Posted By Posting
Apr 15, 2010
ljoy_22
so confused about 23 month old
Hi, my daughter has had trouble with silent reflux (I think) since she was born. Doctors labeled it as "colic" until she was 5 months old, then tried Zantac which was somewhat, but not entirely helpful. Finally at 22 months, she was referred to a GI specialist. The endoscopy, pH probe, and biopsies came back normal. We are still having some trouble, although not nearly as bad as when she was younger. I am confused and not sure if reflux is even what is going on anymore (or if that was the problem to begin with). She started out having symptoms of hours and hours of screaming, nursing constantly, arching her back, sleeping very poorly, etc. I tried eliminating different foods in my diet and didn't seem to help significantly. When she was 5 months old, we finally went to a different doctor who suggested we try Zantac. She was happier, but still napped terribly and didn't sleep great at night. She was also VERY clingy and fussy in the day. She started solid foods reluctantly, but eventually got to be a pretty good eater. I have kept track of foods she eats and can't pinpoint anything that causes a serious reaction. A few times, the doctor asked us to try going off of Zantac, so we did, always with poor results. By 18 months we were back on Zantac again and naps FINALLY improved! Eating got to be more of an issue at that age (maybe just the age though?). Textures especially are a problem! Nighttime sleep was still a problem at that point, so we went to see a specialist. By the time we finally got to see the specialist a couple of months later, my daughter was doing better than she had been in her entire life. It was frustrating to be tested at a time like that. And of course results are normal. Now a week later, we are having some problems again (teeth grinding/ naps decreasing/ more night waking/fussier in the day). Anyone have any ideas for us??!! I have a feeling that she might be outgrowing the reflux, so anyone who has tips on how to get through that time would be appreciated!! Or if it sounds like something else is going on (sleep issues??) ideas are welcome on that topic too!
Apr 15, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Some thoughts:

Any chance she is working on 2 yr molars. She is at the perfect age to be battling that. That will cause teeth grinding, texture sensitivity, old reflux to flare up, fussy days, and night waking. Take a peek in there and see if you can see anything.

Is she growing a lot right now? Your daughter might be one of those kids who's reflux ebs and flows with growth spirts. In other words when she is growing a lot she will need Zantac, Pepcid or Prevacid. It is more common than you think. If she is having bad nights and a reflux med helps that out than give it to her until things stabalize again. My 6 yr old never had reflux as a baby but out of the blue she started having issues a couple of months ago. I was blown away. Teeth grinding, choking, gagging and swallowing in her sleep, tummy aches. Her ped thought it was related to the major growth spurt she was going through. We put her on Pepcid Complete for a month which stopped the tummy aches, sore throat and gagging. At the end of the month her growing spurt ended and so did the reflux.

I would also consult with and ENT had have her adenoids and tonsils looked at really well. Gagging and textures issues can be a sign of enlarged adenoids. Most GIs dont look for that. Cant hurt to have a consult.

Apr 16, 2010
ljoy_22
Yeah, she is teething... has 2 out of 4 molars started. And maybe having a growth spurt?? Not sure on that one! Glad to hear I'm not the only one listening to the teeth grinding ;) YUK!! Did your daughter chew her nails too? Mine does until they are nearly bleeding. Anyway, I am not sure how to go about things with medications since my dr. was reluctant to prescribe anything in the first place. We have enough Zantac to last a couple weeks, but since we just got test results saying she showed no reflux, I am doubting he will prescribe anything, especially anything other than Zantac which is only somewhat helpful. Any tips on that? The doctors at our clinic haven't been very helpful... Also, when my daughter is on medication should I expect it to completely clear things up or are there usually still some signs of reflux no matter which medicine is used??
Apr 16, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
here's the thing with testing that i do NOT like. it is only a picture in time. the normal endoscopy with normal biopsies *could* mean that the Zantac was doing it's job and PREVENTING damage. and it could be preventing damage but not covering pain or discomfort. a pH probe again is only a picture in time because just like any other chronic illness, you have good days and bad days and unfortunately the pH probe day could very well have been a good day.

