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Nov 09, 2009
buesco
Compound Prevacid and MARCI-KIDS?
I'm a new mommy struggling to help my 15 week old deal with her horrible silent reflux and could use some advice. Have any of you had success with Prevaid in the compound formula? That's what my daughter is on and I honestly don't think it's helping her (and it's been two months now). She has way way more bad days then good. Also - I can't get my G.I. on board with what MARCI-KIDS suggests. She said that my daughter doesn't need prevaid 3x per day and the compound if fine but that's the exact opposite of what MARCI says. What do I do? Nothing seems to be helping her and I feel like we've tried everything...:( Anyone had any experience with this?
Nov 09, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Compounded meds are not as effective as those mixed with Caracream from Maci's. If I am remembering right, the prevacaid is supposed to alst about 2 weeks before going "bad" or "spoils"so if you can get a 2 week dose at a time??? Maybe things will go better. Alot of times ins. co. won't pay for it that way though.

We HAD to use a compounded as my son was feeding tube dependent and we needed a liquid for ALL of his meds. We did have success but we had a really really good pharmacy at our children's hospital making it though.

What dose are you using?? Sometimes GIs want to use really low doses as well.

I think some of the parents around here have used the solutabs too and have said those were better too. You can mix it in a tiny bit of applesauce and get it down that way.

Nov 09, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I have heard very few people say they like the compounded prevacid. It deactives too quickly. Jessica was one of the few lucky ones that found a great pharmacy to make it right. I would ask him to switch her to solutabs or the capsules. If you do the solutabs you can disolve it in 2 ml of water so it is fresh with each dose or better yet if you can get him to change her to the capsules "to mix in with her applesauce" then you can order Caracream from Marci-kids and make your own compound. That stuff is AMAZING! Ryan jumped from the 6% on the weight chart (started at 97%) to the 50th after 2 months of switching to that. Never had another issue since.... and had we had major problem with him prior to this.
Nov 09, 2009
buesco
she's taking 1.5 ml 2x daily - i think it's low myself but feel like i'm fighting a losing battle with my g.i. =(
Nov 09, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
One more piece of advice...

One thing that I learned is that if you dont feel like your doctor or you GI is your partner and that you are always at odds, get a new doc. YOU are the customer/patient and the mother. You know your child best. You are with them day in and day out and they see them for 15 minutes at a time. I know what it is like to feel like you are talking to a brick wall. I took me to long to come to the conclusion that it was just not right. If you like your ped ask them if they want to start dealing with the reflux instead of the GI if there is not another GI in town. Use the GI for the big stuff like scopes and what not. That is what I finally did. I fired my old ped, and I found a ped that I really loved, respected, connected with and felt like was my partner, listened to me and followed my lead. Once I found her and I didnt need the GI anymore. He used up his usefulness to me after scope, and upper GI. There was nothing more that he could do that my ped couldnt. Ryan is still listed as a "patient" with the GI in the event I ever need him, but my ped takes care of his scripts for the prevacid and the miralax. - Karen

Nov 09, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Z was on the solutabs forever...we dissolved it in a teeeeeny bit of water, sucked it into a syringe and syringed it into his cheek...worked pretty well til he was old enough to fight me. You need a syringe with a decent sixed opening for the beads...we used a Motrin syringe...worked great.
Nov 09, 2009
buesco
thank you SO much for all your imput! i was able to get Lucy squeezed into the G.I. tomorrow and I told them over the phone that prevacid compound was NOT working for her and we really need a change, regardless of any weight gain. so - question for you because i'm confused. what's the difference between prevacid solutabs and prevacid capsules? is one better than the other or is one harder to give than the other? do you all give them twice or three times a day? also - have any of you switched from prevacid to nexium? any info is much appreciated :) thanks!
Nov 09, 2009
buesco
one more question - sorry. what is CaraCream? I've read alot about it but can't quite figure out what it is and now I can get it to see if it helps Lucy
Nov 09, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
don't know about the Prevacid capsules, but the solutabs come in 15 or 30 mg. My son was on a 15 mg tab. We got 30's at one point and cut them in half with a pill splitter. They smell and taste like strawberry candy. they dissolve REALLY fast.
Nov 09, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
The solutabs are most comonly given to children because it is very easy to give to them. All you need to do is disolve them in water. Plus you can cut the tablets and split your dose up during the day. Before the solutabs came about all they had were the capsules. They come in 15 and 30 mg too. You open the capsule and mix it with a little apple sauce, juice or yogurt. I only went that route because I wanted to give the Caracream a try and you cant use the solutabs for that. You have to use the capsules. Go to Prevacid.com to learn more about the differences. If it were me I would try the solutabs first. Its easy and convienent and cheaper. Insurance does not cover my cost of the caracream. Now with that said I would mortgage my home if I had to to pay for the stuff. It made that big of a difference for Ryan but every child is different and your daughter might do great on the solutabs and then you wouldnt have to go any further. If you decide you want to go the caracream route let me know and I will send you my phone number and email address and I can tell you all about it. Oh, and did you know that Zegrid is EXACTLY the same as mixing prevacid/prilosec with the caracream. Same product. I could never get my GI to prescribe it for me though so I had to do it the hard way. If you can get yours to do the Zegrid then you are set. - Karen
Nov 09, 2009
mommamia
Daughter, Mia, born IUGR weighing 4 lbs. 10 oz, diagnosed with reflux at 2 months, open heart surgery to repair VSD at 7 months. Currently on Prevacid & Erythromycin. One happy little girl despite her many struggles!
We also use the Solutabs. You can get a 5ML syringe from the pharmacist to dissolve the tablet (or half depending on the dose). I just drop in the tablet, pull up some water and shake. It dissolves really fast. You just have to be sure to do it twice because you'll notice some granules remain in the syringe after dispensing. So I just pull up more water, shake again, and re-dispense until all the granules are gone.
Nov 11, 2009
jordyn'smom
Erica
Jordyn 11/30/04 DX GERD at 1month old
is caracream still available? I thought it had been discontinued here in the US
Nov 11, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Yes it is still available. I use it for Ryan. Just got a new shipment in. You have to contact Marci-kids directly to have it sent to you. info@marci-kids.com. And prevacid capusules are going OTC this week so that takes caring of everyone issue with getting the doc to change their script to capules.
Check with your
doctor first!