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Jul 21, 2010
alljanes
Feeding an Infant with DGE Please read/help
To cut to the chase... I have an 8th mo old just diagnosed with DGE. (not severe- 50% after 2 hours) She is on Prevacid 15mg solutab plus now trying Erithomycin for the DGE. She is breastfed almost every 2 hours or so (that is probably why she is doing as well as she is 'cause the formula supplements were a disaster!) I'm wondering what foods would be best for digestion considering she has DGE. And which one of those has the highest calories so we get her weight picked up? (She was 8lbs 2oz at birth, 11lbs 9oz at 2 mos and and at 8 mos weighed 13lbs 12oz) She is gaining albeit very slowly and drs would like to see her pick up weight wise. Right now she eats applesauce, bananas, sweet potatoes, and grits. Those are the staples. Have started giving her our dinner at night pureed (spag w/a taste of meat sauce. tuna helper, baked chicken with barley) Though only a little bit and thinned with water. Since she is by far the worst of all mine with GERD and the first with DGE, I'm wondering if I should feed her differenly. So what foods would be best for her DGE as far as digestability and calories? And we are no longer giving formula except once in a blue moon and in desperation. Thanks so much!!
Jul 22, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I went really really slow with foods with Ryan. His DGE was not severe either. I am definately not a nutritionist but I wonder if pastas might be kind of hard for them to break down? I would call you local Early Intervention Group and ask for an nutritionist consult. They would know what is easy to digest and what it harder.
Jul 22, 2010
alljanes
DGE
What is an Early Intervention Group? Would that be WIC??
Jul 22, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Every state has a free Early Intervention group that works with children under the age of 3 with a variety of issues such as speach, feeding, development etc. They have Occupational Therapists, Speach Therapist, Dieticians, Feeding specilist, etc as part of their staff. It is a no cost to you. Your state may call is something slightly different, but it is in every state as it is a federally funded program. Let me know what state you are in and I will help you locate yours. They can be a very valuable resource.
Jul 22, 2010
alljanes
NC- I would LOVE to talk to a nutritionist about this. Drs want her to put on weight but I can't seem to figure out what is best for her and trial and error is taking too long. Thank you!!
Jul 22, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The program in your state is called North Carolina Early Intervention Services. http://www.ncei.org/ei/itp.html. From the website it looks to be heavily geared towards special needs children but you can qualify for diatician support for to feeding issues. Give them a call. Here are the phone numbers.. http://www.ncei.org/ei/itp/branch.html
Jul 23, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
Emily doesn't have severe DGE either, we were told to keep a low fat diet, and low fiber because many fibers can not be digested. here is a website that may give you some ideas on how to proceed with giving foods. http://www.gicare.com/diets/Gastroparesis.aspx

for us we had complete trial and error, portion size is kinda irrelevant at first. we had her on her standard formula to keep her nutrition up and added little bites of food working our way up from teaspoons to tablespoons to ounces. it does take a while but it will give you a better idea of what an how much can be tolerated and what can't.

if you are really worried about weight you might want to ask the dr. about any supplements or extra calories you can add

I agree a EIC evaluation to see a nutritionist is a GREAT idea. If you end up having to be on a long waiting list and you have insurance, you could make your own appointment with a nutritionist at a children's hospital or privet office. I hope everything works out well!
Jul 27, 2010
alljanes
Thanks!
Thanks for the info. That link of foods is interesting. Now I'm making sure she takes her vitamins every day. Still trying to get in touch with the early intervention people. Hope to hear back from them soon. :-)
Check with your
doctor first!