Posted By Posting
Feb 01, 2010
Hi everyone! I haven't posted in a while. I'll tell you a little of my story for those the forgot me or don't know me. Kody is now 14 months and has had reflux since 5 weeks old. His is silent and he also has dge. It's been a very hard journey and still has a lot of moments. Kody is now on the bufferbabies mixed with prevacid. It's been a God send for us however currrently we ran out and are awaiting the shipment that should be coming very very soon. He has never never been a good sleeper. He used to be up every 45 mins to an hour when he was a few months old. Now he still wakes up every 2 to 3 hours apart. When he teeths it's even worse.

I guess I'm all over the place on this post. I just needed some reassurance. We're attempting sleep training but am wondering if it's not good to do that. I'm exhausted. He used to sleep in our bed and tosses, turns and cries throughout the night. So now he's in his room but we're in their all night. Either way we're not getting any sleep. When did anyone sleep train their refluxers? I get tired of the just let him cry it out when I think he's still in pain. I am getting so frustrated because no one understands what we're going through. I still believe it's his reflux but endearing friends and families always make me second guess myself.

Any words of encouragement would be much welcomed? And also any advice on how to deal with the outsiders that don't understand the reflux monster. I don't know what to do about sleep training right now. We're currently using the no cry sleep solution book but it's frustrating too. Sorry so long. I just came to the place I know is always a safe haven for me to unload on and that understands what we're going through.

Feb 01, 2010
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Wow this got long sorry!
I just wanted to say that I sympathize with your situation and it is hard to talk with this topic with people who do not have a refluxer. The other day one of my good friends was complaining because her 2 year old hadn't slept through the night for 2 days because he had an ear infection and she said she was ready to die. I didn't say anything because I know for her that really is a hard situation but I wanted to say try getting up multiple times a night for 3 years straight which is where we are at. My sons reflux is under control and he will sleep through the night if he takes in enough calories during the day. If he does not he wakes up hungry which is more often then not. And if my son is even remotely constipated he wakes too. Your stage is the hardest because clearly a 14 month old can't tell you if he is in pain or just wants some attention at night. We did do some sleep training at that age because I really couldn't take the lack of sleep anymore and was clearly losing my mind and was becoming a very angry person. What I think is a good starting point is when he wakes up give him some Maalox/Mylanta or Tylenol and if he goes right back to sleep or sleeps for a long time after that then you can assume it is probably pain related but if he is just waking up to eat, a little tough love may be in order. And you can stop a feeding in the middle of the night by slowly decreasing the amount of formula you offer him by just giving him more and more water until you have a whole water bottle. I am sorry there is no easy answer here and every time I think I have it figured out my kid will wake up like 3 times a night and I once again feel like a zombie. Just follow your heart because you really are the only one who can decide what is right for you and your son.
Feb 01, 2010
adelines mom
we hit 20 months yesterday and the last four weeks have been some of the toughest! adeline is getting all four of her canine teeth and it has been a nightmare. reflux has been worse. sleep scarce. i thought to myself this morning that i really haven't gotten much sleep in almost two years. it wears on you big time! my husband and i tag team all night long. she is in the bed with me, she gets uncomfortable, most of the time still asleep. if i am unsuccessful being able to quiet her/reposition her, she goes into meltdown mode, starts to cry, then my husband will take her and rock or walk her and then bring her back to me. we have been giving tylenol. called the pediatrican yesterday to find out how much we can give and for how long. just don't want to shut her kidneys down. motrin makes the reflux worse. tylenol is the ONLY thing that works and gets her back to sleep. hate that i have to drug. her moving, whimpering etc., is not because she wants me to get up and play with her she hurts! i simply do not know what else to do. we see her ent on thursday and will see what he thinks about doing a sleep study. as for friends, they just DON'T get it. they mean well, but just don't have a clue as to what goes on in our homes.
Feb 02, 2010
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
((HUGS)) to you, whatever you decide. It's so true that it is totally impossible to talk to folks whose kids don't have reflux about sleep. It is crazy making. I'll just tell you a bit about the path I chose to take with Lorenzo, make of it what you will. I support whatever a mama needs to do to meet her need for sleep, because I know there have been times when I was dangerously close to slipping over the edge from the desperation for just a few hours of uninterrupted sleep.

