Posted By Posting
Dec 15, 2009
prayer
Desperate for Sleep Advice
My daughter is 2 1/2 years old. She's on 20 mg of Prilosec 2X a day (40 mg total). Her GI is top-notch in his field, and he told us the Prilosec will probably not relieve all her symptoms, but it will help cut the acid level in her stomach so that the contents don't burn on the way up and cause other problems. At night and when she naps, my daughter refluxes in her sleep or wakes up vomiting and screaming, but many times she swallows the vomit back down. Also, if she cries for more than 30 seconds, she often has reflux. I've found a 45 degree angle doesn't help her. She chokes on her vomit all the time. I used to take her to the ER before I knew what she was choking on. She has to be propped up and flung over my shoulder in order for her not to choke. Even sitting upright in her stroller/car seat doesn't seem to help. Anyhow, when she was an infant, after a few close calls, I moved her into my bed so I could grab her quick when she was choking. She's been there ever since. I'm pregnant now and I'm so worried about what I'm going to do with a new baby, plus a toddler who has to be monitored in her sleep and needs someone to hold her through her episodes. Also, what happens if I have to have a c-section...Am I going to physically be able to cradle and lift my daughter? Also, what's going to happen when I go into labor? How will I know my daughter's okay? My husband sleeps in a separate bed and he usually sleeps through her episodes. My mother also sleeps through her episodes. Any ideas? Suggestions?
Dec 15, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you and your doctor talked about fundoplication surgery? Not normally something I would suggest, but your daughters reflux sounds very sever especially for a 2 1/2 year old. If you two have talked about it, what are you thoughts on doing it?
Dec 15, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
is she aspirating?? That's frightening. My son spent a lot of time in his swing...but your daughter is probably already too big for that. My son also naps really well in his toddler chair. Whatever works is what's good...is there anywhere you have found she sleeps well? We've all done weird things to help our kids sleep!
Dec 15, 2009
prayer
We talked about surgery and also reglan as "last resort" options. Her GI feels that there is still a good chance of her outgrowing her GERD by 3 years old, so I want to wait and see, especially considering the surgery has to be repeated later as they grow. Has anyone else here done the surgery? What's the recovery time like? Effectiveness? She's not aspirating and GERDing every single night (except when she gets sick with a cold), but she does it every few nights. Even when she's asleep in her stroller, someone has to be there with her to pull her up when she refluxes.
Dec 15, 2009
jgbennett
Ginger Bennett
Mom to Stanton, 6/12/2008
dx with GERD at 7 weeks. dx with EE at 21 months
Past Life - Early Intervention Specialist and Eval Team Member
I've said no to the fundo too and understand you wanting to wait. There is a new pediatric surgeon in my area who is doing a simple stapling on each side of the lower esoph. I have an appointment with him in the new year so I don't really have any good details. However it is not permanent And doesn't have to be redone like the fundo and might be an interesting option for you.
Dec 15, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
This will sound horrible but, as long as she is semi upright when she is puking, it should come out and not get aspirated on. Jedd used to vomit all the time in his sleep and the coughing noise you hear is the body's way of protecting the airway.

That said, have you ever dropped her in patient to have her monitored for a few days to ensure for certain that she is not aspirating during those episodes. They can put a pulse ox on her and see what it does during those episodes to give you some idea of what's going on.

Really, Jedd slept in his bed in the other room and vomited quite often by the time I got to him and he never aspirate on it. By her age is she sleeping on her tummy, that will help.

FWIW not all kids have to have their nissen redone as they grow. That said, if she's chocking and gagging now, it will only be aggravated with a nissen, or it can be. It can cause retching which is worse the watching them gag and cough on vomit.

Fundo surgeries, have there pluses and minus, all the options need to be explored prior to surgery.

I'd def. be looking into more testing if you haven't had any yet, also motility testing to see if she is passing food through her GI tract fast enough.

If she's puking at night, how long is that after her last meal??

Check with your
doctor first!