thanks emibug! or anyone w/answers!thanks for your recent reply re: my dd libby and repeating endoscopy...
i'll watch the casein better...
we had skin prick testing at allergist--only saw ragweed, cat, dog, hamster ALLERGY
have had some blood work for some allergies, metabolic--but HONESTLY not certain of ALL that's been checked!
do you know WHAT SPECIFICALLY to ask for so we're looking into EVERYTHING??
what genetic testing can be done?
what metabolic tests?
what would blood,urine, stool samples check for? intolerance or just allergy?
i've seen websites for actual "food intolerance tests" where you send in a blood sample and they check for hundreds of food reactions. is it real? legitimate? valid? or is the gold standard elimination diets and challenges?
with endoscopy-can they "see" with their eyes inflammation--or can it be microscopic--need biopsies for that?
looking at your dd's profile can you answer: what's functional constipation?
how did you knoe she has dge?
how know she has inflammation of sm. intestine?
how know she has parasites, bacteria in small bowel?
what is CSID?
THANKS for sharing and helping!!!
just wondering how much testing we should do/put her through, how far to travel, etc...
some people tell us go to: NYU (dr joe levy), Mt.Sinai in NY(d)r hugh sampson, cincinatti hospital, denver STAR center team, Boston hospital for motility, richmond...AAHH!!
WHERE and WHO will have the anwswers for her and us??!!