Posted By Posting
Aug 09, 2010
Opinions on the Marci-Kids Team?
I just e-mailed Marci-Kids for info on the Buffer Babies & Caracream to use when administering Prevacid. (BTW - are these two separate solutions, or the same thing?) Thank you to the ladies on this forum for the suggestion!
We have been giving K the Prevacid solutabs, but this is problematic because we are often not able to administer the medication as directed (on an empty stomach, a half-hour to an hour before a full meal - because of work, daycare, her early bedtime, how often she eats, her pickyness, ETC.) I think us not being able to consistently administer it correctly is making it less effective. Also, it could be that K's stomach acid is eating up the medication before it's able to start working.
Hopefully the Marci-Kids team will get back to me and will be able to help us. It sounds like they've been a Godsend for so many of you.
My question is: what do you all know about the team's medical expertise/background? How comfortable do you feel taking their advice and using their products vs. that of your pediatrician/GI?
I read the info on each team member and the doctors seem to have all received their medical degrees outside the U.S. (Though it looks like they've all done residencies/fellowships at U.S. hospitals and most are certified by the American Board of Pediatrics.) Dr. Jeff got his degree in the U.S., but - although he's obviously very knowlegeable - he is a pharmacist, not an MD.
It sounds like the sodium bicarbonate suspension might be the magic bullet in helping the PPI control the reflux as intended, but I'm a little uncomfortable/unclear as to the safety of this solution - is this, essentially, an experimental drug? As I understand, this is not available via regular doctors or the Buffer Babies/Caracream just offered via the Marci-Kids research team?
If it could give K some relief, I think I would like to try it, but I am just not 100% settled regarding Marci-Kids. The feedback of those on this forum has been so helpful. Can those of you with experience with Marci-Kids please share your thoughts?
Thank you!
Aug 09, 2010
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
this is JUST my opinion and only my opinion- but i have NEVER gotten a response from anybody at marci-kids and i have called many times over the past 2.5 years. I have e-mailed a number of times and never received a response. due to this I personally am skeptical.

I have a pager momma friend who has had contact with them and has received the caracream, i do not remember if she liked it or not or if it worked for them, but she did get it.

my best advice to you would be to tell your Dr. everything you plan to do. give your Dr. the marci-kids website and information on bufferbabies/caracream and ask if this is alright for your child. it is best to inform your dr or pharmacist about ANY med your child takes- be it this, herbal, supplement, or whatever- just to be safe.

It is my understanding from looking into this that BB and CC are very similar if not the same to Zegrid OTC, just developed for use with kids. but please ask your dr before trying!
Aug 09, 2010
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen

I have been working with the team at Marci-Kids (Reflux Solutions Lab) for over a year. They have been extremely responsive to me. We had tried everything under the son for Ryan, with no reponse. The feeding tube was looming... I contacted Marci-kids to get information how to become at patient at their children's hospital (University of Missouri, Mizzou) as they are only 5 hours from me. Before having me make the drive, they had me send them Ryan's info. They recommended I try the caracream for the same reasons you described. In one week he was a new child. In 6 weeks he went from the 2nd percentile in weight to 50th. I did not end up having to go down there. My pediatrician was completely OK with it. That lab was the maker of Zegrid. They sold the rights to the Schering Health Care Products. They kept the rights to caracream for infant stablition of PPIs. In fact their new version of Caracream is simply a specialty stable flavoring. Instead of using prevacid they have you purchase Zedgrid OTC (as it already has the sodium bicarbonate in it) mix it with water and add the caracream to it. (side note, sodioum bicarbonate is baking soda). Pharmacies can get caracream but it is purchased under the name of choco base. ( I have 3 pharmacists in my family) Ryan is down from 30 mg a day to 14.

Now, all the said.... this worked for MY son. Every situation and child is different. Do what you feel is right and tell you doc.

David and Jeff get a ton of phone calls and emails every day. They tend to be quick, to the point and stick to the facts with their reponses. Don't be turned off by that. They are just busy people.

