Posted By Posting
Aug 03, 2010
dcd
NAET for Reflux, Cosleeping, Tucker Sling, PPIs, GI Appointment, and Various Items Secondhand
I'm new to these forums but not new to reflux. My baby girl is 5 1/2 months and has been suffering since she was 2 weeks old. She spits up 20 times a day, always wet burps, often cries with her bottles, has chronic sinus infections, wakes up all night long, etc. Despite this, she has a naturally sunny disposition and we are very blessed. Lately, I am finding it harder and harder to cope with K's reflux. Seeing her in pain, day after day, is taking its toll. So is the sleep deprivation - but I think my worry over HER not sleeping is way worse...I know how important restful sleep is for a developing baby. I am completely consumed by her reflux - and I am concerned that the chronic pain/discomfort will eventually affect her happy personality. Not being able to fix this for her has me feeling worthless, and with the constant stress I feel like I might shatter into a million peices any minute. I am desperate to get her some relief. With that venting out of the way, I have a couple of questions for my fellow suffering mommies out there. 1. Is anyone familiar with NAET (Nambudripad Allergy Elimination Technique) treatments for infant reflux? If so, will you please share your experience? Long story short, I gave NAET (offered via a local chiropractic office) a shot a few weeks ago. We had a free consultation, my mom was nagging me, and I figured we have nothing left to lose. The doctor identified 4 "sensitivities" (milk casein, egg, yolk, and amino acids) using a muscle test and treated K using "vibrational medicine" (i.e. acupressure while exposed to homeopathic amounts of each substance). For 5 days, the results were nothing short of a miracle - K experienced complete and total relief. I'm talking, she went from spitting up all day, hours after feedings, to just a couple times a day. The consistency was thicker and yellower, like normal baby spit up - not gooey and mucousy. It came up in coin-sized dabs, vs. running pools streaming out of her mouth a half-bottle at a time. She quit fussing during feedings and resisting her bottles. Her congestion cleared up overnight. She started sleeping like a rock - 12 hour stretches without waking, when just days before (and for months prior) she was up 5-10 times per night. I AM NOT EXAGGERATING. The daycare girls, my parents, me and my husband...we were all stunned. We (half)jokingly called it voodoo by the witch doctor. But I have never felt happier or more relieved. Until it just...fell off. And since it did, I have never felt more devastated. Now we're back to square one. The doctor wants me to bring K back to test for some other sensitivities, but my husband is resistant, saying we've already spent so much $ on this and "it obviously doesn't work." I'm hesitant to just walk away though...it's the only thing that has brought K any relief, and our other options aren't good. Medicine has done nothing for her; neither has breastmilk or several formula switches. Don't get me started on everything else we've tried. So if anyone has tried the NAET treatments, PLEASE respond with your experience. 2. At this point, I have taken to propping myself up in bed with pillows and "sleeping" sitting up, with K upright on my chest. I can't bear to let her cry in her crib at night, knowing she's in pain, and I also can't do the 10-times-a-night trek across the house to replace her paci and pat her back to sleep anymore either. She does sleep better in my arms, though she's still fidgety and I know the acid burning is bothering her. Those of you who are cosleeping with baby, can you please share your setup? When she was a newborn we used the First Years Close & Secure Sleeper, but she's too big for it now. I know the Arm's Reach is good, but I can't stomach spending the $ on it after all we've already spent. 3. Another reason I'm not willing to shell out for the Arm's Reach is because I know K needs to be elevated to sleep, and I just ordered the Tucker Sling. We tried elevating her mattress, but she just slides to the other end which scares me. Anyone have experience using the Tucker Sling with an older baby? K goes down very well (knock on wood) at night around 6:30; the fitfulness usually doesn't start until around 9:30. She sleeps on her belly and doesn't mind when the mattress is inclined, she just slides. But I'm worried she won't settle to sleep in the Tucker Sling. Thoughts? If she doesn't take to it immediately, have any of you had success sticking with it for a few days? 4. K is on Zantac and Prevacid, neither of which has given her any relief. I am wondering if it might be worth it to try switching meds. Are all PPIs the same? Have any of you had success with one after giving up on another? Should I look into switching to another category of drug? I am so uncomfortable with giving her meds considering her little digestive system is still maturing - I really lose my will to do it when I don't see that they're making any difference. Opinions? 5. Our first GI appointment is coming up via referral from our family doctor, who really doesn't know anything about reflux beyond prescribing the two drugs mentioned above. What should I expect from the GI? I am so nervous about invasive testing...I've heard the barium swallow can constipate babies for months! I can't stand the thought of adding that trouble to K's list of discomforts. Are there any available tests which are helpful but non-invasive? Those of you with experience with GI docs, what should I be looking for in a good one? 6. If anyone is interested, I have a few items K has outgrown. She was addicted to her swaddle so we used the Peke Moe (www.pekemoe.co.nz) and Woombie (www.thewoombie.com) to help with the transition. I also have an unopened - still sealed - bottle of Colic Calm (www.coliccalm.com) which I know to be very helpful for infant gas and reflux in some babies (just not ours). I also have an unused Summer Infant Mommies Melodies Gund Bear in pink (search www.target.com). All of these items, except for the Colic Calm, have been helpful along the way - they're just hard to sell secondhand because they're kind of "specialized" items. Any feedback is much appreciated! And I have to say, it does help a bit just to know I'm - we're - not alone. :)
Aug 03, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
wow that experience with NAET sounds amazing I am sorry it didn't work longer. I have never had any experience with it but i think there was a post not to long ago about something similar and I think another mom posted that she had experience in it.

good luck with the tucker sling, i hope it works and since she loved swaddling i bet she might take to the tucker sling well. For a good 10 months Emily slept in my arms or in my bed propped up on pillows. Even though we had her crib in our room, we needed sleep. We didn't have any success in having her out of our bed until her tummy issues were somewhat resolved.

