Posted By Posting
Apr 21, 2010
nkymom
New mom - Please help
Hi everyone, my daughter is 8 weeks old and has been diagnosed with severe silent reflux confirmed by upper GI test. She was breast-feeding, but since placed on alimentum four weeks ago like my first child due to signs of several sensitivities. She was 7 lbs. 2 oz. and birth and now at 2 months only weighs 8 lbs. 12 oz. I've done everything they've told me, but now she has started snoring really loud and is extremely congested and eating less again (was up to 9lbs. 4 oz. last week and lost weight at todays checkin). She's gone to the doctor to rule out ear infections, etc and they keep telling me reflux can't cause congestion. Any advice or thoughts/support. I feel so helpless like I'm doing something wrong. She is on prevacid 2x a day which is helping much more than the zantac, but all of a sudden she is now spitting up a ton...please any advice...does it get better? I'm terrified to go back to work in four weeks. I don't see how she can go to daycare like this. Also, she has extreme gas like I've never seen....is it forumla/medicine? My first was extremely colicky so I've dealt with that, but I don't think that is the case here. Thanks all.
Apr 21, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
So sorry you are going through this with your daughter. I only have time a quick response but I will be back tonight Reflux can definately cause congestion. For an animated view of what is happening check out this website. http://www.marci-kids.com/whatisgerd.html Towards the bottom, under "What is EER", click on View an animation on how EER Affects the ear, nose and throat. then "click here to begin" then on "sinus complications". My son was always congested and constantly got ear infections. Tubes cured the infections but the congestion took time. Avoid laying her on her back at all times. That includes diaper changes. Angle everything; blocks under the bed, wedge under the changing pad etc.

Is your daughter on solutabs for prevacid or a compound? How and when are you administering it.

Apr 21, 2010
nkymom
She is on the prevacid compound 2x 1/2 tsp. day. We give it to her 30 minutes before a feeding. Thanks for the website...any other advice to get through is appreciated. I never knew this could be so bad.
Apr 21, 2010
nkymom
Sorry also meant to ask anyone on prevacid, can it cause constipation? Also, can it stop working after a few weeks? Acid seems to be the worst it's ever been this week and not sure why.
Apr 22, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Seems like a lot of the kids on this board deal with constipation. 2 theories: 1. Their GI tracks in general are immature so they have the reflux and constipation. 2. Some studies show that PPI's can block the absorbtion of magnesium, which can constipate them. Doesnt really matter why the are constipated, just that you do something about it. Constipation can make reflux much much worse and it can really depress their appetite. Different doctors have different opinions on how to treat constipation in ones that young so talk to your ped.

Out of curiosity, how long have you had your compounded prevacid? Compounded PPIs tend to be very unstable especially if they add flavoring to it. There is an article on the www.marci-kids.com site that tells you about that. The compound tends to loose its effectiveness after about 10 days. I compound my own and I only make 8 days worth at a time. You may want to try the solutabs instead of getting it compounded. You just put the tablet in a Motrin syringe, draw back a little water, shake it up till it disolves a little and squirt it in.

One more thing... If she is snoring that bad I would also consult with an ENT.

You can also consider probiotics. The brand I like for infants is www.biogaia.com. 5 drops a day is all you need.

I know you are terrified to go back to work with her this way. I was too. But you have 4 more weeks to try to work things out with her. Plus you will have someone helping you out with this and you will get a mental break for a few hours a day.

Apr 23, 2010
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
sounds a teeny bit like my bff's little guy.....he has laryngomalacia....silent reflux, congested, snoring....is she a noisy breather in general?? Is she more congested after she eats?? It's also important to remember what prevacid does...it shuts of the stomach pump....thus slowing everything down, which is why you might be seeing the spit up now AND the constipation...it's a double-edged sword with the prevacid. One thing that I think is really important is that babies are not supposed to lose weight, so drive your doc crazy until you get her comfortable and gaining.....sounds like your doc (among many others, trust me) is misinformed about reflux. I think an ENT consult is a great idea, and definitely get GI on board if she loses any more weight. (((HUGS)))
Apr 23, 2010
beth anderson
PAGER Director and original GERD Nerd
Mother of Chris (1988) and Katie (1990)
Author of The Reflux Book
Member of PAGER since 1992
Donor since 1992
It is important to figure out whether the snoring sound is coming from the chest, the neck or the nose. Our doctor used a stethoscope and listened to each one for a long time. My daughter's snoring sounds were "stridor" which is a noisey inhale that sounds like Darth Vader or a pug dog. They think the cause was airway swelling caused by reflux.
Apr 24, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Just wanted to add that babies can aspirate from sever reflux, so congestion ( chest congestion esp) should be dealt with ASAP. i don't want to stress you out more, but we've all been there and have seen our little ones go thru some pretty harsh stuff. I hope you get some answers.HUGS
Apr 27, 2010
nkymom
Thanks to everyone for your advice, I was told her lungs are fine and so the congestion they told me to just use saline drops. We got 2 month old vaccines yesterday and reflux is a mess today at it's all time worse...anyone else have this happen? Did anyones child outgrow this? I'm worried about starting foods in two months....
Apr 28, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
((HUGS)) You aren't doing anything wrong!!! I remember feeling that way too. It is so hard to watch your little one suffer and not be able to make it go away...

I'm not sure why you have been told that reflux can't cause congestion -- in addition to congestion, it can cause ear infections/fluid in the ears, inflammation throughout the digestive and respiratory system, sleep apnea, swallowing issues, it can weaken the immune system, and lead to asthma -- just a few of the things I was never told and have learned the hard way over the past three years. And yes, my son always had flare ups after vaccines -- we ended up splitting them up so his body wasn't as overwhelmed and it seemed to help.

Why are you planning to begin solids in two months? Most pediatricians in the US don't recommend solids until 6 months of age. Personally, I would not start a baby with reflux before that time, as solids rarely seem to be the magic cure, and can actually bring up additional issues to deal with.

I'm sorry you're facing the added stress of returning to work in a few weeks -- that's very difficult when your worried about your little one... ((HUGS))

Check with your
doctor first!