Posted By Posting
Oct 24, 2009
bronstew
Mommy to Evan 02 June 09
losing weight--what would you do?
I'd like to call upon all you moms who have been at this a lot longer than I have. My son is 20 weeks old. He used to vomit nearly every day and had been since birth. We put him on Zantac and Bethanechol at around 12 weeks. It worked wonderfully for a week then stopped working. I switched pediatricians. We put him on Prevacid at 15 weeks. The vomiting stopped but he started refusing the bottle and the number of ounces he took in per day decreased. He stopped gaining weight. I started doing dream feeds to help him maintain his weight. We were referred to a GI. The GI said that neither drug had been dosed correctly, persuaded me to try Zantac at the appropriate dose and told me to stop dream feeding. We've had him on 18 mg of Zantac three times daily for the past 5 days and no dream feeds. Now, he is losing weight. He has lost a few ounces over the past 5 days. He weighs only 12 lbs 4 oz at 4.5 months of age. The pediatrician tested his poop for blood and found none and so concluded he has no allergy to milk. The GI told us to stay on the GoodStart. Our main concern is that he is losing weight. What would you do? I am thinking to wait and see if the weight loss continues and if it does call the GI. We are due to see him again in 2 weeks.
Oct 24, 2009
3l's2love
what is the harm in dream feeding? At least until the reflux is under control... the main thing is to get food in him... Ask him for another PPI when you go back.. Prevacid has been known to cause some babies to be sick to their tummy and they refuse to eat as a result. This happened with my daughter.
Oct 24, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Follow your instincts, if you are concerned and he is loosing weight I would call the GI back. There are several different things you could try including different formulas, making the formula a higher calorie with something like DuoCal or by mixing it to higher concentration, or even moving from zantac up to a PPI.

Zantac worked really well for one of mine and not at all for the other. Every kid is different. My current refluxer does beautifully on Prevacid but it is a much higher dose than the pedi would rx. All of those things have to fall in line to get these little ones feeling better.

I agree with the pp, I would readdress the dream feeding issue with your GI. Was there a specific reason not to do it? Maybe if they knew it was one of the few times you could get him to eat they would change their minds. ??

IMHO, I would try to get an earlier apt or see if the GI can answer some of your questions over the phone. Especially if the weight loss continues! If it is a busy clinic sometimes they will call you if they have a cancellation. You might want to ask to be put on that list.
Oct 25, 2009
prayer
Zantac
Don't play around with weight loss. Call both your pediatrician and GI and let them know. I was told Zantac is one of the safest but can also be one of the least effective drugs. It didn't work for my daughter.
Oct 25, 2009
bronstew
Mommy to Evan 02 June 09
thanks everyone for your input. my pediatrician said that dream feeding would be swapping one problem for another (not sleeping thru the night). the gi said that it would cause oral aversions--how, i'm not sure. i am continuing to dream feed him because i don't want him to lose any more weight. i will call the pediatrician and gi tomorrow, just to let them know he's lost a few ounces.

i am ambivalent about trying a different formula. he seems to do well on goodstart. the stool test they did found no blood and so they concluded that he did not have a milk allergy. he was on soy and nutramigen in the past and neither helped. on the other hand, i'm so desperate that i'd love to think that we could just change the formula and it would all be better. i would love a higher calorie formula. i've thought about putting him back on the 22 cal preemie formula he was on as a newborn. i will ask the gi about a higher calorie formula.
Oct 26, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
I'm surprised the GI would not reccommend a different formula. A stool test is not a definitive test for milk protein intolerance. He could still have milk or soy intolerance without it being an "allergy". Is there a dietician you can speak with at the GI's office? Zantac often works for a little while, then stops working. I would definitely continue feeding at night. Both my sons nursed at night, I think it was the ONLY was they survived.Don't let anyone tell you they will develop problems sleeping or oral aversions!! He's just hungry!! These doctors drive me crazy sometimes. Call the office today and leave a desperate message saying he needs attention now!! Ask for another PPI to try. If you get nowhere, find a new GI, even if you have to go to a different hospital or town. My son continued to lose weight his first year also, and it took two years for the doctors to figure out he was intolerant to milk and soy after me calling many times. I wish I was more persistent when he was younger, but I let them tell me he was teething, fussy, needed to cry it out, so many things, but all along, I knew he was in pain and hungry! Good luck. E-mail me personally anytime, dpasini@att.net
Oct 26, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
Also, you may want to read on the site marci-kids about dosing for children. My kids always need the maximum dosage for their weight.
Oct 26, 2009
jgbennett
Ginger Bennett
Mom to Stanton, 6/12/2008
dx with GERD at 7 weeks. dx with EE at 21 months
Past Life - Early Intervention Specialist and Eval Team Member
We've been on good start and now we've moved up to good start 2. However, my little just had all the tests last week (ph probe, scope, upper gi, small bowel follow through, etc.). We are waiting on the lab results to confirm, but the gi thinks that my 16 month old has a severe milk allergy. My son has never had blood in his stool. I'd encourage you to explore all options
Oct 27, 2009
adelines mom
we did not have good luck with zantac! had been on axid for a long time and then prevacid, she got really raspy, and then finally on compounded prilosec for the last 10 months. i think i dropped adeline's 2 am bottle around 8 months and then the 10 pm bottle around 11 months. was on alimentum for a long time and switched to good start/purple can. had really good luck on this! did 24 calories with each one of the formulas and still doing that at 17 months. have used the dr. brown's colic bottles all along and their pitcher to mix. think this is the best bottle out there. we played with a lot of different ones and nipples too. we use #3 nipples. you keep feeding at night! that was the only way we kept weight on adeline.
Oct 27, 2009
bronstew
Mommy to Evan 02 June 09
thanks
we are returning to the gi on friday. i am interested in switching formulas but doubt the gi will support that. i was lactose intolerant as a kid. we tried nutramigen in the past with no results. his weight gain actually slowed on the nutramigen. which formulas have worked best for your little ones at 3-4 months? i looked into the goodstart purple label but it's for 9+ mons.

i will keep up the night feeding! he woke up at 3 am this morning absolutely starving. downed 4.5 ounces in 5 minutes.
Oct 27, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
You could try asking the GI if he has any samples of elemental formula, Elecare or Necoate? It's expensive, but usually they have samples so you can try it out first.
Oct 28, 2009
adelines mom
I am looking at my good start right now and it says 0-12. We are still using at 17 months. It is Nestle Good Start Gentle Formula Nourish Plus, easy to digest. Hard to find. CVS carries it. I just ordered a case off line. This particular one does not have the DHA in it, and that is what I wanted. Gas got better on this!
Oct 28, 2009
bronstew
Mommy to Evan 02 June 09
i found it. i'm assuming you mixed the formula to be higher cal? we use ready to feed. might be good to switch him to powder though since we will likely be on formula for a long time.
Oct 29, 2009
adelines mom
i always used the ready to feed alimentum and was nervous switching to a powder. i did not notice a difference. i make 24 calorie each time.
Oct 30, 2009
bronstew
Mommy to Evan 02 June 09
we returned to the gi today. he is actually not convinced evan has gerd, which i thought was interesting. anyway, he gave us the go-ahead for mixing a 24-cal formula. i feel so much better now knowing that he will get the calories he needs to at least maintain his weight, even if he's only taking 15 ounces a day. thanks for the advice and the encouragement to return to the gi. we are all doing better.
Check with your
doctor first!