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Jun 21, 2010
shine_on_you
Blood in stool/refusing to eat--PLEASE HELP
Hi, I am new to this forum mom of a 3 months old boy. He has been exclusively breastfed since birth. He sarted having blood streaks in every stool at about 3 weeks. Pediatrician thought it was small anal tear. Finally saw Ped GI at 2 months--he diagnosed my son with milk/soy protein allergy and had me eliminate all milk/soy from my diet and give it up to 6 weeks for blood to clear out. It has been 4 weeks now and blood is still there. At about 2.5 months my son stopped breastfeeding while awake--I have only been able to feed him at night--I set my alarm to get up every 2 hours. But now he nurses poorly even at night--turns his head away and just stops nursing after 1 minute. He is on Zantac 10mg/kg/day--after 2 weeks on it I see no improvement in feeding. GI will not prescribe PPI (Prevacid)--states studies prove it is unsafe for my son's age. GI's next suggestion is to switch my son to hypoallergenic formula Allimentum. I am really scared to try formula--I am afraid my son will have harder time digesting it and it will make things worse. For those of you who have switched to Allimentum/Nutrimagen--has it made things better? How long did it take for improvement? I've noticed some people on this board trying Neocare--is it a better option than Alimentum? How long did it take for things to improve on Neocare? Anybody else with blood in stool issues? I have no idea how I will even get him to take formula--he refuses breast/bottle/cup/syringe. At night I am able to get him to take breast--a few times I've tried bottle he woke up and screamed. I am going completely crazy--I literraly feel like I am watching my kid getting sicker and sicker in front of my eyes. Any word of advise is very much appreciated.
Jun 21, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
have you ever heard of the Total Elimination Diet? The theory is that there are other allergens you may be eating that end up in your breast milk causing your child to get sick. So if you eliminate enough stuff besides just soy and dairy, you might find the culprit. http://www.askdrsears.com/html/4/t041200.asp http://www.pollywogbaby.com/refluxandcolic/breastmilkeasiertodigest.html

I never found what was causing emily soooo much trouble with breast milk and breastfeeding. I went on the TED diet and never was able to add anything back into my diet and emily was STILL miserable and had reflux and bloody poop. Out of sheer desperation we tried nutramigen. And 2 weeks later she was a DIFFERENT baby. It was completely amazing the change.

about the formulas, hypoallergenic formulas like alimentum and nutramigen are good, and are hydrolyzed basically pre-digested and really easily digestible formulas. usually they take a bit to get used to, emily took a week of force feeds for her to take it. usually if a baby won't eat nutramigen it might eat alimunetum and vice versa. the problem with hypo. formulas is that there is still some milk and soy protein in it so a baby who is very super sensitive will probably not tolerate it very well.

for the really sensitive babies there is elecare and neocate which are examples of elemental formulas- there are many out there that are even tailored to certain diagnoses but these 2 formulas are a good place to start. These too are usually hard to get used to. Many babies can even step down to a hypoallergenic formula once they begin to heal.

emily was trialed on neocate but failed horribly because she was unable to digest the sucrose in it. nutrmigen was a sucrose free formula and that worked great for us. she was a horrendous bottle fighter and was breast fed till she was 5 or 6 months and i really had to work very hard with her to take a bottle. we finally settled on a combo of dr brown's bottles and warm formula. i had to completely go cold turkey on breast feeds as she was an All or Nothing baby. i was also unable to hold her at all while she ate. i sat her up in her boppy against the edge of the couch. i always had to hold the bottle. the room had to be quite and free of distractions

i could understand your doctor's cautions on the use of PPI's in tiny ones but in a lot of cases of reflux PPI is the only way to help healing. But i do agree you should take one step at a time. It is hard to hear but it will take some time to figure out trial and error on a lot of this just so you will know what works.

in my advice i would say, try the formula switch but keep pumping to keep up your milk supply if the formula thing doesn't work. if he is still feeling really bad after you have made the transition OR can't make the transition, i would talk to the dr about doing some testing in order to prove his need for the PPIs. In the mean time you can always go see a new doctor all together for a second opinion.

will your doctor okay something like mylanta to give to him before feeds? you can ask the pharmacist for a correct dose for his weight too. congratulation on your baby i hope he gets to feeling better soon *Good luck!
Jun 22, 2010
em sanderson
For a child that has a milk/soy protein intolerance there really is a possibility that many other foods will also not be tolerated. I went on the Dr Sears TED and it took almost 4 weeks to clear my little guy up before I could add any foods. I haven't added very many successfully because several that I have tried caused issues. Like for instance he has a problem with bananas. Then I tried safflower oil just to give some flavor to my meat and he was intolerant of that. However he could not tolerate the hypo-allergenic formulas. Our income is severely restricted with me not working and my insurance will not pay for any type of nutrition benefits so neocate is out of the question unless Forrest has to have them. Fortunately the elimination diet did work to the extent that he breast feeds well. He was also started on solids at 5 months and has done well with that although he only eats 4 or 5 foods. So to sum up what I am trying to say, the TED is hard but doable. I just tried a new formula Pregestimil and he was able to tolerate it. It's only been 6 days and he has only had 16 ounces over that time but we haven't had an issue yet. Good luck. Hugs too as we all know what it is like to feel helpless with a sick baby.
Jun 22, 2010
em sanderson
My doctor gave my son previcid at 8 weeks then added bethanechol at 4 months. Until I read this I was unaware it was unsafe for a child so young. We didn't get the reflux under control until 2 weeks after he started the second med and he will still have some pretty bad reflux episodes if he eats an allergenic food.
Jun 22, 2010
adelines mom
our daughter choked the first day she was born while trying to breast feed. they put her on enfamil AR and she immediately developed blood in her stools and HORRIBLE bloody diaper rash. we switched to ready to feed, the liquid instead of powder, alimentum and thickened with simply thick and things got a lot better. i was scared to death to switch, but so glad that i did. we used the allimentum for about 8 months and then i switched to nestle good start nourish plus. their simpliest formula. they discontinued it the end of 2009. i still have about 20 cans left. our daughter is 2 years old and still taking 5 bottles a day. has had really bad reflux since birth. is bettter, but she still refluxes some. we also use the doctor brown's bottles and we would keep our daughter upright for an hour after each feed for almost the first year. also we are still warming her bottles and also recommend no tv or loud noises while feeding. keep it nice and quiet.
Jun 22, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
I'm a Neocate/Elecare fan. Changed my little guy 100%. Dealing with horrible allergies, it was the easiest for him to tolerate. I'd recommend checking out their (Neocate's) website for info. on food allergies/formula & also you may want to visit kidswithfoodallergies.org. Good luck!
Check with your
doctor first!