Although by time Lorenzo was 18 months old I had started looking with great interest at any sleep training program, I could never get past the recommendation that every single on of them makes that sleep training is unlikely to work if a child is waking due to medical issues. In addition to reflux, Lorenzo has sleep apnea, severe insomnia and experiences night terrors. I just couldn't ever bring myself to feel confident that he didn't really need me each time he woke up. Over the years his waking have been extreme a lot of the time -- ever 10-40 minutes for almost a year, then 20-90 minutes for another year, and his overall sleep has always been between 1/2 and 3/4 of what is recommended for his age.

So I just kept getting up with him when he woke, doing whatever I could think of to help him get back to sleep. Honestly there where times when I felt so desperate, so frustrated and so angry that it may have been wiser for me to let him cry. I never actually lost it, but I sure felt right on the very edge plenty. But when he reached 2 years, I started to notice a subtle shift. He began eating solids for the first time, he started sleeping for 2-3 hours on a regular basis, he didn't wake at the slightest sound or disruption, I even saw him go through arousals from sleep and look around and then drop back to sleep -- a total miracle. Then, about a month ago, he slept all night -- 9 hours. I thought he was dead. I thought I was dead and had gone to heaven. He hasn't repeated it again, but things continue to improve. He usually only wakes 2-3 times per night now, and even when he is suffering from insomnia, he is now able to read and play quietly beside me in bed while I doze. I am seeing what I had imagined would eventually happen, but couldn't quite believe actually would -- he is growing up, and is better able to talk to me about what is going on with him, better able to understand that I have needs too that are not always the same as his, better able to entertain and comfort himself.

It has been a long, exhausting road he and I have traveled together. I can't say whether the decision not to do sleep training was the "right" one or not, but I can say that I am glad that I followed my gut feeling and did what I felt I needed to do. I have no regrets. It isn't the path for everyone, but I do believe that everyone can get in touch with their heart and their mama instincts and find the best path for themselves and their little one. It's a tough decision -- not one that can be understood by those whose little one's do not have special challenges -- and I wish you all the best however you choose to proceed.

