Posted By Posting
Mar 11, 2010
mandia
Struggling!
Hello All, I am a mommy to a 4 1/2 month old boy with reflux and possibly esophagitis. My son was diagnosed with reflux at 6 weeks and he is currently on prevacid solutabs (7.5mg 2x/day). I am really worried he is not getting enough to eat and I am struggling to get him to nurse. He has 3-4 wet (not very wet) diapers per day and his weight gain has slowed considerably. I have seen a lactation specialist and have tried nursing with him in the Moby, laying down, having him sit up etc. He won't take breastmilk out of a bottle either. He will start to nurse and with in a few seconds, he pops off and screams and cries. This happens with almost every feeding and I am exhausted. My milk supply is starting to decrease and I am trying to pump, but I can rarely find the time. Or I am afraid to pump because he might need to nurse and then I will not have enough to feed him. His feeding is so erratic I cannot predict when he will nurse next. I am on a milk protein free diet per our GI doc. My GI doc says we can start him on rice cereal but I am afraid to introduce one more thing to this situation that might irritate him. Does anyone have any suggestions? I am at my wits end. I cannot sleep and I am really worried about my LO. (hopefully this all makes sense - I am exhausted) Thanks in advance for your responses.
Mar 11, 2010
mandia
meds
I meant to ask... Has anyone ever used Carafate? My GI doc prescribed it to coat my LO's throat at bedtime. We haven't used it yet as you are supposed to take it an hour before or 2 hours after meals. I just can't get the timing right for this with his erratic eating schedule. Also I read that it can cause renal failure so I am afraid to give it to him. The prevacid makes my LO projectile vomit if he eats to soon after taking it. We always wait at least 30 mins, but sometimes he that is not enough. He also hates taking it, it makes him gag and it seems to make his stomach upset. Anyone else have this experience?
Mar 11, 2010
eesmom
Mason Matthew born at 28 weeks on 12/10/2007 with MSPI and severe reflux. Still on Neocate, strict MSPI diet, recently weaned off of Prevacid.
Evalise Adelle came along 4 weeks early on 12/2/2009 we thought we could be without this reflux stuff but no such luck. She's MSPI as well, off of breastmilk :-( and on Neocate for MSPI, has eczema (better with Neocate), and worse reflux than her brother did! Doing Buffer babies and Prevacid-
Hi, I can relate to just about all of what you are saying. Several things that you probably already know but I'll say anyway just in case. I don't have any suggestions for the timing of things (pumping/meds)--it's hard when the little one is so unpredictable (I'm there with DD too). The diet: I'd eliminate milk and soy if you're not already. I personally eliminated ALL soy even though soy oil most often is not a problem (desperate times call for desperate measures). This means no soy oil, no vegetable oil (that is most often soy), and no soy lethicin. It's hard but doable. Watch that you are getting enough or you'll be more tired and weak than you already are. You do have to take care of yourself right now too which is hard I know. Let me know if you'd like more diet ideas for you... As for the bottle feeding, have you tried other bottles, nipples and of course are you having someone else give it to him? Have you tried to cup or syringe feed at all? It is possible, I did it with DD in the hospital, I thought it was crazy but it worked for small amounts. Prevacid, I've come to think anything is possible so though I have not heard of it causing vomiting, I'm sure it's possible. I can cause stomach aches in high doses (which your son is not really on that high a dose). How are you giving it to him? I'd say he'd make a great candidate for Buffer babies. I can put you in touch with the makers so you can try it (for free too). If he's on the solutabs, there is a chance he's not tolerating the lactose in it- I'd go ahead with the Carafate, it has been widely used in all ages. Not sure to be honest what I'd do about the timing though..As for the rice cereal, in my opinion, I'd hold off. One many don't tolerate--you're doctors may tell you that's bunk, it's super tolerable. I've seen problems with it, especially when introduced too soon. The other thing to think about is that if he fills up on cereal, his intake of fluids will go down even more which you don't want. Especially with only 3 to 4 so-so wet diapers a day! I think that's all I can think of at this point, feel free to email me if you like. -Jodi jodiblazel@yahoo.com
Mar 11, 2010
eesmom
Mason Matthew born at 28 weeks on 12/10/2007 with MSPI and severe reflux. Still on Neocate, strict MSPI diet, recently weaned off of Prevacid.
Evalise Adelle came along 4 weeks early on 12/2/2009 we thought we could be without this reflux stuff but no such luck. She's MSPI as well, off of breastmilk :-( and on Neocate for MSPI, has eczema (better with Neocate), and worse reflux than her brother did! Doing Buffer babies and Prevacid-
I forgot to add that it takes an unfortunately long time to get the milk/soy proteins out of your system, 2-4 weeks then another 2 to 4 weeks to get them out of DS's system. Don't give up on it too soon or you won't know (I'm not sure how long you've been doing it...).
Mar 14, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Hi. My son just turned 4. He has dairy, egg, soy, peanut allergies of the usual kind, plus eosinophilic esophagitis (which is more of a delayed allergic response to food proteins. The only thing that helped my little guy (took us 17 mths. of hell to figure out) was putting him on Neocate formula. Finally, he was able to sleep well, gain weight, and be happy.
Mar 14, 2010
mandia
Thanks so much for your responses. I have been milk protein free for 8 weeks now. I decided to eliminate soy so I would love some suggestions on diet. I was already feeling very limited with the milk elimination and it seems anything that does not have milk, has soy it in :( Friday the GI doc said she thinks my LO's esphagitis might be due to yeast over growing in his throat due to the lack of acid from the prevacid. She had me start him on nystatin Friday. He seems a little better. He is nursing better but we are still struggling with it. The doc also suggested we try Nutramigin or Alimentum formula. I have not wanted to give up on breastfeeding just yet, so I am hestitant to try these. I did look at them at the store and I noticed they actually have milk/soy listed in the ingredients?? I am confused how these will help if he is allergic. I also looked for the Neocate but couldn't find it. Do you know what stores carry it? On the bottles - I have tried several brands and nipples. My husband has tried giving him a bottle in the evening when he is home from work, but I am alone during the day. We don't really have any support other than each other in this. The prevacid we were mixing it in a 5ml of water and giving it to him by syringe but it would all stick in the inside of the syringe. So we have been giving him little pieces of the solutab directly into the mouth and watching as they melt. Anyway i am still really struggling with this... it is so exhausting. :(
Mar 15, 2010
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
While Nutramagen helped my son a little, it still didn't work enough with his milk/soy allergy. Neocate can be purchased directly from their website. There is also a lot of useful info. about allergies on their site. BTW, Prevacid solutabs contain dairy. We had to switch to the capsles - we empty the little white beads into his applesauce in the morning. However, I'm not sure what you would do for an infant. El
Check with your
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