Posted By Posting
May 26, 2010
maclinmc
Losec and sleep problems?
Hi all, I've just found this forum - how lovely to know we're not alone. My 3 year old has had silent reflux since starting on solids. She is intolerant of dairy, citrus, tomatoes apples and wheat, and we are starting to wonder about soy. Lately her problem seems to have changed, though - she had gastro and wound up with gastritis, was vomiting coffee grounds etc. We upped the losec dose temporarily and things improved, but they deteriorated again so she is now on 30mg every day (on the advice of our paediatric gastro). She had a gastroscopy which showed the gastritis but not much else. My question for you is do you think losec affects sleep? Her gastritis is apparently healing, (as shown by the gastroscopy), but her sleep is terrible. She wakes a lot, stays awake and restless (but not overly distressed) frequently, and is driving us crazy with the sleep deprivation. She is very fragile and miserable during the day too, just over the edge with tiredness. I just don't know what else to try. We are trialling her off soy and on a fructose friendly diet, as her sister and I both suffer from fructose malabsorption. A friend once told me that losec was bad for sleep, but I don't know where she heard that or how reliable it is. Any comments would be gratefully received, we are sooooooo desperate for sleep. thanks, Linda
May 26, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
hi i too have a 3 year old on prilosc (same as losec) and we have not noticed any sleep disturbances with her. that is not to say that it is not a legitimate side effect though! I did some looking around on side effects and found this: http://www.drugs.com/cons/omeprazole.html it does list tiredness and over all weakness as a side effect.

just a thought...are her legs bothering her? Emily complains about her legs hurting, i always thought it was growing pains but i just noticed that leg pain and cramps are a side effect as well. that could interrupt sleep. maybe you could ask your dr about what you could do to help her sleep better.have you tried elevating her bed or using a wedge pillow for reflux? many times insurance companies will reimburse you on it. have you asked about something for breakthrough pain like mylanta or even Rx carafate?

i hope the fructose free diet works out well for her keeping emily low to no sucrose has really done wonders and continues to do well for her and her reflux.

speaking from personal experience gastritis is the pits!! i had gastritis and gastroenteritis and even though things are healing for me too it is still painful! i found being on as much of a liquid diet for a could days when i feel really bad and then switching to a low fiber low fat diet as much as i could has really helped a lot. just a thought, have they tested her for H pylori yet? or done stool samples? i hope you can get some sleep soon!!
May 27, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Did her poor sleep coincide with the increase in meds, or has it always been terrible?
May 27, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Despite the grastitis healing, the losec may not be enough to help her feel fully comfortable. Have you tried maloxx or mylanta to see if that helps at all?
May 27, 2010
maclinmc
Hi all, Thanks for your responses. Her sleep is much worse than usual, but because we increased the meds when she had gastritis, everything (including her sleep) was shot to hell at the time, so it's hard to pinpoint one cause of the sleep problems. Her sleep has always been bad, but before she was on losec she was refluxing badly, and for the last 1.5 years she has been on losec, with varying doses. The head of her bed is raised, but she sleeps in such weird and varied positions that I'm not sure how useful it is. She is a very restless sleeper. She has been tested for H Pylori (and just about everything else) during her gastroscopy. Her legs don't seem to be bothering her. We haven't tried mylanta yet but infant gaviscon doesn't seem to make any difference. She seemed to pick up a lot yesterday afternoon, much more herself and actually ate dinner, but then she woke at 3 and couldn't settle properly again after that, and she's gone backwards this morning. So frustrating! Linda
May 28, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
My personal opinion, which I have formed as the result of personal experience, research and consultation with sleep specialists, is that any child who has a history of reflux and consistently poor sleep should have a sleep study performed to rule out sleep apnea. It is one of the most overlooked causes for sleep disturbances, and a tremendously large variety of other issues, and yet it is not uncommon among children with reflux. Because very few pediatric physicians are well versed in sleep science, and because it is an expensive test, it is not often suggested in the absence of parental request or a host of classic symptoms (of which, children are well known not to display while still having it). Insomnia, restless sleep and unusual sleep positions are among potential symptoms frequently displayed by young children -- particularly common are the "c" shape, in which the child arches backward into the shape of a letter c, hanging off the side of the bed (often only noted as frequently falling out of bed or requiring railing past the usual age range), and sleeping on the stomach with the knees pulled under the belly and the butt in the air (not an unusual position for a newborn, but considered unusual for a toddler +).

My son has reflux related apnea, and the sleep deprivation is unbelievable. It can really make figuring out what's going on even harder because you are so exhausted it can be hard to think clearly. ((HUGS)) to you... you are not alone in endless poor sleep, for what that's worth... :)

Check with your
doctor first!