Posted By Posting
Feb 28, 2010
em sanderson
New to forum...Need help
I am a first time mom at age 37. My son Forrest was diagnosed with Acid Reflux 2 weeks ago and he is 8 weeks old. These first 8 weeks have been pretty rough not knowing why he has been so miserable but with diagnosis comes hope. Especially when I was thinking I just had a difficult baby or I was a horrible mom. Forrest is sleeping right now so I may have just enough time to post a few questions and take a shower before he is once again awake as he does not sleep well. I am sure all of you can relate. My first questions are about equipment...Does anyone have the Tucker sling? Is it worth the $70+? Also for those who are breastfeeding do you have the feeding wedge and does it work well? How many of you have a wedge for there change pad? All these items are covered by my insurance as DME but it goes toward my deductible so I will be paying for all of them since I haven't met that yet. The next questions I have are about diet...What foods that I eat effect my child's reflux? I am already missing items that cause him gas. Does anyone have a resource that truly explains the elimination diet? I know he is allergic to eggs and I am attempting to eliminate dairy to see if this is part of his issue. This is difficult because I am addicted to milk and didn't realize how much dairy is in other foods. I want to try the elimination diet so I can easily identify foods that are bothering him but can't seem to find a website or book with my limited free time to tell me what I can eat in detail. Currently I am starving just to cut out the gas foods, eggs and dairy. I need a solid resource. Lastly is about meds...The doctor put him on 2ml of Previcid and I really can't say for sure if it is working or not. My lo is very happy and smiles a lot along with all the crying, fussiness and feeding issues. How will I really know if it is working. He is a "happy spitter" and that hasn't changed. He had good yellow poop the first 2 weeks of life and since then it turned green with a bout of diarrhea probably once a week since then and that hasn't changed. Also he was an overfeeder because he was attempting to sooth his throat all the time. Now he falls asleep after 10 min on the breast and I am up to feeding him every 2 - 3 hours sometimes less because I can't rouse him. Is this the meds? Do they cause drowsiness? At night this isn't an issue because at the moment he sleeps with me on his left side and pretty much eats at will in between snoozes all night. During the day it seems like he isn't getting enough to eat at all. As I am breastfeeding I can't say how many ounces. Any help would be greatly appreciated. Sorry this post is so long. I really admire all of you as you go through this. I read a couple of posts and finally feel somewhat confident that it's not me and we can get through this. When I cried to my husband of all that I was going through before he got diagnosed he was unsympathetic. As he has no experience with taking care of a baby he assumed what was happening was normal and actually told me I was weak. It's good to know I wasn't alone in the sleeplessness and frustration. I thank all of you already simply for existing!
Feb 28, 2010
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Quickly.....

I propped up my LOs crib mattress by putting a pillow underneath it. To keep her from sliding down I used a beach towel rolled up lengthwise with each end through the slats and the middle forming a U which is where I put her little butt with her legs over the towel. Hard to describe but I think you get the idea. I breast fed but never used a wedge, just a Boppy with her lower half under it and upper half over it so most of her body was on my lap/belly. The changing pad we used a small pillow underneath and just did our best.

Dr. Sears has info on a solid elimination diet - check out his website. There are lots of allergy websites out there. Google MSPI diet, infant, breastfeeding and you'll come up with lots of stuff.

Based on the poopy and the short time on the breast I would also check out whether it may be a foremilk/hindmilk imbalance. Lots of info on that through La Leche League that may be of help.

you're not crazy. It is HARD. Listen to your momma gut, first time mom or not you DO know your child. One more thing, compounded prevacid is not terribly stable and tends to lose effectiveness after 10-14 days. Have you considered the Solutab? Yes, it does have lactose which could be a problem if your LO is sensitive. Lactose is the sugar and is not the protein that triggers the reaction in MPI kids.

I did the elimination diet for 30 days, got sick and my milk ended up drying up. My girl did well once we found the right formula. I cried for months after giving up on BFing but you gotta do what you gotta do. I'm 7 months preggo again and hoping to BF this one. Good luck Momma!
Mar 01, 2010
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
((HUGS)) to you mama -- you are not crazy or weak. Reflux can create havoc in the lives of new mamas, and whole families. Hang in there, hang out here, and here are a few resources for you:

www.askdrsears.com

www.drjaygordon.com

www.kellymom.com

and finally, www.llli.org -- particularly the mother to mother forums.

As time allows, there is some excellent information in the Reading Room on this site. I became a first time mom at 38, and while there is much about being an older mom that I am glad for, I have to admit, my energy level is not what it was when I was younger, and the effects of sleep deprivation and the stress of my son's issues have really worn me out. I strongly encourage you to seek out assistance from anyone who is willing -- friends, family, whatever -- so that you are able to take the time to take care of yourself, too. Your son's challenges may be short lived, or they may go on a long time -- with reflux one never knows (in spite of what many will tell you about it clearing up at 6 months). It is wise to work toward a balance of both of your needs as early on as is practicable -- not always easy, but well worth the effort. Hang in there, and Congratulations on your new little one!

Mar 01, 2010
saustin
Sweetems' Mommie
I too am new to this forum. Welcome. But I can tell you that you completely described my first 12 weeks with my little man. The only difference is I thought spitting was normal and he would scream for hours on end.. Figured it just came with being a mom. But I can tell you that after my son was diagnosed with reflux, I got the wedge, and sling, and tried everything under the sun to keep his head upright. The wedge and sling worked for awhile, but he wasn't a fan of being strapped down. And when he was 4-5 months old he started to figure out how to wriggle around and loosen the hook and loop. I eventually would just put him in a BabyBjorn and walk and sit around the house with him in it. I would even nurse standing up with him dangling down. It was a funny sight to see a 6 foot tall sleep deprived mother nursing this little bundle that was dangling down near her belly. But it worked to keep the milk in. I also used the boppy and wedged his head above and body below as Sara described. I am now where Liam and I sleep on an airbed with it slightly deflated to I can sleep on my side holding him upright. It works he feeds, food stays down, and life is better as we know it. I can only tell you what my doctor told me. Keep breastfeeding as long as you can, as it is the easiest and quickest to digest on their tummies. Good luck.
Mar 01, 2010
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Yeah, good thought- I forgot to mention babywearing! Saved my sanity, truly it did. Try a sleepy wrap it's super easy to wrap and offers more support for the baby than a bjorn. Good call!
Mar 08, 2010
em sanderson
Thank you for your help ladies. This forum has been so awesome. We are doing much better and my mom gave me an old sleeping wedge which we have cut up for the change table and feeding. The bed I haven't got worked out yet but that is because I have gotten used to him being in bed with me. I have completely cut out dairy for 5 days now and the poop is starting to turn yellowish again so it may be a dairy allergy. I am so in love with this site! He is resting on my chest now so I am off to do some reading. The other websites suggested were also very valuable. I am actually feeling empowered! Thanks again!
Check with your
doctor first!