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Oct 19, 2009
sam&sam
Mother to Samuel born June 26,2008. Sam started refusing to nurse at 4 months old and was diagnosed with reflux. On Zantac until 9 months old, then switched to Prevacid. Total food refusal until 14 months old, now on purees and vomits at least once a day. Sleeps for 40-60 minutes at a time. Still nursing.
Gastric emptying????
Hi everyone, So my Sam is still not eating without distraction, still not sleeping for more than 1.5 hours at a time and now he seems to be vomiting with each attempted meal. I was wondering if any one could offer me some advice on the use of motility agents. We are finally getting to see a Peds GI at the end of the month and I am hoping to discuss the possibility that he has delayed gastric emptying. Has anyone had experience with Reglan, Domperidone or Erythromycin? Much appreciated.
Oct 20, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
What do you mean by "attempted meal"?? Is the vomiting occurring when you present food to him....or after a meal, or after a gag??? Just trying to get a better feel.
Oct 20, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
We tried domperidon which worked great for my daughter, but my son is on Reglan and so far so good. I'll write more later
Oct 20, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Forgot to add that Domperidon made my son very irritated.
Oct 20, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
what is he taking for reflux meds and how old is he?
Oct 20, 2009
sam&sam
Mother to Samuel born June 26,2008. Sam started refusing to nurse at 4 months old and was diagnosed with reflux. On Zantac until 9 months old, then switched to Prevacid. Total food refusal until 14 months old, now on purees and vomits at least once a day. Sleeps for 40-60 minutes at a time. Still nursing.
More info
Hi all, thank you very much for the speedy inquiries/help. My son Samuel is almost 16 months old, was diagnosed with reflux at 4 months old, was on Zantac until 9 months old when we switched to Prevacid. He is currently on 15 mg Prevacid split morning and evening. He vomits at the start of every meal, he usually starts gaging just seeing the food. He doesn't self feed and we have only just got him to eat purees at 14 months old (with tonnes of distraction) I am hoping to get him on a motility agent, but have a lot of reservations about the side effects of Reglan as it crosses the blood-brain barrier. Would love to hear more from Mom's with experience. Thanks so much. Sameena
Oct 20, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
We used Reglan from a few weeks old until 8 months very successfully. My son aspirated severely without it. He does have mild DGE and it really did help his appetite. He never slept well at all on it but the side effects were worth it for us as he nearly died from aspiration. We eventually had to remove him from the med because he developed Tardive Dyskinesia. The symptoms all went away luckily within days of stopping the meds. Any good GI will closely monitor the side effects of Reglan while in use especially in a small child and it is definitely not a med that should be used long-term.
Oct 20, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
my son has very severe reflux...is a super puker and has never fed himself. He will not eat much of anything and just turned two..he is still 95% bottle fed. He just started taking purees recently. He has dge and we were on Reglan for a long time with great successs...unfortunately he had to have the dose upped when he gained weight and he started showing side effects...we went off it and have changed to very small meals throughout the day with similar success. The puking is FINALLY starting to slow down and although it SUCKS to be feeding him all day long it's just the way it is right now. Reglan can be a lifesaver..it'w worth a try if your son needs it and the side effects are pretty easy to spot and stop when the drug is discontinued. There is also Erythro which did nothing for my son, but works famously for other kids. Good luck,.
Oct 20, 2009
mommy2k
My son is on Erythro and has done pretty good on it. I will tell you though that dge is not cured completely by giving him the motility drug. He doesn't have any sever side effects, tried reglan and had lots of irritability. He however has really bad days and sometimes weeks. I've found that regulating what he eats and how much has helped tremendously. It still is a struggle sometimes especially when he gets sick or teeths which has been for almost an entire month. But in our experience we tried erythro first because it was safer but we didn't see great results so we tried reglan. We ended up back with erythro and now it seems to be working good for him now. Good luck!
Oct 20, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
At your son's age, or GI had advised us to give the reflux meds three times a day because the little ones process it through their system quicker, how much does he weigh?
Oct 20, 2009
mommato3
Agree with all of the above posts about reglan, etc. My son has been on Reglan since about 5-6 weeks old and is now 11 months with no side effects and it has been a huge blessing to us. He too like Molson's son has aspiration issues as well as documented DGE. We have had a lot of testing done though. Scopes, probes, gastric emptying scans, lots of swallow studies, bronchoscopy, etc. His LES muscle is wide open as well as delayed gastric emptying so with food always on his stomach and a wide open LES this spells trouble so by having his food pass more quickly through him has helped him tremendously. He is carefully monitored on his meds. Anytime you increase the dosage or decrease the dosage of Reglan do it gradually. I definetly would try Erythromycin though. It just didn't work for us but for many moms it does.
Oct 20, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
The vomitting at the site of food is what is making me go hhhmmmmmm KWIM?? How much does he vomit and how often are you feeding??

