Posted By Posting
Apr 02, 2010
kellermom
Struggling 6 month old with reflux
I am hoping I will be able to find some reassurance. My 6 month old was born early (31 wks) and was a twin. During her stay in the NICU, she NEVER had problems with reflux or even feeding apneas. She was tube fed until she could learn to breast feed or feed through a bottle. She was also on breastmilk (fortf'd w/ Enfasure) until mid Dec when our problems began. She caught on very quickly. Since our reflux has started, she has developed bottle aversions. She had an initial sono done to rule out pyloric stenosis. Dr said all was fine, mild reflux and no bowel twists. We have tried ALL different formulas: Premium Lipil, Gentlease, ProSobee, GoodStart, Allimentum and now on Elecare. Pedi GI thinks she has MSPI as well as reflux. She takes Nexium (10 mg 2x a day) and Bethanachol. She has been on Elecare 2 wks now and we still cant get her to take it no matter how we mix it (w/ pear juice, pedialyte, cereal, fruity oatmeal). She continues to vomit and spit up. She doesn't even act all that hungry. She's not fussy though the day like most babies w/ reflux. Our Pedi GI has never ordered any kind of tests. I'm about to lose my marbles. My husband works out of town and I had to move in w/ my parents just so that my son can be taken care of because of her reflux problems. It's horrible and I don't know where else to turn. I'm about to have a wall eyed fit on the Pedi GI if things don't get better so before I do that, does anyone have any opinions or recommendations they'd like to share with me? What will help this poor girl? SOmething has to start working for us. Are there physical abnormalities that present themselves as reflux?
Apr 03, 2010
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i don't have much time but i just wanted to give you a couple suggestions: go wall eyed!!! seriously mama's know best and it sucks but the squeaky wheel gets the grease. GI's see patient after patient it runs together for some (it shouldn't) but sometimes they forget that this is NOT your 10millionth run around the block, and you need some answers.

so when you go to the GI give him a couple things, a diary of her day including waking peeing pooping eating, and a list of symptoms; what you think she is doing that is showing you she is in pain.

you can then ask the GI to do a Ph probe to confirm ACID reflux or a Upper Endoscopy with biopsies to check esophagus, stomach, and duodenum. an Upper GI barium swallow and small bowel follow through will (most often) tell you more about physical abnormality then a sono will.

now if it were me, i would just give her elecare formula by it's self no juice, no cereal for just a little bit longer, if she is true MSPI then it can take 2 weeks for the last of the milk and soy to leave her system. be careful with cereal many of them have milk and soy in them.

if you can ask the drs about any blood tests that they do because illness can cause reflux too. *hugs* it DOES get better
Apr 04, 2010
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I am so sorry you are having a rough time. I also have twins and an older daughter. My oldest and one of our twins have reflux (my oldest outgrew hers). ((HUGS)) to you... I know how hard this is!!

Is she loosing weight or not gaining? Are you giving the Nexium 30 minutes before a feeding? Do you believe that her pain is under control? It is hard to deal with feeding difficulties until the pain is under control. Once the pain issue has been resolved then sometimes they have to relearn that it is not going to hurt to eat. I know some kids benefit from a feeding clinic or OT to help overcome the aversions.

It is fairly common for GI's to treat reflux symptoms as reflux and if the treatment works then they *know* it's reflux. That having been said, if the treatment isn't working and you are still having issues it may be time to ask about testing. I agree with Kat that a journal of symptoms and feedings can be quite helpful to quantify what the problem is for the DR. Testing wise they generally start with one or more of these tests: an Upper GI to rule out structural issues, pH probe to measure acid levels or a EGD (scope) with biopsy.

Follow your instincts. I am a firm believer in the fact that mamas know their babies best. I know how hard all of this is... please keep us updated! ((HUGS))
Apr 05, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Ditto to both pervious posters. Only thing I have to add is that a lot of us saw things get worse at 6 months. Seems to corrilate with when the teething starting popping in one after another. Teething is a real problem for many refluxers. Seems to egasperate their symptoms and takes a toll on their alreay poor appetite. Any chance you have some of that going on?
Apr 05, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
six months was the TRUE beginning of our really bad period...ending with 2 years old...(well, not ending, but MUCH better). Elecare by itslef was IT for my kid...anything else mixed in was vomit city. He had severe reflux, DGE and a super sensetive tummy...which is not nearly so senstive now. Now I can mix in Duocal and other things for calories...but oh LORD, juice and rice cereal were the worst for him. I would try the elecare alone for at least a month with nothing else and see how she does. Good luck...and Kathryn is oh so right...bug the CRAP out of your GI. Is she on a reflux med??
Apr 05, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
oh and one last thing...allergies are mysterious buggers...they act just like reflux and you can't always identify them no matter how many tests they have...you have to trust instinct. My kid has never tested positive for soy, but it's reaction in his belly is immediate! Mama knows best!
Apr 08, 2010
bradysmom
As with the other posts, my son also started having problems at 6 months of age. He was completely fine until 6 months, at which point he started to refuse feedings. He developed bottle aversions and was FTT within a few months. He was and still is the happiest baby, never cried, never appeared to be in pain, slept great, and was never hungry even though he didn't eat! We weren't happy with our first GI, who wouldn't even discuss the possibility of reflux when we brought it up--so we switched. Our 2nd GI did an upper endoscopy with biopsies and told us the same thing that you heard "mild" reflux. He was put on Axid and nothing changed. After a long story and many more doctors, his reflux med was changed. It is now almost 2 years later and we just recently got him on the right combination of meds to control the reflux. I just want you to know that just because the first medication doesn't appear to help, your little one may need a different one. Its a lot of trial and error, unfortunately as to what meds will work the best with each child. The other thing I want to say is that my son's bottle aversions (which then turned into feeding aversions as he got older) didn't get better until the pain was managed. We had a lot of doctors tell us that it was behavioral, and I knew deep down that it wasn't. He was in pain during feedings (and associated eating/drinking with pain). Of course he was going to act out when we tried to feed him, he couldn't tell us what was wrong. Once the pain is managed, you will begin to see a difference. Talk to the GI about all your options, testing, medication changes, everything, and if you still don't feel good about it, don't hesitate to switch.
Check with your
doctor first!