Posted By Posting
Apr 26, 2010
jean9
advice to qualify for feeeding therapy
anyone have advice on how to get your child feeding therapy services at home through the school district/CPSE? Our insurance is pretty crummy.

my nearly 3yr old FTT dd (only 21.5 lbs) needs some GOOD feeding therapy and I'm guessing she won't qualify because the school will say her feeding prob. is medical and not educational. i'm trying to play up a sensory prob., but again... if it doesn't impact her academics... we're blessed she seems to have no other major issues outside of GERD (that we know of so far!)...

Apr 26, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you contacted Early Access?
Apr 26, 2010
jean9
early access?
no, what is it? National? we're in western New York State.
Apr 26, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Yes. It is every state. Yours might be called something slightly different. They have free services such as occupational therapy, speach, feeding, nutrition, etc. It typically ends at the age of 3 but then you can bump up to the next level. Ours is www.earlyaccessiowa.org. This looks to be the New York one http://www.health.state.ny.us/community/infants_children/early_intervention/ Give them a call. I bet they can help.
Apr 26, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I am fairly certain that nationwide the age for early intervention services to provide services IN the home is age three. Jedd aged out at 3 years old.

When the child turns three they do an in home eval to decide if the child qualifies/has a far enough delay to enter public preschool for the delay. Jedd's was not far enough, so we were turned down.

You can call the local school for your district, the one she would enter IF she was going into K5 and they should be able to direct you where to get help from in your area. In the very least, they should be able to get you an eval to see is she qualifies for extended early intervention.

As far as getting into a Private feeding clinic, it can be horrible hard to get an ins co to pay for it. Most of them say it's a behavioral program and deny the program all together. Your best bet would be to contact a multi disciplinary program like KKI in Baltimore Maryland and they can help you in getting approval from the ins co.

Apr 26, 2010
jean9
tried EI
our 'early access' is "early intervention" which we tried and she didn't qualify back then--even with a severe sensory proc. delay--but only as it related to feeding and no other area!

so now we're transitioning to CPSE (preschool sp. ed. through the school) since she's almost 3, and she probably won't qualify with them either. Basically she's probably just not severe enough... but if we wait long enough and let her poor nutrition cause cognitive delays that would impact her learning THEN she'd qualify! So she has to get worse to get help! Lovely system...

so again---any ideas on how to get her to get service???

Apr 27, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I know she's past 3 and can't get it now, but I think they may have fed you a line.....sorry

Jedd received EI and his only delay for the longest time after getting his speech up to par was his feeding issue. He received OT for adaptive/life skills in the area of oral motor control issues. It can be done and it is an area that early intervention provides for......

I'd push with them that her feeding is NOT age appropriate, make her sound as bad as you can when filling out the forms/questionnaires. Remember, if she self feeds like once a week, I wouldn't even mention it at all, that is a drop in the bucket. I'd point out every single thing she is not doing and make them list it on their forms.

Good luck, it can be hard to get services through the public school system after a child turns 3. Try hard though, it will be worth it.

Check with your
doctor first!