Aug 09, 2010
Spoke with David...
I was able to reach David by phone over lunch. Since K is on Prevacid, he recommended the Buffer Babies and suggested we use the Prevacid 24 hr OTC 15 mg capsules (since prescription capsules only come in 30 mg.) He said the OTC capsules are the exact same thing as the script. Can anyone confirm this? It's the "24 hr" note in the OTC version that has me wondering...
He was very helpful. I could tell he was busy, but he didn't rush me. Emibug, what a bummer you've had such a bad experience with them!
I believe the difference between Buffer Babies and Caracream is that Caracream is for use with Zegerid only while BBs is for use with all other PPIs. I think I would rather keep her on Prevacid vs. Zegerid, since Prevacid is approved for use in children 1 yr+ and Zegerid is for 2 yrs+.
I still feel a little unsettled because he wasn't able to tell me what's in BBs, and I can't find a list of ingredients anywhere. He did say all ingredients are "food grade" and that it isn't a drug but rather a "pharmaceutical aid." He wasn't able to tell me if it's approved by the FDA or that they have proven it safe in babies/children?
He did say that it's kind of the like the buffer in the pharmacy-compounded versions of PPIs, but the difference is that BBs keeps the buffer and the actual drug separate until you're actually ready to administer it to the baby. The pharmacy compounds don't, which is why they become ineffective after just a week.
Vigilantmom, if these products are like Choco Base, sold by pharmacies, why not just use the Choco Base?
Also, if your son is on 14 mg/day, how is that administered? I thought the pills didn't come in anything less than 15 mg?
Thank you both for taking the time to respond!
p.s. How do you get your entries to double space? When I post it erases my spaces between paragraphs!
Aug 09, 2010
ps. Emibug, I did email my doctor with all the info on the Buffer Babies. I told her I was ordering it but it should take a week or so to get here and to please let me know if she has any reservations about it in the meantime.
Aug 09, 2010
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
OK, I hope this makes sense... For the last year I used version 1 of Caracream. I opened the prevacid capsules, disolved it in the Therasol and then mixed it with the caracream. I only made 8 day supply at a time. The buffer babies version keeps the prevacid seperate from the caracream till right before administration so you can make a 30 day supply. (it is kept in 2 seperated sides of the bottle. You draw the PPI from one side and the buffer from the other. ) Ryan was on the caracream and my friend's son was on the buffer babies. Pharmacies can and do order cocobase to compound liquid prevacid however they make a 30 day supply instead of my 8 day supply so theirs unstablazies after 2 weeks and is no longer effective. I am sure you are wonder why the pharmacies are not administering it in the double bottles then... my only guess is that is part of the research process. They just started the dual bottle thing from what I know. I never used the dual barral model as I didnt mind the time and expense of mixing the 8 day supply at a time.

Zegrid OTC is Priolec with the sodium bicarbonate buffer added to it. Nothing more.

Yes, Previd OTC is exactly the same as the script version. Prevacid use to be by prescription only. This year it went OTC. The generic version is still by presciption. Has to do with patent laws.

Regarding how I have him down to 14 mg... Remember that you are now administering it in a liquid form so you can adjust your dosage to anything you want. Makes the wean off process so much easier. I have been dropping him on ml at a time.

As far as ingredients, I will read my bottle tonight. From what I recall it was sodium bicarbonate (baking soda) and flavoring. I will double check though. I recall it being milk and glueton free.

On the paragraph spacing hit Enter then the greater than sign, the letter p and then the less than sign. Dont ask me why that works. : )

One more thing.... I have found that probitics are really important for Ryan. Seems like when I stop giving them to him, he gets sick. My theory.. for what is worth... acid in the stomache kills the cooties that make their way into the GI system. When the acid is gone, the cooties have an easier time taking hold???... Plus maybe PPIs affect the good bacteria somehow... that is just my theory though. At any rate, I give him probiotics in his milk at a time different than when I give the PPI.

Aug 10, 2010
Thanks so much for the info. This does make things clearer and I feel better about trying the Buffer Babies with the OTC Prevacid. We have a GI appt coming up so I'll make sure to take it with us to get the doctor to sign off on all the ingredients. I really hope the buffer will be our solution in getting K's medication dosing right.

Since Zegerid is just Prilosec + sodium bicarbonate, I wonder why the 2 yrs+ approval? It seems like it should be the same as the PPIs if the buffer is just a food-grade suspension solution.

Thanks for your note on the probiotics. What do you use? I will have to keep that in mind for when we get K's acid under control. I know a lot of the formulas include probiotics now. Any opinion over going that route or giving them the drops? They are drops right? Where do you get yours?

Thanks again for taking the time to respond! Your little Ryan is absolutely precious!

Aug 10, 2010
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The brand that I really liked when Ryan was little was BioGaia Infant drops. It is behind the pharmacy counter because it is refrigerated. I just put 5 drops on a spoon, his bink or with little yogurt. It has not taste so it doesnt really matter. I use their probiotic straws now or my brother who is a compounding pharmacists whips me up a concoction. To get the most potency is it best to find a brand that has to be refriderated. Then you know you are getting the live strands. When Ryan was really bad I also used digestive enzymes with him. They seemed to help speed up his digestion. Doesnt sound like you are having that issue though.
Aug 18, 2010
We have used Buffer Babies with OTC Prevacid for months and it has done wonders for Max. He was on 30 mg which was 15 mg (1 tsp) morning and at night. It is just a suspension to put the medicine in and you do keep the medicine solution (Bottle B) separate from the other suspension (Bottle A). You have to take 1/2 tsp. from each bottle, then shake the plunger to mix it up. It is really easy and the directions are very easy to follow. Max is now down to 7.5 mg once a day and doing great. This method makes it so much easier to adjust dosages. Marci Kids has been great with me and always pretty available. Yes, they are busy, but I look at that as a GOOD thing.....they are obviously doing something right and helping kids! I know they definitely helped mine! worth a try for sure!
Aug 19, 2010
We are still waiting on our Buffer Babies to arrive. It should be here today. But so far I too have had great response from David Stock with the Marci-Kids team. I'm wondering if maybe Emibug was calling an old number or someone other than David?

I called David last Friday and left a message. Since you have to send in your order by mail (terrible!), I just wanted to confirm that it had arrived and see if he could give me an idea of when it would be shipped out. He called me back Monday, explained he was out of the office on Friday, said my order arrived earlier that day, that he was filling it as we spoke, and that it would be in the mail first thing Tuesday. I can tell they are busy people but very dedicated to helping parents. Now let's just hope the Buffer Babies works for Kylie!

Check with your
doctor first!