we dealt with teeth grinding when reflux and teething were bad (omg the horrible sound!!) we also dealt with face and ear gouging (among other more obvious symptoms.) but it was the finger biting that caught my attention, i would consider that a symptom. and if your dr does not agree with you i would consider a second opinion with another dr. I will tell you i did that with emily and never looked back. it is ALWAYS best to get another perspective and maybe a better explanation.

if you can not see another dr right away but still think reflux is an issue you could consider asking the pedi or your local pharmacist for a dosing on mylanta or maloxx. and as for your question. some symptoms persist through medication such as reflux itself. but if the dose of meds is right the ACID should be reduced and the pain should be controlled. but things like spitting up coughing gagging on reflux ect will not be controlled by any reflux med.
Apr 17, 2010
ljoy_22
What is face gouging? My daughter had a thing for a while with sticking her finger under her eyelid... She also has been experimenting with making herself vomit. Not sure if those are at all related to reflux, but they are weird either way! Thanks for the ideas. I am playing it by ear for now. We had a pretty good night last night, but bad nap again today, and cranky this afternoon.
Apr 18, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
face gouging is what our GI said emily did when she would scratch the heck our of her face and ears because she was so upset at feeling bad and just did not know how to express verbally that something was wrong.
Apr 19, 2010
jgbennett
Ginger Bennett
Mom to Stanton, 6/12/2008
dx with GERD at 7 weeks. dx with EE at 21 months
Past Life - Early Intervention Specialist and Eval Team Member
My 22 month old just had a scope last Tuesday with "normal" results. I too felt frustrated....however....have been keeping a really strict log about foods offered, etc. Our team of doctors all think my LO fits the "EE" profile perfectly. So - they encouraged me to begin transitioning to an elemental diet. Since my little guy doesn't eat any solids, we just switched his milk to elecare which removed all possible allegerns (dairy, soy, wheat, egg and nuts) from his diet about 2 weeks before this scope. So - the scope showed that his throat is finally healing - which - now I see as good news. So many factors to consider and boy am I right there with you! Is it teething, is it growing, is it that the medication is working, it is the diet? Even though it's hard and makes for LONG days- I encourage you to try and test one issue at a time so that you know what it could be and what it's not. For example - we continued all medication as always during our diet transition. Now that the diet transition is complete and our new routine and has been for 2 weeks - I've now decided to stop our reflux meds. We've been off meds now for one week and I haven't noticed a difference. This leads me and my GI to the conclusion that we've been treating my LO for severe GERD this whole time - when really it is EE so for us, the diet changes have made all the difference. If I had done or tried all of this at once - I would have never put two and two together. Now I feel like I am on a better map. Hope all of this makes sense to you!
Apr 25, 2010
ljoy_22
getting better, not sure about night eating
I successfully trained my daughter to go to sleep in her own crib on her own by gradually moving farther and farther out of her room and singing :) It makes it a little easier because I don't need to be up rocking her the whole time she is falling asleep. I'm not sure if we just need to give it more time, but she still wakes up 1-2 times almost every night. She doesn't scream anymore, but needs just a quick bit of reassurance or asks to eat. Some nights she wakes up early in the morning and just won't go back to sleep. Has anyone else dealt with that? She is not on medication at all right now, but I am watching what she eats, particularly spicy foods or tomato products. Ginger, what is an elemental diet and how would that look with a toddler? Also can you tell me more about "EE" vs. reflux? Thanks! Any other thoughts, particularly on night eating are welcome!!
May 02, 2010
jgbennett
Ginger Bennett
Mom to Stanton, 6/12/2008
dx with GERD at 7 weeks. dx with EE at 21 months
Past Life - Early Intervention Specialist and Eval Team Member
Well, our elemental diet meant putting our little one on Elecare only. We did that for 3 good weeks until we had a baseline - and no vomiting for 20 days! (our longest stretch yet). Then we have food groups to introduce. So- last week we tried a scrambled egg and he's been puking his guts out ever since and aspirated (of course) so he's been really really sick this week. So - now we know - egg is off the list of foods he can eat. I've started a blog and there is a link for a good website about ee. My blog is http://ourcarpetstains.blogspot.com
Check with your
doctor first!