Posted By Posting
Nov 04, 2009
daughter Emma born 7/25/07
We're Back!
I have not posted in about 18 monthes. Emma was very stable and content on meds (Nexium and Bethanechol). Then at her appt with Pulmo in August, I asked if we could try a med wean - how dumb am I??? We stopped the Bethanechol with no problems and we were told to wait till October 1, then stop Nexium. Mid October the trouble started. My daughter would not sleep. I thought it was teeth at first - she is a very difficult teether - two weeks later of no sleep I called pulmo and we are back on Bethanechol. We have ALL slept the entire night for the past two nights. I cannot believe that this med works so well so quickly. SO, I feel like an awful mom for letting my little girl go so long in pain, I just hope it didnt cause additional damage to her airway - at Emma's initial diagnosis she had horrible stridor due to an inflamed airway - thanks to reflux. So my question is - how many lo's are still on meds at 27 monthes? I have been feeling like the mother of a newborn lately with no sleep. Will this ever end???
Nov 04, 2009
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
Jedd just turned three and he is still on meds. If his weight gain is enough he needs them bumped up. For us, we have already accepted the fact that Jedd will more than likely be on meds for life. WE have done our best in weaning from a PPI (prilosec) to an H2Blocker (axid). We are content to sit right there and wait.

Give the meds a bit to kick back in, once they do, I imagine things will calm down and you will get back to normal.

((HUGS)) Reflux stinks.

Nov 05, 2009
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
My kids are 9 and 7 and on prilosec, we've tried and failed weaning off it many times.
Nov 05, 2009
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
For us it comes and goes. We've gone years with no meds and no problems, and then had it come back up (no pun intended). I have a theory that maybe reflux tends to get worse when kids are experiencing growth spurts, but I don't know if that's really just seems like that to us. Hopefully your little Emma will grow out of it and you'll never have to deal with it again, but I can at least say that it's easier to deal with when they're old enough to recognize symptoms and it is much less scary for me as a mother now that they are older and I know what we're dealing with. Reflux is crummy and I hate it, but things do calm down and get easier and there's a very good chance that you'll not have to keep dealing with it. You're totally not alone with having an toddler with oldest was 11 and on meds (after being relativly reflux free for years) but is off them now, my middle child didn't even have symptoms until she was a year old, went off meds at 3 and is fine now (she's 10) and my youngest we are watching because she is just now, at age 6, having symptoms. Everyone is different and some kids just follow a different path, I guess. (((hugs))) to you, this too shall pass and things will get better!
Nov 06, 2009
Jordyn 11/30/04 DX GERD at 1month old
Jordyn is about to turn 5 and we just added a new med. Our family Dr says he continues to see flares all the way to high school especially with his pediatric female patients
Check with your
doctor first!