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Jul 16, 2010
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
irritable bowel and GERD
Hello Everyone. After a bit of time away from this wonderful site, I'm back. We had another baby, Aidan, in November who is thankfully healthy. We got off to a very rocky and scary start as I contracted that H1N1, bacterial pneumonia and went into labor all within less than 24 hours--he was born 3 weeks early and spent 2 weeks in the NICU with digestive, heart and breathing issues. Fortunately, we are both MUCH better now! My Aaron, baby #2 still has GERD. He's still on prevacid and we've added Pepcid to his regimen now as he's waking every night seemingly uncomfortable. He has terrible breath (sour) all the time and I'm really thinking that he has irritable bowel. He's been allergy tested (milk, wheat, peanuts, etc) and tested for Celiacs which he doesn't have thankfully. Does anyone else notice a correlation between GERD and IBS? If you have a child with this, what do you do? He isn't constipated--he goes several times a day and they are the worst smelling poops I've ever smelled! I'd love to get him potty trained but he's also severely speech delayed (he's working with a therapist now). Thanks so much. This site has been a huge help to me in the past and I've sent so many people here as well. We all need to stick together and help our kids!
Jul 16, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
hhmmm, from what I've read, it's a rare case that a child or infant can have IBS, that doesn't mean it can't happen, just rare....KWIM....don't want to discourage you from pursuing that, something you can discuss with the GI for sure.

How was the Celiac's testing done? I would rely on an EDG more so than other tests....also if the infant/child was not ingesting glueten at the time of the test, you can get a false negative for sure.

I will say, there is most def a connection between things NOT passing out the back end...LOL and reflux flaring....most def. But if he is pooping, I wouldn't think that could be the issue.

How long have the yucky poos been going on? Is it recent? What color are they? Do they have mucous in them? TMI I know but pretty much any topic is discussed here.....LOL So don't be nervous about telling us.... :-)

From what I've learned here and from other GERD Mommies, if there is something going on in their poo like that, something is bothering their little tummies....((HUGS))

Jul 17, 2010
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
IBS
Jessica, The Celiac testing was done simply by blood test. Came back negative so they didn't pursue it. His poops have been bad really since early on. They range from really mushy to flushable throughout the day and always smell bad. There doesn't seem to be any mucous in them. The color also varies but along the "normal" side. From what I've read regarding IBS, it is difficult to determine in children, but there is a strong family history of it on both sides; the GERD itself seems to have been passed down from my F-I-L as he's had terrible problems with it his entire life (now 96). I have to find the probiotic and start him on that as I'm thinking that he must have some kind of bacteria in his tummy that is bothering him. Thanks!
Jul 17, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
It might be worth it to ask them to take him to the O.R. and do an EDG to test for Celiac's just to make sure. They can also test for EE while there and check for visual damage from the GERD. It's a really quick and extremely useful test to have done.

A probiotic is a great idea to start. Have you tried eliminate foods from his diet to see if you have success with better poop? You can try the top allergens and see if it makes a difference.

Jul 17, 2010
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
tests?
Sorry what is an EDG test? He had an endoscopy a year ago and fortunately everything looked good and there had been no damage so far--hopefully it stays that way. The worst test was the PhProbe as he was 8 months old and mobile. He kept getting tangled in the wires and nursed every hour! I'm not sure who had it worse--him or me!
Jul 17, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
That's the test I'm talking about it can be called an EDG for short......but, at the time if he wasn't taking in any gluten products or wheat, you could have gotten a false negative.

There are other Moms here who are better with allergies then I am but I know that most of them can chime in and probably agree that blood tests are not always reliable...unless I am remembering wrong. Many of them do skin prick tests the child will pop positive on those.

I would still try to eliminate things, lots of things and see if you can get normal poos. Once you do, you can add something back on at a time and see if you get a reaction, that right there will tell you which foods are giving you the problem.

Jul 18, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I have actually read that IBS can sometimes be misdiagnosed and GERD or the two can be active at the same time. Some even believe that being on a PPI for long periods of time can cause IBS. Perhaps talking to your doctor about changing from Prevacid to Zegrid powder packets (just to change that up a bit) add digestive enzymes and probiotics. Keep in mind that acid is in the stomache for a reason one... I had great luck with digestive enzymes and probiotics for regulating stools. I think it help to counteract some of the side effects of shutting off the acid pumps.
Jul 19, 2010
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
Meds
Interestingly enough when I switched my son from the liquid form of Prevacid (compound formula) to the solutab, I noticed an immediate change in him...but that was short-lived. I did take him off of cow's milk for about 2 months and introduced him to soy and rice milk instead--there was no difference in him so I went back to cow's milk. I'm lactose intolerant as it is so it's entirely possible that he is as well since he poops right after he has milk--he only gets milk in the morning as a result. When he was tested for Celiac, he was already eating wheat products so it would have been in his system. So far, nothing has shown up as allergens and I'm told he's too young for actual allergy testing. My friend goes to a doctor that does a different kind of testing and I can't remember what it's called, but there isn't anyone who does that here as far as I'm aware (closest location is 3 hours away). Thanks for your help!
Jul 19, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Lactaid makes lactose free milk. Ryan is on their whole milk formula. It is sold at Target and Walmart. Cant hurt to try. My GI claims that kids cant be lactose in tolerant but it sure makes a difference with Ryan. Plus if there werent lactose intolerant kidsn then Lactaid wouldnt have a market for lactose free whole milk and wouldnt make it because they wouldnt have any buyers........ They sure sell a lot of it... kwim.
Jul 20, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Keep in mind that tests don't show everything - esp. when it comes to food issues. My daughter (now 11) has horrible terrible problems with dairy, BUT scratch tests negative. In her case, I'm thinking it may be her only EE trigger food - since her little bro has the terrible disorder. El
Jul 23, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i am not to sure if IBS and GERD are considered co-morbid conditions but from what i have read and the people i have talked to that have IBS, it seems that some of them do have both.

from our experience, IBS in kids is kinda a diagnosis of exclusion. If he has had a colonoscopy and has ruled out inflammation and stool and blood studies have ruled out viral bacterial and parasites, then IBS may be a considered diagnosis- even then, I was told there is not that much to do about it for it in little ones.

i was told that mostly probiotics and an easy ibs friendly diet is the best option. but your doctor will be the best one to tell you other options for him.

also in our experience, it is possible to be constipated and still go to the bathroom a few times a day. Emily has had a few KUB x-rays showing she had partial blockages, or constipations when she would have diarrhea or foul smelling softish poops multiple times a day. we have not really determined the reason for this but there has been things that point the doctor to think that she may have temporary episodes of ileus. Not saying that he is constipated or have anything like an ileus, but my point was it is entirely possible to be constipated even when pooping.

If you can get in with a GI that would be my best advice. good luck, i hope you can figure things out soon!
Check with your
doctor first!