Posted By Posting
Feb 11, 2010
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Brenda & Jazzy
Hi Brenda

Hopefully you will see this over the next few days. I know that you are probably inpatient with Jazz undergoing some tests. Just wanted you to know that I am thinking of you both. Hopefully you can give us a quick update on how things went for her when you are back home and settled. (((HUGS)))

Feb 14, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Just back on friday, thanks for thinking of us!!

Jazz is a trooper! She was so traumatised from the event, but she tried to put on her brave face as much as she could ( broke my heart!) And yes, we are waiting for results from various blood tests and her scope biopsies. We also have to see Neuro, but only as an outpatient. At least they didn't see anything on initial view with the scope, but we need to know if her EC is better, same or worse..........how is Rory doing? And you too?

Feb 15, 2010
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Poor little baby :( I was thinking of you guys all week. I hope Jazzy had a good birthday! Glad to hear you are back home. I hope you don't have to wait too long for the results. Why is she seeing Neuro? I hope her EC is better (((HUGS))). Rory and I are going great, thanks for asking. Rory finally hit 24lbs!!!
Feb 18, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
YEAH RORY!!! Good for you guys! Nice to see that she is gaining, even if only a tiny bit. Jazz is seeing Neuro for headaches, and she had a febrile seizure last week. If you sneezed you would have mised it, but my GI wants to have every consult available to not miss anything. She is also being tested for Addisons disease, but hopefully EC will be her only diagnoses.

I remembered a while back you said that Rory was intolerant to milk products? What do you feed her instead?

Feb 19, 2010
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Nope, not intolerant to milk....we did a dairy free trial a while back to find out the cause of her bloating, and why she puked non-stop for the first year of her life.....but all tests were negative....she pretty much eats everything. Are you looking for resources on dairy-free?? I will have to google Addison's....I hope everything comes back fine (((HUGS))) You must have been so scared when she seized :(
Feb 22, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Actually, if you would have sneezed you would have missed her seizure. It was just a bit of twitches and her arms were shaking...very weird. Jazz eats and drinks everything too, just preparing myself incase..KWIM? I'm sure all will come back neg. too!! Talk to you soon!!!! XOXO
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doctor first!