypo formula I will, because I really believe that a milk protein allergy is causing her reflux or making it worse. I'm just not sure what's the best way to go. I have a call in to the doctor but haven't heard back. In addition to the Nestle powder, I've heard of adding a drop of pure vanilla extract to to sweeten it. Anyone familiar with that?

As far as the Nestle route goes, do you just add the plain chocolate syrup or chocolate powder? Like the kind you buy at the grocery store in the yellow can with the rabbit on the label? How much would you add for a 6 or 8 oz bottle?

We tried some hypo formula in her regular bottle this morning - 3 scoops regular to 1 scoop hypo. She hadn't eaten in 12 hrs so she inhaled the first 4 oz but then refused to drink any more. (I guess she started minding the taste when she wasn't starving anymore.) I'm thinking we added too much for the first bottle and need to scale back and go slower.

BlueLeopard - if you're reading this - do you remember how long it took for your son to adjust to the taste? How long did you have to mix the bottles before he started taking the hypo exclusively?

Aug 16, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Hi Danielle,

You might want to use the strawberry flavoring over the chocolate. For some reason chocolate makes reflux worse. I used the powered strawberry Nestle Quick. (Ryan never had to be on the hypo allegenic formula but it help him getting over his fluid adversion) I did the power over the syrup because it has a little less sugar. I think I saw a vanilla flavored product the other day. As far as how much, you have to play with it a bit. I used more at first and then slowly backed down with a little less each time until he would drink milk plain. Oh the things we will do...

Aug 16, 2010
dcd
Thank you Karen, I will give it a shot!
Check with your
doctor first!