Posted By Posting
Nov 06, 2009
jordyn'smom
Erica
Jordyn 11/30/04 DX GERD at 1month old
GI appt
Well on Wednesday we visited the GI again it was a long 4 hour trip to York but we are willing to go that far for a good Dr.. Jordyn did well answering the Dr.s questions. First she was seen by a family practicioner. Then the GI came in with 2 scripts for new meds. He asked alot of questions and examined her. He explained that it appears that she is having some IBS symptoms and also dealing with DGE. He started her on Levsion for the bowel spasms and was going to do another motility med(we have tried reglan and abx in the past) but he felt it was possible that she was having some DGE due to a virus and didn't want to start new meds yet but he had the script in his hands> He went on to say that viruses can cause DGE for up to a year after the virus is actually gone. Jordyn has already lost 3 lbs in like a week if this keeps up we will loose all the progress we have made over the last year. And I will be honest I am so sick of middle of the night wakeups with vomiting. I would so like to get a good nights sleep. Even the nioghts that she isn't vomiting I listen to her cry in her sleep. She is obviously not sleeping well as she is napping durring the day and is so crabby. School is getting harder now because she is so tired. (we do Cyber Charter School).I feel like a terrible mother for getting so frustrated with the entire situation and sometimes I feel like if I could just get some sleep I would feel so much better. Our family Dr. didnt feel there was a viral process going on. Are there any foods that move through faster or will help move things along better for her. I hate hearing "I'm hungry but I am afraid that if I eat I will get sick" We spent alot of time in Feeding clinic to get over that and it's starting all over again. Sorry this is so long. I wish all thoes Dr.s who have said this would end when she sits up, walks, turns a year old, turns 2 were here with an answer now. Any expirences with levsion would be helpful
Nov 06, 2009
jgbennett
Ginger Bennett
Mom to Stanton, 6/12/2008
dx with GERD at 7 weeks. dx with EE at 21 months
Past Life - Early Intervention Specialist and Eval Team Member
Ugh....it does feel never ending! At least my gi has the guts to admit that. So sorry you are feeling down and tired and overwhelmed! I have many of those days myself. The lack of sleep is the worse! I'm thinking of you and sending you what peace and support i can through technology. What warriors we've all become.
Nov 06, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Poor dear!!! Are you sure the Reflux is under control if sleep is being affected??? Just a thought.

DGE can be affected by a virus for a while after it has passed. That always happened to Jedd. It was horrible and we had to work back in really slowly.

Not to be gross, but when she vomits at night, can you tell when it was eating by how it looks...I told you it was gonna be GROSS!!! >-<

That can give you a time frame as to how long digestion is taking. The consistency of what the puke looks like (chunky, whole, liquid) can also help. Now this is getting really gross. But all those factors can help you see how slow the GI tract is moving.

I would think that foods like soups, depending on what's in them would pass well. What about different types of applesauce??? They have pear sauce, and all sorts of other flavors other than apple now since you may not want to do apple on a kid with reflux.

I'll have to think more on what food will pass easier. Try to think about foods that are less calorically dense, they pass faster. Rich foods pass slower, think heavy creams and high fat content.

Nov 06, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Man, my last post makes me sound like the vomit queen. I guess I REALLY am the vomit queen now. ;-)
Nov 07, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
That's why we love you. You have seen and been through it all!!
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