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Feb 05, 2010
risa
Prevacid - oral aversion??
My 10 week old has been on Prevacid solutabs and also Pepcid for the past 6 weeks (approx). His reflux is better, but still not great. Now he has started just wanting 2 ounces at a time of formula - Elecare for MSPI. After the 2 ounces he flat out fights and refuses to take more. We started mixing some Vanilla Elecare in with the regular (wretched tasting stuff) to make it taste better (per his gastro). He seems to be taking it slightly better but it is still a struggle. I don't know if it is the taste, or if he is in pain - he isn't screaming and arching but he does get wiggly and will stiffen a bit and turn away from the bottle. So frustrating!!! I spoke with his gastro and he said he has seen some kids develop some oral aversions while on Prevacid and he wants me to stop the Prevacid for a couple days to see what happens (um yea.. that sounds like a great plan). He is on Pepcid still and he said if we need to we can bump the Pepcid to 2xday. Anyhow... I'm just wondering if anyone else had advice on this or has experienced anything similar?? I'm also a bit leary of the solutabs due to his MSPI especially since he couldn't even tolerate Alimentum. His gastro won't prescribe Zegerid due to lack of studies in kids and the possible link to stomach polyps. I think the Zegerid would probably be great, but don't have a choice currently. I have contacted Marci Kids and am waiting to hear back from them regarding Buffer Babies. Sorry this was so long... just wanted to give all the background info I could!
Feb 05, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
We have been seen by 3 different clinics in two different states for severe feeding aversion and complete tube dependency and NONE of them suggested taking Jedd OFF of his meds to get him to eat......I'm just saying....LOL

I would contact Early Intervention in your state and ask them to come out and do an evaluation. Let them know you think an oral aversion has developed possibly so they can send out an O.T. or S.T. who is used to dealing with orally averse kids.

Now, that said, we had some suspicion that Jedd's need for a high dose of a PPI (prilosec in his case) caused his belly to empty slower than normal. The theory is that using a high dose cause less acid to be present in the stomach. In turn, the body cannot digest food fast enough to move it through. This could be causing your issues.

We had extensive testing done on Jedd's GI tract at a mjor children's hospital in another state, while there he had to be off meds for testing. During that time, he did fantastic and puke pretty much stopped all together. The night we were discharged we were to start all meds back up.

He was taking his Prilosec and a motility med. Testing showed he still needed both. Anyways, the puking stated that night when we ran his pump for his tube feed.

If you google PPIs and delayed gastric emptying you can find medical articles about this. But, in our case, we really needed that high dose, it was a catch 22.

We eventually found a balance between the two meds and all was well. Over time we were able to move down in reflux med class to an H2Blocker and we were also able to drop the motility med all together.

It took a LONG time to do that though.

Feb 05, 2010
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Ditto to everything that Jessica has listed. Also, you might be on to something with the solutabs. Seems like the kids that struggle a lot with MSPI dont do well with the solutabs. Ryan was a complete mess until I got him on Prevacid Capsules mixed with Caracream (older version of Buffer Babies) and he was not MSPI. Ryan's feedings sounded just like what you are going through. It was aweful. I would bet that he is still in pain. What you may want to try it to take a Prevacid Capsule (available OTC) open it up and mix it with a little apple juice. It doesnt take much. You can use a syringe with a opening big enough to let the medicine balls through. You will know then if it is the Solutab/MSPI problem.
Feb 05, 2010
risa
Thanks for the replies :) I actually got a call from Dr. Phillips from Marci-Kids site right after I posted. He did say that not wanting to eat can be a Prevacid effect. I have requested a Buffer Babies kit from David and will be trying that with Prilosec. Hopefully the Pepcid he is taking will take the edge off any acid issues meanwhile. He also mentioned Tums quick packs and/or Mylanta Cherry Supreme to help. If anyone has more suggestions - please feel free to add :)
Feb 05, 2010
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
As far as doses for Mylanta, we have found that a good pharmacist can give you the proper dose for your child. Call them and tell them the OTC med and give them a current weight. From there they can tell you how much to give and how often. HTH
Feb 05, 2010
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
My GI recommended adding some Splenda to the Elecare as it is nasty stuff. Eek to the apple juice suggestion- down here they use apple juice during pH probes to judge reflux reaction.
Feb 08, 2010
mommy2k
My son was on the solutabs for a little while and everytime we tried them he would do worse. He had a mpi as well. He just couldn't tolerate them. We're currently on the prevacid capsules mixed into the bufferbabies and love it. Kody has dge and it was hard to get his stomach empty enough to make the ppi effective. No problem with the buffer babies. I've never had an oral aversion with him taking the prevacid either. He's usually a good eater until his reflux flares. He's been through a lot of throat infections and illnesses which the ped believes is because of his reflux. Kody would squirm a lot eating as well when he was younger. I believe to this day eventhough he was on prilosec and the gastro said that it killed 90% of the acid it wasn't working for Kody. He was still in pain. I hope the buffer babies works as well as it has for us. We went off of it a few days last week due to some problems with insurance and getting the new prescription of prevacid filled and he developed a double ear infection. I hope that your little one starts to get some relief soon. MSPI and reflux are hard to deal with. ((HUGS))
Feb 08, 2010
risa
Update
This is day four off of the solutabs and he is eating like a champ. He had a bad reflux episode Saturday night (where it comes out the nose and he gets choked etc.) and definitely needs to be on a PPI, hopefully we'll get buffer babies this week. Meanwhile I've been giving him Pepcid every night and Tums Quick Paks in his bottles to help with acid.
Check with your
doctor first!