Posted By Posting
Mar 11, 2010
natheen
Still trying to fight the battle :(
Hi, Just an update regarding my daughter's condition. She is back on omperazole (2.5 ml twice a day). It is EXTREMELY difficult feeding her. She just doesn't want to drink, but is showing all signs of hunger. We are trying to dream feed her, but we can only get 1-2 oz in her during her sleep. I am still waiting for a GI specialist appointment and was informed that they are booked till May. How am I going to get my daughter to drink enough till then. My doctor ran out of suggestions and admited he doesn't know why she is not drinking. When I take her to the ER, they just discharge her saying, we just have to attempt to feed her. My daughter is 5 months old now and is smart enough to push the bottle away or cry when she see's the sight of it. We tried cereal and she spits that out. I am just so tired, stressed, worried and feel so helpless :(
Mar 11, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
((HUGS))

Can you get a referral to see a Speech Therapist that specializes in feeding aversion issues. The earlier you get to work on it, the better. But I will say, you need to treat the underlying pain from the GERD in order to get a child to eat successfully by mouth.

Mar 12, 2010
natheen
I'm sure I can get the referral but I probably have to wait few months. My daughter needs immediate help and its so frustrating that I can't take her anywhere who can help her.
Mar 12, 2010
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I can't remember if you posted before about using Carafate or not but if you haven't tried it yet that might be an option that your ped can prescribe. It coats the throat so it isn't so painful to drink. It really helped when my son wasn't wanting to eat.
Mar 12, 2010
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Have your ped call the GI - sometimes having one office calling the other can speed up the process. We also started purees at 4 months old - we skipped cereal by itself, since it was already in her bottle. Have you tried different nipple/bottle combos? Maalox/mylanta can help with breakthrough pain and may ease the throat long enough to get a few ounces in her, but only on the MD's suggestion and dosage.
Check with your
doctor first!