Posted By Posting
May 05, 2010
kiwimum
Help please - new mum
Hi everyone, I've just joinied the forums. I'm a mum to a 6 month old. My daughter was diagnosed with reflux at 6 weeks old. We have been through a few medications and have finally found one that works (Omeprazole) but since starting her on solids things have seemed to go a bit downhill. She was sleeping through the night since she was 9 weeks but now she wakes up hungry every night usually around 3am or 4am. I am breast feeding but it has been really challenging with the reflux. She is a fussy feeder and often cries during a feed - especially the 6pm feed. It seems as though she's getting frustrated as she's not getting enough milk. Over the last couple of weeks I have tried 2 different formulas (a small amount mixed into expressed breast milk) one of which was an anti-reflux thickened one and both times she has vomited after. I'm not sure what to do, I don't think she's getting enough milk from me and I didn't want to have to keep breast feeding after about 7 months but I can't find a formula to suit her. It's traumatic for her and for me if she keeps vomiting. I have heard that the protein Casein in cow's milk can make reflux worse so I have avoided dairy products for the last 4 months which seems to have helped the spilling a bit. It seems strange though that the reflux formulas are all casein based?? Also because my daughters milk feeding times are all over the place due to her night waking, it is effecting her solids. She doesn't seem interested in lunch at all (I try to give her vegetables at lunch but it's always a battle of wills). I am in New Zealand so if anyone is kind enough to answer my questions or offer any advice please be aware I do not know any brand names in the US. Thank you.
May 05, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
A couple of quick thoughts for you.... I will be back tonight to talk to you more.

1. Have you tried a soy based formula? She may have a milk allergy that you have not noticed yet because you have been breastfeeding.

2. It may be time for you to increase your daughters omeprazole dosage. As the kids gain weight you tend to have to increase their dosage. How much is she on now?

3. Are you keeping a food journal to help you pin point any possible food allergies?

May 06, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
well the formulas that are formulated for reflux are for two types of babies. babies that spit up with no Acid problem and those that are not medicated on reflux medications. a doctor can make better determinations and you really won't know if they work until you try, but from my research i have found these things to be consistent in having the formula work.

the way those formulas work is that they are supposed to be heavy in the stomach and use the acid that is in the stomach to help digest the formula. if the baby is on a acid reducer, it does not work quite as well.

you might want to try a formula that is predigested or "broken down" but formulas that are hypoallergenic are usually really good for most reflux babies because they have very little milk or soy protein in them and are really easy to digest. If spitting or vomiting is a problem then you can ask about feeding cereal in addition to the formula.

if she is having worse episodes after a meal you might want to ask the dr about delayed gastric emptying and ways that you can work with it. many reflux babies have immature digestive systems and DGE could be a contributing factor to reflux. also she may not be ready for solid foods just yet, until you can figure out a good formula and get her settled on a good med the solids may have to wait. again talk to your dr about what is best for you and your daughter but i do agree, a food journal is a good place to start and asking about hypallergenic (nutramigen/alimentum) or elemental (neocate/elecare) formulas is a good place to start. i hope things get better soon, welcome!
May 09, 2010
kiwimum
Thanks guys for the advice. I contacted the doctor and have increased Sofia's medication (she is now on 10mg of Omeprazole twice daily). Although it's only been a couple of days I've already noticed that she doesn't arch her back as much during a feed - but she still spills a lot. When she was first diagnosed she actually had silent reflux and has only started spilling over the last couple of months. I had wondered if she might have an intolerance to dairy because of the reaction to the formulas I gave her. She also may have an intolerance to apples - I've noticed that often when I give her apples she gets red marks around her eyes which disappear within 10 mins after she stops eating. I thought it might have been apricots or peaches since she was fine the first 4 or 5 times I gave her apples. Sofia has actually been on solids since she was 3 months old as I was advised by the doctor to give her her medicine with a small amount of pureed pear (I didn't start her properly on solids until 5 months) so she is used to having solids. Unfortunately I think that because she had pear for so long it might have given her a sweet tooth so now she only likes fruit & baby rice and spits out all her vegies. I finally found some vegetables she will eat the other day - pumpkin & sweetcorn but don't want to give her this all the time. I might wait a while then try another reflux formula we have here in NZ - apparently it doesn't thicken until after ingested and if that doesn't work then I might try a Goat's milk or Soy milk one. Thanks again.
May 09, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You can also try soy formula and thicken it yourself. One of the brand name products used here is called Thicken it or Simply Thick. You can google it for more information to help you find the equivilant there. So glad to here that she is not arching and screaming anymore. That goes a long way in making her more willing to eat.
May 27, 2010
brigitte
Brigitte, mother of two girls diagnosed with reflux from birth. Ashley now 6 yrs was a silent refluxer and would choke many times a day. Outgrew at age 2. Recently started complaining about reflux. Yougest daughter has milk protein allergy. Still on Neocate and Prevacid at 2.5 years. Aspirates occasionaly.
Keep Breastfeeding
The best advice I can give you is to keep breastfeeding. I stopped breastfeeding when my daughter was 4 months (because I couldn't stand not having dairy in my diet and was also not producing enough milk) and it went downhill from there. She was sleeping through the night since birth, however once I stopped breastfeeding, she stopped sleeping. For 7 months, she was on a milk free formula but still wouldn't sleep at all! It is only when we finally gave up and put her on Neocate that she got better. Breastfeeding is still the best thing for reflux and milk protein allergy. It is much easier to diggest. However, I do agree that it can be a challenge for the mom to remove all dairies from diet.
May 27, 2010
kiwimum
Thanks again for the advice. My daughter is now 7 months and things don't seem to have improved much. We have an appointment on Monday to see a paediatrician and hopefully they'll do some allergy test because I'm convinced that Sofia has an intolerance to dairy products (it may have just been a coincidence with the apples). I know that breast is best but I didn't want to keep breast feeding past about 9 months anyway. Sofia wakes in the night hungry already so I might as well try formula. I still want to keep breast feeding for a little while but don't think I've got enough milk for her now either so want to be able to top up with formula if I can find one that suits her. I'll talk to the doctor on Monday and see what they suggest. Thanks again for all your advice. I'm not nearly as stressed out as I was.
Check with your
doctor first!