|Nov 22, 2009|
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
|What form of Prilosec are you using, if it is the compounded form, I'd ask to switch to Prevacaid. We are the rare case that found a REALLY good pharmacy to make it correctly for Jedd's feeding tube. He had to have a liquid as he would receive nothing by mouth.
As far as when did it get better, well, we didn't see any vast improvement until Jedd was around 2 years old. We saw another big jump from the 2-3 age range and now at 3 I would say he's really really stable in the GERD and GI motility dept.
Sorry if that sounds soo far away. :(
As far as how LONG meds will be needed. Jedd just failed yet another attempted med wean. I had cut him back to one dose per day. When he was on that dose for about 2 weeks, I started seeing symptoms. I quickly got him back to 2 doses a day and within 48 hours, he was back to himself.
We didn't see drastic issues, just small ones as I really know what to look for, I've had lots of practice with him.
So, as soon as I saw, extra coughing, hiccups, gagging and then he was sticking his fingers down his throat, I threw in the towel and called it quits. Back on full meds he went.
|Nov 22, 2009|
|Hi and welcome to the site. It definitely is very hard some days to get through when you think that this reflux stuff will never end. Add on top of it if they have any allergies/intolerances and it seems like it'll go on and on. I know exactly how you're feeling right now. I have been there many times. |
Prilosec never really worked for my son so you might want to see if they could up the dose of prevacid or try another non compounded drug. It's very hard to get the compounded drugs to work properly.
As far as how long it takes to get better, my son is 11 months old now and has had reflux since he was 5 weeks. He's just now starting to show improvements on it but still on meds. We had to go through the gammitt of formulas and meds to get relief. I do know that an allergy can be a big part on discomfort. My son had a milk protien intolerance. It was horrible for a long time for us even on meds. He was so uncomfortable. I felt like a zombie all the time. It does get a lot better with age though. I hated hearing that when my ds was younger but just believe that this too shall pass.
One more thing that I thought of is make sure that you give things at least two weeks with each formula change or med change. Sometimes even longer for meds. I know it's hard to wait but that gives the body enough time to adjust to things. I also put my son on probiotics and that has helped tremendously. So think about that too.
Good luck. this site is wonderful especially on your worst days. I get such great support and information on here. ((Hugs))
|Nov 22, 2009|
DD 10 mos.
15 mg prevacid solutab/day
dx GERD at 4 weeks
had relatively peaceful 5 months-9.5 months
now regressing, waking 10+ times/night,
not sleeping longer than 1-2 hours,
waiting for bronchitis to go away
docs say secondary reflux b/c of chest infection
|definitely if she is snoring i would take her to a pediatric sleep specialist. Prevacid worked much better for us too. Once it kicked in (in 2 weeks to a month), it was like she was a different baby and her nightwaking dropped down to 2 -4 times a night. The solutab is what most use, though some can get it compounded at a pharmacy. The solutab is guaranteed to be stable though.|
|Nov 24, 2009|
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
|Try not to be tooooo scared by our stories..the regulars here have special kids...Zack's reflux is/was VERY severe...his episodes were in the high 200 per 24 hr period. He vomited copious amounts 6-7 times a day. MOST kids grow out of it around 6 months, with the worst of it seen typically at 4 months old. Once they are sitting up, trying solids things OFTEN get better.