Posted By Posting
Aug 05, 2010
kavyamom
Endoscopy - clean results, what next?
Kavya had the EGD and the results are all clean (no inflammation, no ulcers, etc). We are still waiting on the biopsy results. She handled the fasting fine and the Versed helped in relaxing her before the procedure. The worst part was the recovery. She was screaming, completely disoriented, and had a LOT of gas which was very uncomfortable for her...she was just twisting and turning for hours and no amount of consolation was helping. They actually sent us home very quickly (since her oxygen and heart rate, etc. was fine) to see if the home environment would help her but it didn't. Finally after 3 or 4 hours of extreme discomfort, she finally went to sleep and after a 2 hour nap, she woke up feeling much better. I think all those drugs that they gave her just didn't suit her stomach. Again the night was awful and she was waking up every 1/2 hour. Today she is acting normal though and hopefully tonight will be better.

Is EGD supposed to be a diagnosis for Gerd? We know Kavya has silent reflux but since everything looks good inside I guess the zantac is working to at least prevent damage.

She has an intolerance to so many foods (is only eating 13 foods now and she is 19 months old) and so I really feel there is some allergy thing going on as well, but I also feel some of the discomfort she feels at night is because of the reflux. Now, the GI is saying that we might have to do some night disciplining since everything looks good but I really feel she is feeling some pain. Why wake up every 1/2 to 1 hour when we give some new food? Not sure what to do next. Maybe try prilosec again to see if her stomach will tolerate it better this time around since she is older? Prevacid was just a nightmare for the 2 weeks we tried it. We tried prilosec for only 2 days. Will let you know about biopsy results once I get this.

Aug 06, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I would wait it out until you get those results. To the naked eye things can look fine when in fact they may not be....it can happen it is tough waiting though.

EDGs are not used to DX GERD they are used to see if there is visible or non visible damage due to GERD and if there are things like EE, EC, EG going on that could be the culprit instead of GERD. EE and the like are often mistaken for GERD when in fact they are something else all together.

An Impendance Probe is the new gold standard for GERD testing. Alot of hospitals still use PH Probes but alot are moving on to using the Impendance instead since it can detect the difference between acidic and non acidic reflux.

Did you do some trigger foods prior to the EDG?? If you were avoiding foods you knew could cause problems you might get a false negative on the slides when they are tested.

Aug 06, 2010
kavyamom
We didn't do trigger foods before the EGD. I wanted her as well rested as possible before it. The GI never told me about this. However, we would stick with safe foods for a week and then when we try a trigger food after that, she would still react badly to it. So, I am guessing the white cells must be high all the time? I sure hope I don't get neg results because she didn't have the trigger foods before the EGD.
Aug 06, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You may still get those results, positive that is. I am not an EE expert, I have learned alot from others........but I am thinking it takes a bit OFF of those foods in order for the EOS count to drop far enough.

Even if it comes back negative, I'd start keeping a detailed log of what foods you are giving, when they are being given, how much is given and what reactions you see and how soon or late after the food is eaten do you see the reaction/issue.

That will become an invaluable tool to use in the future as to what foods go over well and what foods to avoid. You can use the same pattern you are using now, introduce a new food for a few days along with all the safe foods, and that will allow you to see if the new food is the culprit or not.

Aug 07, 2010
kavyamom
The biopsy results are all normal. So, we are now planning to see an allergist.

I actually keep a very detailed log of her food intake and that is how I have narrowed it down to the 13 foods that suit her. With those 13 food, the reflux is manageable with zantac. However, I have probably tried 30 other foods and she reacted badly to all those (in most cases her reflux will flare and she will start waking up every 1/2 to 1 hour at night).

Aug 09, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Just for the record, we usually add/drop foods for 6-8 weeks before scoping to see if this helps/hurts my son's EE. So, if a child is off all of their trigger foods for 6 weeks, they may scope clean, even if they actually have the disorder. Hope this helps. El
Aug 09, 2010
kavyamom
We did try some new foods about 2 weeks before the procedure but she didn't react as badly to those as she reacted to for example cheese, soy, etc. which were just a complete nightmare. The really bad ones we had not tried for several months.
Check with your
doctor first!