One thing i can not praise enough is that for any baby with reflux or tummy issues to see a GI. The Dr. will be able to have a better insight into your little ones symptoms and have a better plan of action to resolve them. They will better know what to do in terms of switching meds or trying new things that a pediatrician may not have experience with. You need to have a GI Dr. that will listen to you and explain everything you need to in a way you understand it. ASK LOTS OF QUESTIONS! write them down, even. do not let them rush or brush you off, you are paying them and you are your daughter's only advocate since she can not speak you both deserve a doctor willing to take the time to sit with you and address all of the issues.

In our experience seeing a GI was a key to helping our daughter. She did not just have reflux she had digestive issues that CAUSED GERD. a GI has a better realm of knowledge to see the bigger picture and identify things that might be causing reflux rather then just treating reflux as a condition alone, kwim?

and it is very rare for a baby to be constipated for months after a Upper GI Barium Swallow (i personally have never heard of that!). As long as fluids and water or even juice is consumed, the barium is passed no slower then formula. If constipation is an issue for your child the GI will address that as well and suggest other options for you.

The upper GI is a test to show if there are ulcers, or physical abnormalities of the anatomy of the esophagus, stomach and upper small intestine. Not much barium is needed for just the upper GI (i think emily had to drink 6oz) and although they warn to drink plenty of fluids the risk of severe constipation is rare.

if you decide to see a GI it would be a good idea to keep a daily schedule of dd's day. When she sleeps, wakes up, eats, reactions to eating, how much she eats, when she cries and how long. when she spits up and how much and what she does when you think she is in pain. even things like bowel movements are helpful too.

and please don't be so hard on yourself! I know from experience it's not an easy thing to do, because i was very hard on myself too but you are being a great mommy by looking in to everything possible to help your little girl. good luck and *Hugs!*
Aug 04, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I have no experience with NAET, though like Kathryn I recall someone else on this forum having used it awhile back, but I do have extensive experience with the use of other alternative therapies for my son's reflux and other issues. What I know from our experience, and what may also be true for NAET, is that it isn't a one time miracle cure -- it is a shift in an entire paradigm, a different way of thinking about health care and wellness, which is very different than the western notion of "curing" and ailment. The idea with many alternative therapies is to look at a person from a holistic standpoint, and know that with every shift there is movement elsewhere, that all parts of us are essentially connected and we must treat the whole person, in context, in order to attain lasting well being. I'm happy to talk more with you about our experience (primarily with Chinese Medicine and Cranioscaral Therapy) if you are interested in doing so. Given the incredible way your LO responded to the NEAT, I would not dismiss it as something that didn't work ultimately, I would consider the possibility that it worked incredibly well, but that as miraculous as it seemed, it is not meant to be a miracle, simply another way to walk toward health -- and ongoing process.

You little one's sleep sounds a lot like my son's sleep has always been. We discovered that he had apnea as a result of the reflux, and we are now coming to realize that there are sensory processing disorder issues that also come into play. Again, if you are interested in talking more about it, I am happy to do so.

I'm glad you are getting in to see a GI specialist. I highly recommend going with a written list of your observations and questions, even making a copy for the doctor, so that you can be sure that your concerns are addressed before you leave the office.

As for medications, what I have observed over the years here is that different medications, even within the same group, can have different effects on different kids at different times and in different combinations. It can be a challenge to find the right ones for your little one, but it is helpful to not assume that just because something isn't working well that nothing will. Also, it sounds like your LO may have some allergy issues, so I would watch carefully the ingredients in any new medications, as there can often be hidden allergens in medications.

I have been co-sleeping with my son since he was tiny, and began choking during the night. At first I made a wedge for him to sleep on, and then, as he got more mobile, I elevated the head of our entire bed. Even so, I spent many many months sitting upright trying to sleep with him on my chest (eventually in an ERGO). For the past year and a half or so, he has slept on a toddler bed with a rail on one side and the other side pushed up against our bed. I cover the gap between the beds by running a sheet over his mattress and across ours, tucking it in on the far side of our bed and the far side of his. The truth is, however, that he travels extensively in his sleep, so I never know where he will end up...

Hang in there -- you are obviously committed to doing all that you can for your child. It can be a long and exhausting journey, but it is well worth all the effort. ((HUGS))

Aug 05, 2010
dcd
Thank you ladies, for the wonderful and helpful feedback. It sounds like your little one have had such a rough start, and moms like you are my heroes! I know we just have to keep moving forward. I will keep all of your advice and experience in mind as we do and will surely post more questions and any successes along the way.
Aug 11, 2010
dcd
LorenzoMommy,

What did you use to elevate the head of your adult bed, and how high did you elevate it? I am concerned that elevating our bed to the degree it needs to be to ease K's reflux might make the bed unstable?

Also, I like the idea of the toddler bed pushed against the adult bed, with the sheet. Are you using a regular toddler bed or is there some sort of portable version? K's crib is one of those that converts into a toddler bed. It's quite big and heavy and I don't really think it would fit in our room unless we moved out some of the other furniture. Just wondering if there's a "travel version" toddler bed or something...(obviously, K is my first child or I'd probably know the answer to this!)

With your current co sleeping arrangement, it sounds like your son's bed isn't elevated. Does he no longer need the raised mattress factor to sleep?

Check with your
doctor first!