Posted By Posting
Jan 09, 2010
cowdog23
Need Suggestions
I have a 6 week old who I at 3 weeks after no sleep and much distress from a crying infant took her to the Dr. with suspected reflux. He perscribed Zantac and said he would send us to a specialist after Christmas if she was still crying all the time. I have been exclusively breastfeeding, but trying to start on a bottle as I will be going back to work soon. I have tried to watch what I eat, but not sure that it really matters. But we went and saw a GI specialist this week and from blood tests says that she is showing some allergies to something. He reccomended completely cutting out dairy and soy. I really have been trying to limit the dairy, but seems as if every thing has dairy in it....as well as feeling like I am being starved. Also have a problem with a very strong let down, which causes her to choke and cough, etc... I have tried all the things that the lactation consulatnats have reccomended, nothing seems to be working other than sometimes block feeding. We also have an extremely hard time getting her to burp, which exagerates the reflux problems as well as the discomfort. 1. Has any one had better success with giving bottles( breast milk) vs. breast 2. The GI specialist reccomended to start her on Ailementum, but I have heard that Nestle Good Start works well (is this the case if they have a milk intolerance?) 3.Any suggestions on burping or relieving gas pressure....we are giving her the Mylicon? 4. Any food reccomendations....having such a hard time eating and worrying about it causing her upset? How soon would you notice a food upset? 5. When do they grow out of this?The GI spcialist was limited help and is the only one in the area, which is still 3 hours from us
Jan 09, 2010
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I don't have much time, but wanted to say that when I switched to Nutramigen, it was the most helpful thing that I did. If you are feeling guilty about giving up BFing, DON'T!! Reflux babies are exhausting, as they are often uncomfortable, and you are a GOOD mom for caring the way you do. It's the toughest thing to deal with, seeing your baby in pain, so go easy on yourself. Good start didn't work at all for us, some even go for Neocate. Also, Zantac is often not enough for many on this board, including my 2 babies. Sometimes you have to go thru 3,4,5 or 6 different meds until you find the right one. I have to go but I'll be back. Sorry you are going thru this....HUGS
Jan 10, 2010
georgiasmommy
Allison
Mommy to Georgia Kate 12/3/08
You are NOT alone! I had similar problems with my little girl. I stopped attempting to breastfeed her at 12 weeks. I exclusively pumped for her and she was able to eat in peace. And I didn't cry the whole time either! I felt like a terrible person for only pumping and 'giving up' BF....but I started to resent her....NOT GOOD. Reflux babies often have problems burping....I could sit there and 'hit' her back forever it would seem.....but the neonatologist at the time told me to keep trying....it's really hard, I'm sorry......I agree, keep using mylicon.....it did help for us. I really didn't have much luck with the elimination diet. I truly think that if the lower esophageal sphincter isn't mature enough, it's not going to matter what you do eat or don't eat....food will just come up. Is she crying right after she eats? Sleeps? wakes up? Is she sleeping during the day? Is she sleeping flat? Again, you are not alone. As for when they "grow" out of it.....well, for some babies, meds work....for others they go through several.....sometimes once they start solids it helps.,....and for others....it can take much longer. It's hard to say. Georgia is 13 months old, on her third medication, does not sleep through the night, unless she is in bed with me, propped up on either a pillow or my arm.....She seems to have silent reflux now....no more spiting up or throwing up much at all..... In the end, for me, pumping and bottle-feeding Georgia was one of the best things I could do....it took a LOT out of me....(I also had a 4 yr old at the time) At 10 months she also refused formula....which made me continue pumping for 13 months.....But for me, and her, it was the best thing for her.....I had a strong let down as well. She was also VERY efficient at BF....But in the end, her tummy couldn't deal..... Best of luck......If you have anymore questions.....please write! Allison
Jan 10, 2010
adelines mom
i tried to breastfeed the first day and our daughter choked and turned blue. we immediately switched to enfamil ar. ended up with blood in her stools and then switched to alimentum and thickened with simply thick. i pumped every three hours for three weeks and froze it and reintroduced at seven months with the alimentum. we fed at 6:30 a.m., 9:30 a.m., 12:30p.m., 3:30 p.m., 6:30 p.m., 10:00 p.m. and 2:00 a.m. for months and months. still doing 6:30 - 6:30 at 19 months with some solids three times a day. a schedule is a must with our refluxer and that way you could tell exactly how much she was eating!!! also i make each bottle 24 calorie. i switched her to nestle's good start nourish plus, the purple can without DHA, around eight months and it made a world of difference. they just discontinued this january 1st, not sure what i am going to switch to. i gave adeline mylicon drops at every feeding for a long time. get the dye free from target. think it helped. also for the first eight months of life we kept her upright for at least an hour after each meal. always burped over the shoulder and it was hard. we use dr. brown colic bottles with # 3 nipples. think this also helps with gas. we started axid as soon as she was born and then switched to prevacid and that worked well for awhile and have been on compounded prilosec for well over a year. hang in there.
Jan 10, 2010
mommy2k
I'm so sorry that you're having to deal with the pain of reflux. It's very hard! I bf my son for 8 months and he was thought to have had a milk protein intolerance. I eliminated everything dairy even hidden made a huge difference for only a little while. I ended up jut going insane and starving so I stopped bfing. He ended up finally taking nutramigen for me but it was a real struggle and was even on neocate first for a little while.

