Posted By Posting
Mar 20, 2010
egrmommy
HELP!! IS IT BACK??
My daughter was diagnosed with GERD at 2 weeks of age when she turned blue and was rushed to the ER. The doctor's said she had the GERD and was put on Prevacid and Zantac. Well she was weened off all med's about a 3 months ago. She is now starting to wake in the middle of the night and rock and bang against her crib. She does this between 10-2. She cries out once and then begins the rocking process. She is currently 16 months old and I am extremely concerned! She also has several bowel movements a day more than 5 on most days and has severe diaper rash on a regular basis. I am really worried. Thoughts???? She was on Alimentum as a baby.
Mar 20, 2010
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I would definitely wonder if the reflux is back... Mine were horrible sleepers with reflux and sometimes their sleeping habits were the first sign of problems. Will the DR let you try something like Maalox during the night time episodes? If it works then maybe that is a sign that the behavior was due to reflux pain?? I have heard a lot of moms say that reflux pain caused all sorts of behavioral issues with their kids. Of course, once a reflux mom always a reflux mom. What I mean is that I have caught myself blaming all sorts of things on reflux (oops) when it turned out to be something else.

How long has this been going on? Is she cutting any teeth?? Does she have any other symptoms like fever, pulling on her ears etc?? Sour breath, frequent hiccups, choking or food refusal? Does she seem fine during the day and only having problems at night? Anything new? new bedding, new meds, recent vaccinations?

My next instinct, especially with the frequent bowel movements would be to wonder if you introduced any new foods?? Food allergies can cause a lot of the same symptoms.

Those are just some ideas off the top of my head. Like I said, for better or worse, my instinct is always reflux. ;) You may want to call your pedi and explain to them what is going on and get their advice. It took us about three tries to wean our oldest off of reflux meds so don't worry if they decide this happens to be one of those times that didn't work. It doesn't mean it won't work next time. ((HUGS)) I hope you find some answers and are all sleeping better soon!!
Mar 20, 2010
egrmommy
I am really thinking it's back. Dr said he doesn't think it's the reflux. I can think of numerous occassions where after eating in her high chair she did the same bouncing rocking behavior. When she was younger this was how I could get her to calm the pain.... She has the persistant cough. She is constantly drinking. Cries after juice, does much better with milk. The ped said he throat was red, but strep came back negative. Has had a cough that has been persistant. No fever, no cutting of teeth. No vaccinations. She is rocking during the day after meals..When she eats it's like she does it as fast as she can and then the rocking begins. I almost think she is used to the pain of the reflux. My pediatrician said I didn't need to follow up the GERD it was done. I didn't like that she has an appt for a pediatric GI on April 1st. I am just really worried.....I don't want to miss something and it's hard when you know your child is in pain. NO new foods....her stools are YELLOW..some really runny and but never super firm...then it's immediate in the rash on her hiney.
Mar 20, 2010
momma bear
HELP!! IS IT BACK??
How long has she had the diarrhea? Is it liquid or is there some form to it? Do you hear any gulping, choking, or other reflux sounds? Does it look like she's spluttering or having something come up? Everything you've mentioned is lower GI, which makes me think reflux isn't the issue. If she has a blockage and is constipated so that the diarrhea is what's able to escape around the blockage, the backup could cause reflux to worsen, though. I'd say you need to get her to a pedi on Monday and/or a GI doc in the next week if this has been going on a while. They can assess if her diaper rash is only from the diarrhea or if she got a yeast infection in the rash and also what's causing her distress. Does she seem listless? Dehydrated? Have a high-pitched wail? If so, I'd take her to an after-hours clinic or ER because she needs them to address those symptoms. Or is this a pattern of behavior new? The more recent but isolated without other serious symptoms, the more I'd go to a pedi on Monday. The more long-standing the issue and the more I'd already done to address it, the more I'd take her to a GI. If I already had a GI and could get in easily, I'd just go straight there. I'd have her off all dairy, citrus, and acidic food like apple and tomato, and would also have her on pedialyte and if she's hungry bland foods like rice and bananas until I talked to the nurse at the doctor's office on Monday when I called for the appt.
Mar 20, 2010
egrmommy
The diarehha has been off and on since she came off her reflux medicine 3 months ago.......Not super runny, but yellow and not very firm. She has been on a relatively bland diet with no acidic foods for a while. She was just at the pediatrician earlier in the week. NO yeast infection, just said it was food irritation. She has the coughing, the gulping and the other reflux throaty sounds, but they are really just starting up again. The getting up and rocking and banging in her crib is the big thing. She rocks so hard she is bruising her back. I have called the pediatrician and she has a follow up on Thurs. The GI is next Thurs. The blockage idea was ruled out last week. She is not restless except at night and after she eats. She is a happy baby and was so even when her symptoms were the worst. When she eats she is doing so with vigor and enthusiasm. She is rocking after eating. Nighttime is worst.
Mar 20, 2010
momma bear
You answered some of my questions while I was typing my above response. I'd say with that dynamic going on, I'd restrict her diet (no oranges, apples, tomatoes, grapefruit, fried or greasy foods, high-fat meats, butter or margarine, mayonnaise, creamy sauces, salad dressings, dairy products, chocolate, peppermint, caffeine or carbonation, or black pepper or other strong spices), would put her on pedialyte for a few days and a bland diet for several after that, would keep a diaper cream on her constantly, and would wait for the GI. And if she seemed to become more acute, I'd go to an emergency clinic or ER. Your pedi isn't helping at all. How stressful!
Mar 20, 2010
egrmommy
Your right it is frustrating!! I appreciate your thoughts. I just think the rocking is how she is coping..she used to do this as a baby when the REFLUX was really bad with the Zantac and Prevacid. I would rather just let her GI tell me I am over reacting if that makes sense. I just know it's back. She is rocking in the crib. When I pick her up and hold her upright she drifts to sleep.....I tried the ignoring the rocking and it didn't stop it, it made it worse... So now it's a hurry up and wait.
Mar 20, 2010
egrmommy
When I say drift to sleep it's not immediate..but the rocking and upright holding of mommy and the patting of her back seem to help.....long nights..I thought we were outta this stage.
Mar 20, 2010
momma bear
That's ridiculous that your pedi ruled out reflux without providing another valid explanation. The only way it can be ruled out, especially with her symptoms, is with a ph monitoring test. If he didn't order that, he's just blowing smoke. Yes, most kids outgrow it in late infancy or early toddlerhood but if she had the meds removed and her symptoms returned, it's kinda a duh thing to put her back on the prevacid and see if it improves again or to look into what else is causing this baby to be in so much pain that she wakes from it screaming and rocking.
Mar 20, 2010
egrmommy
Yes I know!! Can't wait to see her GI again. I gave her Zantac last night at her old dose and she slept through the night.....HMMMMM???!!!! Doesn't that say most of it?!
Check with your
doctor first!