Feb 02, 2010
adelines mom
lorenzomama, thank you for posting! read this to my husband this morning over breakfast. When we met with our pediatrican last week he asked us about night terrors and if I thought this might be happening with Adeline. I am just not sure. My mother started having bad dreams about 10 years ago when she stopped smoking, she wakes up laughing and sometimes crying, talking in her sleep and sometimes gets up and moves around the room. My middle sister used to sleep walk and have really odd dreams when we were growing up. I haven't had any problems during my lifetime. You stated that "in addition to reflux, Lorenzo has sleep apnea, severe insomnia and experiences night terrors." Was this diagonsed by a doctor? If so, any particular test that you had done on him? What are his night terrors like? Adeline has the blocked nostril and we were discussing with her pediatrican that maybe she is starting to panic now that she is older when she wakes up and has a hard time breathing. We are going to talk to the ENT on Thursday about doing a sleep study and see what results that might give us. We used the apnea monitor for the first eight months. Most of the time when it went off was because the belt moved or the charge was low. Don't know if she is experiencing apnea spells or not. Just wanted to pick your brain alittle.
Feb 02, 2010
Thank you so much for your comments everyone! I feel better. I know one thing for sure is that I can't let Kody cry it out. It's very hard to find alternatives to helping a reflux baby sleep better. I really think that if he was feeling better then he probably would be sleeping better. I'm taking it day by day. Last night he ended up in our bed and I don't feel guilty about it because he finally fell asleep for a little while longer after carafate and a bottle. It was awesome. Sleep does wonders for the body. It already has made me more confident to keep going. I need to stop going by what other "normal" toddlers do and comparing. That trips me up everytime. It's good to know others have gone through the same difficulties.
Feb 08, 2010
I, too sympathize with your situation. Tears are actually coming to my eyes as I type! We are right in the middle of the no sleep/is it reflux?/is it teething? saga. Max is only 8 mos. old and we just switched him from Prevacid Solutabs to the capsules a week ago and his reflux seems to be under control (puking stopped which was a big clue). We are waiting on getting some Caracream to try. He has been waking up every 1-2 hours all night since Nov. He had terrible ear infections/fluid/hearing loss, so we got tubes 3 wks ago. So ears: CHECK, reflux: CHECK......those both seem to be under control, so the only thing I can think of to explain his waking is teething. He only has 2 teeth, so we are in for a LONG year and a half if that is the case! I know he is in pain, as he moans non stop for an hour +. Not the screeching, reflux pain. Tylenol every 4 hours does nothing, teething tablets calm him, but he still wakes every time you put him in the crib, or worse, will sleep for 10 min. or so which is just enough time for me to trudge back to bed and begin to fall asleep. I find myself LONGING for the newborn days when he'd at least sleep for 3 hrs, wake & eat, then go back to sleep. I, like Lorenzo's mommy, get to points where I am so frustrated and angry that I have to leave him to cry for a few minutes, so I don't slip over the edge. Luckily, I have a supportive husband that does his fair share, as well. I've read the No Cry Sleep Solution, too, and sometimes I am successful at just patting his back to get him back to sleep but when he is truly in pain, that is out the window. It is very frustrating and exhausting and I am afraid I have a long road ahead of me! One thing I have read from all of you here, though is that it will get better, so I do have hope!
Feb 08, 2010
acony bell
Jesse, Mommy to:
Joseph William, 2/19/2007.
Diagnosed *finally* with GERD at 11 months. Stopped pevacid at 2.5 years old.
Lilybelle, 3/11/2009.
Another kid with REFLUX! Upper GI on Monday. PH Probe and Modified GI in a few weeks. Currently takes 7.5mg Prevacid once daily.
Hey Mama- We are on our second baby with reflux. I haven't slept in years. With Joseph he was not sleep trained at all until we had his reflux under better control around 15 months. I too refused to let a baby in pain cry it out. We used the No Cry Sleep Solution. And after a lot of patience it did work. I always said if it could work on Joseph it would work on anyone. I had him happily in his own bed and sleeping for longer stretches and eventually through the night.

With Lily we have a different dynamic. I have used the No Cry solution all along. She is completely sleep trained, loves her bed but bless her it just hurts. She wakes up frequently. But I know once we finally get her medication at the right dosage she will start sleeping right away.

I borrowed the book from our local library and just kept renewing it until we didn't need it anymore. I bought it off amazon once I had lily and it was only like $14 bucks. The author is Elizabeth Pantley. I think she has a version for toddlers which might work better for you since you little guy isn't a baby anymore.

Good luck! I feel your pain. Sleep deprevation is the worst part of GERD at our house. It makes me crazy.

Feb 09, 2010
Mommy to Georgia Kate 12/3/08
OH I know how you feel!
Georgia is 14 months old....and she sleeps with me. My husband works I'm by myself... and once she started solids and stopped waking up to eat at night it all went to Hell.....She used to fall asleep on her own and even slept in her co-sleeper....since she was about 5 months old, she has slept with me, either propped up on my arm or on a pillow....She goes through phases where she wakes and screams....and screams....there never is anything that calms her down consistently..... Sleep training, I have decided will never happen. I can't just let her cry...and Georgia's 'cries' just sound painful! Even my mom has said how real her cries's as if something is she's scared too. I don't know. It's weird... For me, I would just about LOOSE it at night....I pumped for G the whole first that I'm not pumping, I'm on anxiety meds....which honestly...HELPS! Besides not having to pump anymore, and being able to take meds....I feel as if I love her more...I don't resent her....I know, it's TERRIBLE......It's been rough.....She also FINALLY started smiling at people...she didn't smile for almost the first YEAR at people. UGH.... ANYWAY.....sorry for the random information!!! But. YOU AREN'T ALONE. No one else's hard....I just keep quiet when other people talk about not sleeping....HA>....what do they know, right! Anyway......I wish I had something helpful to say......or something that would fix the problem. I keep G in bed with me, because she sleeps better....and so do I. I have a 5 yr old and if I want to be a good mom during the day, it mean I must do what I have to do at night to sleep! HUGS!!!!!!
Check with your
doctor first!