As far as DGE have you done a GES yet?? They can be completely unreliable, but are worth doing to get an idea of what is going on.

As far as meds. Jedd did both EES (erythor.) and Reglan.We did EES when he was itty bitty and it gave him explosive diarrhea. Stopped did nothing for a bit. Then gave Reglan a whirl for all of 16 weeks and it was shear he!! at our house.

It worked really REALLY well though, he was just the most irritable child you have ever seen. He screamed almost constantly while taking it. I'm surprised we lasted 16 full weeks.

We then switched back to EES. It did work as long as we had the right dose. Then the liquid form was Discontinued and we decided to go without any motility agent and see how things would go with more frequent meals and less given at each meal. You can still get EES now, it's just made different then what we were getting.

Reglan has some side affects but it worked really well. I can't stress that enough. That's the only reason we used it as long as we did. Jedd had a G tube so we could measure his gastric contents 30 mins prior to a feed and give his med and then remeasure right before the feed. The difference was astounding. We never got those results with EES, ever.

He could have 60ccs of a 90cc feed from the previous feed left 30 mins prior to a feed. We would drain it back in and give his Reglan and wait 30 mins. We would drain him again to measure it and he would literally drop to right about 12-15ccs!!! Amazing results for us.

Oct 21, 2009
icoe
My 2+ month old was put on Reglan last week. We tried it for a few days and it definitely helped keep the food down, but we also had extreme irratibility and general weirdness from her. When we would give it to her she would conk out like she was totally drugged for maybe half an hour to an hour, and then she would wake up and seem tired (eye rubbing, fussing, etc) but would not be able to sleep. She seemed very unhappy and generally like a different baby in personality. Her quiet alert time decreased a lot. After a few days the doctor took her off of it as we did not feel the side effects were worth the amount of benefit it was giving her. Once she was off of it she seemed much more herself again.
Oct 21, 2009
sam&sam
Mother to Samuel born June 26,2008. Sam started refusing to nurse at 4 months old and was diagnosed with reflux. On Zantac until 9 months old, then switched to Prevacid. Total food refusal until 14 months old, now on purees and vomits at least once a day. Sleeps for 40-60 minutes at a time. Still nursing.
Great info
Thanks everyone for sharing your experiences. I am convinced that we will discuss DGE with our Peds GI at our appointment. Sam has only had the upper GI test, we will consider doing the test for DGE, but it is such a stress because he is still breastfeeding and it was such a challenge getting the Barium in him for the Upper GI. As for Reglan vs other options, it seems we will likely ask the Peds GI to start on Erythromycin to see how it goes, since it seems you have confirmed that the Reglan does often cause irritability. For now, I have worked out a schedule of feeding that has lessened the episodes of vomiting. It means feeding him tiny portions spaced out by 2-3 hours, but it is better than him vomiting everything out. One day at a time I keep telling myself, one day at a time.... Many thanks for your input
Nov 03, 2009
beth anderson
PAGER Director and original GERD Nerd
Mother of Chris (1988) and Katie (1990)
Author of The Reflux Book
Member of PAGER since 1992
Donor since 1992
Conking out on Reglan
We have had a few parents tell us that their child was on the wrong dose of reglan (math error at the pharmacy!) and the main sign was passing out right after taking it. You might want to have your pharmacist check for the correct dose of metoclopramide for your child's weight just to be sure.
Check with your
doctor first!