Posted By Posting
Jul 22, 2010
seansmommy
What Formula do you use to ease Reflux
Hi everyone. I'm new to this website. My son, Sean, is a former 24 weeker who has been diagnosed terrible reflux since the day he was born and just recently oral aversion, due to reflux and oral sensitivity (sigh) Currently he is on 10 mls of omeprazole 2mg/ml solution (5mls 2/day), 5mls of mylanta when needed and his formula is Similac Neosure. He is 16 months actual/12 months adjusted and because he does not eat (we are working with an OT on that) he is still drinking Neosure. My OT states that we need to get his reflux under control, which I thought it was but perhaps not because of his oral aversion and have since talked to Sean's GI to increase his meds, so that we can work on getting him to eat through therapy. However, my mommy instinct thinks the neosure is aggrivating his tummy. He's been on Neosure since forever due to his vlbw and he has had issues forever. We have an apt with a nutritionist out of our GI's office this Monday to discuss other formula options that will less volitile to his tummy. I'd love to know what formulas you have used and worked for you. I saw a pp say that Similac Sensitive worked for their lo. Any other suggestions? Thank you so much and I love this site.... It makes me feel better to know we are not alone in this battle. Michelle
Jul 22, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
you are so not alone... As for a formula for reflux..well..the main issue is that some of these formulas are more broken down and easier to digest (so they aren't sitting around refluxing all day in baby's tummy. None of them actually DO anything for reflux...My son was on Elecare for ...oh wait, he still takes it at almost 3...his reflux was very severe adn he has improved a LOT in the last year. he also had an MSPI (milk soy protein intolerance) so he needed a hypoallergenic formula at the time...not so much anymore, but we are finishing up what we have. Neocate, Nutramigen, Elecare...those are probably the most popular. Elecare isn't available in stores...it's by prescription, but you can get it on eBay. Ask your GI for a sample. I would give it a try...it digests quickly...my son never had any gas issues with it...he just threw it up a LOT (not anymore)...In my opinion, it's worth a shot. May take a couple weeks to see any changes. good luck!
Jul 22, 2010
seansmommy
zack'smom
Thanks Zack'smom. I will bring the information to the GI office on Monday and hopefully I can switch his formula to something that isn't so irritating to him. I'm also on the search for a good Probiotic. I just called my pharmacy to see if they can get me the BioGaia infant drops instead of having them delivered. Right now we are using the children's culterelle that I got from our local grocery story, but I do not see much improvement with that particular brand.
Jul 23, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I don't think I'd backtrack from Neosure to Similac Sensitive. You need to find a "toddler" formula that is broken down and those options are a little limited.

The main issue for us was we wanted a formula that tasted good. We didn't care if it was going to go into Jedd's tube. If we wanted him to drink it orally one day, this stuff was gonna have to taste decent.....LOL Noone would believe us, but that's OK. Some of the broken down next step formula taste pretty awful.

We ended up using a 30 calorie per ounce formula called Peptamen Jr. It comes with or without Prebio Fiber and comes flavored Vanilla or plain, I've also seen it premade in Straberry Chocolate. Vanilla is the easiest though because you can flavor it whatever you want with Nestle Quick afterwards.

It's a broken down formula and was reccomended to us by the NP and nutritionist at our local feeding clinic.

We also used "Enive!" juice which really was a formula. The taste wasn't as good but we used it to suppliment during the day a bit because it comes in a juice box. The don't make the Enlive! anymore but they make something called Boost Breeze and also (I think it's called) EO2 Splash. These also taste good but are a "formula" in juice form.

There is a GREAT article online written by one of my friends about every formula out there, I'm gonna go find the link for you.

Jul 23, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Here They are.....it's in 2 Parts:
http://www.articles.complexchild.com/june2008/00047.html

http://www.articles.complexchild.com/july2008/00050.html

Hope this helps, these articles are fantastic.

Jul 26, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
If the reflux is due to a milk/soy issue, I'd recommend Neocate Jr.
Check with your
doctor first!