Posted By Posting
Nov 07, 2009
reflux and dge worse with illness for
Hi everyone. I posted a few weeks ago about Kody having trouble with his reflux after a bout of bronchitis. Well he's sick again with some nasty virus which of course has made his reflux worse and I can tell he's not emptying his stomach. He already is on erythromycin and prevacid but neither one is helping that much. We keep giving him mylanta which seems to help minimally right now. He didn't eat and barely drank for two days fighting a really high fever. So now he wants to eat and drink which of course has made it ten times worse. What can I do to help him empty better? His liquid just sits there and I can hear it sloch around and he refluxes it up and swallows. This wakes him up throughout the night and is bothering him during day as well. He's also gassy. I don't know what to do so if anyone could help that knows about dge. I need to know how to get over this hump to help him feel better. It's at it's worst right now. Help!! Oh and prayers and thoughts are needed for my little guy. I hope his fever goes down soon and he's feeling better. This has been horrible for all of us. Thanks
Nov 07, 2009
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
When Jedd's tummy was slow after a virus or flu or any type of "bug" we always did lots and lots of pedialyte to start with. We abandoned food for a few days in order to just hydrate him and keep things down.

When we did start back to foods and regular liquids, we did juices and easy to digest things, like applesauce. We would hold off on any type of dairy stuff because it just seemed to sit there.

Is he willing to only drink juice when thirsty during the day or does he want something with more substance to it??? Is he old enough to understand now if you explained to him how such and such will hurt your tummy, let's try to eat something else for a bit??

It would always take Jedd upwards to a week to tolerate any "real" amounts of food. And even then, it was small amounts, like 4 ounce every 5 hours or so, with juice or pedialyte in between.

HUGS viruses and DGE are just the pits. It's NOT fun at all. :-( It just takes time and the belly will bounce back a bit.

Nov 07, 2009
Hey Jen! We're in the same boat. Took Holden back to pedi yesterday-double ear infection and tonsillitis again!! It is so hard. I wish there was a magic cure. I'm just praying that he gets well soon and try my best to keep him hydrated. Have you tried an increase in his erythromycin in a while? I bet he has gained weight and needs an adjustment even if it is just while he is sick cause sickness is horrible on DGE. We had to up Holden's reglan.
Nov 08, 2009
by the way mommy2k....i see that ur little one is not feeling all that great but u still have the time to give me some kind words...thanx and just like u said hang in there ...IT HAS TO GET BETTER AT SOME POINT RIGHT....lots of hugs!!!!!!
Nov 08, 2009
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Jen, Have you tried digestive enzymes with Kody? They helped Ryan out a lot.
Nov 09, 2009
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
I just wanted to pop back on to give you all a few words of encouragement.

Jedd had to take meds for his DGE for a long time, maybe about 19-20 months in total. We have been able to wan off the med and he eats a relatively normal diet now. WE just time his meals and make sure they are spread apart and he does OK. We also measure almost everything he takes in and that seems to help as well.

As long as we do those things, he does really well. It took a while, he's three now, but he is pretty stable in regards to DGE today.

Believe me, it stinks big time while going through it but some kids do "outgrow" it or their parents learn to do things like we have done to control it well.

BTW I think it's more of a the parents learn how to control it with diet versus the outgrow thing, but that's JMHO. :-)

Check with your
doctor first!