|Nov 11, 2009|
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
A good GI will be willing to work WITH you as a team on your child's issues. If you don't feel you are getting that, then can you switch to another one.
We have a really really good working relationship with Jedd's GI. I ask him questions and he asks my opinion. It's a win win, we are very fortunate and grateful for that relationship though. We paid our dues with a horrible GI that allowed Jedd to suffer with an NG tube in and refused to do the referral fora G and would up meds at all. It was awful. The straw that broke the back was when he told me reflux was "just a laundry issue" after I showed him a BEACH towel soaked in vomit from the trip to the office right before seeing him.
As far as eating, any child won't eat successfully until all medical issues are resolved. Try your best to get her to eat and work on the medical front as you do. Just try to maintain weight as good as you can, which can be hard.
Puking up food 12 hours after eating is NOT normal. Sorry to disagree with your GI. Can you call the office tomorrow and request a Gastric Emptying Scan??? That would be a good start. I mean, it's a simple test and is a good jumping off point to determine if more testing is needed.
Also, has pooping always been an issue are is this a new development? When the GI tract backs up (constipation) it can cause reflux to flare and of course pain, as you are seeing. Can you give something for the constipation and see if you can get some relief there as well??
And yes, you are much MUCH stronger that you ever thought you could be. I think Mothers, all Mothers are the strongest creatures God ever put on this earth. And our kids, infants, toddlers are as equally as strong.