Posted By Posting
Mar 10, 2010
jean9
how know MSPI? neocate vs elecare? bufferbabies/caracream?
How do you know if your child has MSPI? My dd has no major symptoms (stool blood, rash, etc), but wonder is she can still be MSPI. She's 34 mos, 22 lbs, GERD, FTT. She limits her volume-hence FTT. Vomits in cycles. Can go months without and then have weeks with daily vomit. Never been off corn, soy, dairy. 1st-breastfed, then neutramegin, now vanilla pediasure. Is neocate better than elecare Jr? Is the soy oil in elecare Jr. significant? Thinking she'll accept TASTE of vanilla elcare more than neocate flavors. Her dietician thinks assess by trying neocate for 30 days (with nothing else but rice, potatoes, beef/pork, fruits/veggies) and then challenge with foods. Is that how you do this? Also, she's on 15 mg prevacid solutab dissolved in water in AM. What's buffer babies/caracream? should we try it? other meds?
Mar 10, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Sorry you are going thru this. First, I want to say that 15mg of prevacid seems a very low dose. If she still has vomitting episodes, then a med change may be the way to go. My daughter would reflux in cycles that followed absolutely NO pattern. It can be really difficult to do food trials now. If you change formulas, and go with the foods you listed above, how do you know if she's reacting to the formulas or ne of the foods? I know that most refluxers are Soy and dairy intolerant and most do better when you remove these from the diet. Results could take anywhere from 3 days to 2 weeks. Also, Has she been tested for delayed gastric emptying? That could really cause lots of the issues you've mentioned.

I would definately try elecare or neocate and get her off dairy and soy. Then see if that makes a difference. I would also see you MD about a med change. Poor baby, it can be so hard, esp for you mom!! My DD is 36 months, just hit 30lbs and had many many intolerances. It took a lot of work to get her to eat enough etc... and we just got her on dairy recently. Hope this helps....but hang in there, it will get better.

Mar 11, 2010
the reflux mom
Jan Gambino
The Reflux Mom
Mum to Rebecca (GERD since infancy, post fundo, post g tube, post FTT) and Jenna (GERD and POTS). Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux and Lead Expert on The HealthCentral Network, AcidReflux Connection at www.healthcental.com
GI doctor involved?
Hello Jean, I wonder if your daughter is under the care of a pediatric gastroenterologist? Has her GERD been confirmed by endoscopy or pH probe? While her symptoms may be due to GERD, it is possible to have GERD and food allergies and intolerances, etc. The symptoms may be due to another condition altogether-eosinophilic esophagitis, food allergies, celiac disease and cyclic vomiting syndrome are a few that come to mind. If food allergies are suspected, a consultation with a pediatric food allergist can be helpful. Many doctors diagnose food allergies via blood or skin tests. However, a well controlled elimination diet is also a reliable way to test. An elimination diet is hard work and a child who is already FTT and careful about what she eats may struggle to comply with the very restrictive diet. When my daughter was FTT, she was already on an "elimination diet" because she avoided so many foods/food groups! I know she would have had a fit about trying a special formula. I couldn't even get her to take Pediasure by mouth. Good for you getting your daughter to take Pediasure! Jan Gambino The Reflux Mom www.refluxmom.com
Mar 11, 2010
jean9
thanks b-girl! DGE came bak "normal" which we questions...but Reglan, EES did nothing anyway. Someone told me there's some kind of test you can do on a child's stool. She was given a small cardboard card(s) to put stool samples on to check for MSPI. Couldn't remember the name... any ideas?
Mar 11, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
That sounds like a test for occult blood in the stool. Some babies who are MSPI have blood in their stool when they consume dairy, but lots don't as well. The only real reliable way to know is dairy and soy elimination. But since your dd is FTT, then you need a good formula for nutrition and calories. Does your dd have a GI?
Mar 11, 2010
eesmom
Mason Matthew born at 28 weeks on 12/10/2007 with MSPI and severe reflux. Still on Neocate, strict MSPI diet, recently weaned off of Prevacid.
Evalise Adelle came along 4 weeks early on 12/2/2009 we thought we could be without this reflux stuff but no such luck. She's MSPI as well, off of breastmilk :-( and on Neocate for MSPI, has eczema (better with Neocate), and worse reflux than her brother did! Doing Buffer babies and Prevacid-
Hi Jean--MSPI is hard to diagnose. My DS or DD ever had blood in their stool (the card test you are referring to was negative) but both did very well once dairy and soy were eliminated on they were on Neocate. This was at a very young age for them, just a few months so taste was not an issue. Neocate tastes/smells awful. Once my son became aware of that at about a year we switched to Neocate 1+ with flavoring the company offers which he does well with to this day (he's two and a half and still on it). Buffer babies allows you to give prevacid/prilosec/or Nexium without the lactose in the solutabs (which can be a problem) and without having to worry about them chewing it (not an issue for you anyways since you dissolve it) or waiting the 30 min before eating. It has worked wonders for many people. My DS has been on it for about a month, it has not worked miracles but has helped some and I don't have to hold her off to eat which is the best part (she's just 3 months). I would also rec. formal allergy testing and her seeing a pediatric GI to rule out other conditions that other members have already suggested. By the way, Neocate also has soy in it if you read the label carefully, it's just not the protein or in quantities enough to cause problems, taste at her age will be the biggest problem for you I suspect... Wish you luck!
Mar 11, 2010
beth anderson
PAGER Director and original GERD Nerd
Mother of Chris (1988) and Katie (1990)
Author of The Reflux Book
Member of PAGER since 1992
Donor since 1992
Taste of the special formulas
I have personally tried Pediasure and Neocate flavors. Pediasure was a fakey milk taste. Not very good. But the Neocate tastes like juice and is fine. I wanted to try vanilla Elecate but they didn't have any available at the last conference.
Mar 11, 2010
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
we are still on vanilla elecare and Z likes it...it's like a vanilla shake. We actually mix it with pediasure for extra calories...he has a soy problem, but lactose seems ok now. (he's 30 mo)...Infant Elecare was nassssstttttyyyyy. You can buy it on eBay. I also mix a couple scoops of Duocal in...we need calories badly!
Mar 15, 2010
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I'm sorry you are still struggling with your daughter. :( I remember you from last year, because our daughters are both very tiny. Have they done a complete FTT workup on her? Has she been tested for Cystic Fibrosis? Have they checked her stool for parasites? Have they checked her stool for lactose intolerance? for fat malabsorption?...I'm sure they've done this by now, but it wouldn't hurt to have it checked again, if it's been a while. Have they tested her for Celiac Disease? When they scoped her, had she been exposed to gluten? What do her nutritional values look like?

I chased the allergy/intolerance dragon for a loooong time, trying to figure out why my kid was growing soooooo slowly, and we never found an answer....she's thriving, so we are leaving her be for 6 months, to see what she does with her height. How tall is your daughter? Has she been growing in height consistently? How much bigger is her twin? If I were you, I would ask for a consult with a pediatric endocrinolgist. They specialize in growth disorders that extend beyond nutritional causes. I mean, reading your other post, your daughter has a pretty good variety for a toddler (even though her intake is low)....a normal toddler does not need a lot to grow.....my friends kids barely eat, and they are huge. The fact that she is vomiting warrants a deeper look, in my opinion, beyond her diet. Are her doctors saying it's an intake/volume problem alone? Have they ever put her inpatient for a calorie count on her? Has she had any feeding therapy? Gosh, I hope they figure this out.....I'm not comfortable with a 24lb 3 year old....I'd be beside myself with a 22lb one (((HUGS))) I can understand how you are feeling.

Check with your
doctor first!