I will have to say it was a heartbreaking time for me trying to decide to stop bfing but it ended up being the best thing for Kody and me to put him on nutramigen. His reflux was still there and gave problems but a little less. Also if you decide to do the elimination of dairy here's some things to think about. 1. It'll be hard at first to cut out dairy things. You have to be committed to it and sometimes you will be hungry. La leche league was a life saver because I got a lot of things I could eat. 2. You'll have to do the elimination diet for at least 2 weeks if not longer to see if it really will make her feel better. 3. If you do pump then you have to pump every 3 hours at least to keep your milk supply up.

I had OALD and overproduced so everytime I bf he would choke and gulp air. He also rarely burped for me. The one thing that did help us because mylicon did nothing for us was used mylanta or maalox. I don't think we used that until he was around 3 months but just a thought if the mylicon isn't working. You should ask your gi.

Either way it's a hard decision and a personal one. It's what will work for you and your family. It brought on a lot of stress in my family to have bf as long as I did but Kody wouldn't drink the formula we needed him too. So it's sometimes easier to start them earlier on nutramigen or alimentum because of the taste then later.

Best of luck to you. Jennifer

Jan 11, 2010
cowdog23
Starting on bottles
I have been trying to start her on a bottle for the past 4 weeks....anyone have any suggestions...I have tried every bottle out there it seems...sometimes she will take one, but only for an oz and it has to be just the right timing or she absolutley refuses....dad and grandma have had no luck giving her one either. I only try for a couple hours then end up nursing her beacause I feel so bad for her starving? Any one have the same situation with any luck or tricks up there sleaves? Thanks
Jan 11, 2010
haylee bug
Mother of a reflux baby
Need Suggestions
I stopped BF right away so my daughter had no problem (when her reflux wasn't bothering her) taking a bottle. She will refuse to eat sometimes, but it's usually reflux related. I have heard of people having a hard time trying to wean babies off the breast to a bottle and vice versa. Sometimes I don't think lactation consult. are helpful becuase they usually think bf is the only way to go. Here are a couple of suggestions to try. 1) try using a latex nipple instead of silcone. I've heard a lot of people say the old brown ones (like used w/ the playtex nursing bottles) are like the breast. Madela aslo has an orthodontic nipple that may be helpful. If you just buy one of those nipples try offering it to her like a pacifier so she can get use to it instead of giving it to her right when it's time to eat. 2) maybe try changing positions. Use a position other then the one you often use for bf. Of course patience is going to be required, but since you have a reflux baby I'm sure you have figured that out already. I would say if you try feeding her and she refused don't offer her the breast right away because she may feel she's getting her way if she refuses. Maybe try offering it before it's time for a feeding because you don't want a refluxer to get too upset. That will just make matters work. Good Luck... Ellie
Jan 11, 2010
haylee bug
Mother of a reflux baby
Need Suggestions
At this point I'm sure you have tried everything, but have you tried putting a little breast milk on the nipple of the bottle. When I tried BF that had me rubbing my milk around the nipple to get her to latch on. In my case I was prescribed Zantac and a few other blockers at first, but it just wasn't doing to trick right off the bat. We had to go to Prevacid for a while and switched back to Zantac and it seemed to do the trick for now. Also for my daughter mylicon didn't do anything but cause constipation and mylanta gave her watery, frequent stools, but every child reacts differant to differant things. I was told reflux babies have more gas from the frequent amount of air their take in while trying to eat and the gas bubbles are too large for the mylicon to treat. Hopefully you will have better luck with it.
Jan 11, 2010
adelines mom
when a was born she was in the progressive care nursery at our hosptial for 10 days. they told us she had poor suck swallow. we were able to see a feeding specialist each day we were there and she used a pigeon nipple with a. it saved a's life. it is japanese i think. firm on top, soft on bottom. she ordered us a handful and we used these for the first two months. we tried every bottle and every nipple on the market. the lady at target thought my sister was nutts! she kept buying and taking back bottles and nipples and to this day we call her aunt nip! dr. brown's colic worked the best for us. we started out on a number two nipple and quickly went to number three when we added the simply thick. the y shaped never worked for us and neither did cutting the nipple. we gave her cheek support with every bottle for the first eight months and it really helped her.
Check with your
doctor first!