Posted By Posting
Oct 16, 2009
3l's2love
prevacid making it worse???
Ok... we switched from Zantac to prevacid 5 days ago because I didn't think that the Zantac was controlling her symptoms that well.. It has been a horrible 5 days. I swear she is worse on the Prevacid. Her spit up smells more acidic, she is sleeping less, eating less, and I have even noticed that she has left over milk on her tongue. Like she is not digesting very well. The only good nap she took is when I gave her a dose of Zantac before putting her down today. I think the Prevacid is slowing her digestion down too much and the food is sitting on her stomach too long and then it gets sour and comes up. Anyone ever have this problem? I am thinking of abandoning the Prevacid and going back to the Zantac and deal with it not working great... I read somewhere that prevacid can cause DGE.... what are the symptoms of DGE? Thanks for any advice!
Oct 16, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
well there are a couple things that might be worth discussing with your doctor. First- ask your doctor if you can continue doing zantac while the prevacid starts to kick in. In some cases it can take a minimum of a week for it to start working, it could take as long as 6 for severe damage.

Second- you could ask about DGE, also called gastroparasis. this could be a result of how she's made (such as a rigid pyloric valve) or a virus (causing slowed motility) or even something as simple as the formula being to hard for her to digest.

the easiest to try is a formula switch. many AR kids can not tolerate milk or soy, hypoallergenic or even elemental formulas a better for kids with sensitive systems. If she is a puker, you might ask about thickening her formula with 'simply thick' (kinda expensive) or 'thick it' (found at most pharmacies)

now if you suspect there is really a deeper problem besides formula, ask the dr to set you up with an Upper GI Barium swallow series. This is a test where the child drinks a barium solution and they use xrays to looks at the structures of esophagus, stomach, and duodenum. a milk scan is similar, but it will look only for gastric emptying times and nothing else.

i have read of some cases in which PPIs can cause reflux if acid reflux has not been established. Such as a Dr. prescribing prevacid for a patient that they suspect may have AR but in fact does not. A Ph Probe can diagnose AR if it comes down to it but not always necessary. We opted for a endoscopy rather then a Ph probe and that told us emily had reflux damage so PPIs were good call for her. Giving a PPI unnecessarily will not cause acid reflux damage but may cause food to not be digested as well.

always make sure to give prevacid 30 mins before feeds and 2.5 hours after the last feed (empty stomach). Keeping baby upright for at least 30 mins after a feed will help aid in digestion. a wedge or bouncer is best- car seats and swings not so great.

http://infantrefluxdisease.com/infant_acid_reflux/index.php?view=article&catid=34:gastroparesis&id=135:gastroparesis-delayed-gastric-emptying-dge

this is a good article about DGE. I will tell you from personal experience if your dd has this it may not be the easiest to treat. reglan is a wonder drug for those who do not have side effects, but if she does there really isn't much after that, except to do many small meals a day. I hope this helps and good luck to you and your dd
Oct 16, 2009
mommato3
Don't abandon it yet. If it was too high of a dose and it was slowing digestion down then you wouldn't smell acid. There would be no acid left to aid in digestion. KWIM? The reason it is going horrible is because it takes AT LEAST two weeks for the prevacid to start to work. In the meantime keep her on the zantac. Just space them a couple hours (4 I think) apart or you can give Mylanta (once again spaced apart from the prevacid) until it kicks in. That is a bummer I know but Prevacid has been a huge blessing for most of our kids. Some kids can get on too high a dose though that it surpresses their appetite but that's not your problem yet. Hang in there!
Oct 17, 2009
3l's2love
I forgot to post that she is MSPI and is on Neocate. We had a ph probe done and it said that she had 12 episodes of reflux but that she does not have GER. didn't understand that at all. Barium swallow came back ok too.. but she still displayed symptoms of reflux so we tried zantac. After a few days on that, we could definitely tell a difference. I just don't understand why it takes 2 weeks for Prevacid to work. Also, wouldn't it be getting a little better instead of worse? I have oredered the trial of bufferbabies and I am going to try compounding it with prilosec OTC. Anyone have success with trying that? I am just frustrated because it seemed like we were on the road to recovery and then the zantac stopped working so well. Would another H-2 be worth trying?
Oct 17, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
my dd did horrible on neocate, but did fine on nutramigen. there could be an underlying condition causing this reflux. H2 blockers (or histamine 2 blockers) block histamines. PPI's (or proton pump inhibitors) work by blocking the proton pumps in the stomach. this is a process that takes time. if there is severe damage it could take that long for it to work OR if over production of acid is occurring which does not seem to be the case. but then again a Ph probe is only a picture in time only a EGD scope will show damage.

I would really suggest telling your dr about compounding a OTC medication- this could be dangerous!!

honestly if Zantac worked, ask for a higher dose or ask for a Axid. The problem with H2s is they are extremely weight sensitive and does keep needing to be increased for weight gain.

on the topic of Ph probe, i understand that there is some degree of "normal" amount of reflux seen in children. the dr or the probe may consider those episodes, depending on how long they were "normal" but they can not always prove this is the case all the time; she could have been having a "good reflux day"- it happens! If she seems to respond well to meds there is nothing wrong with being an advocate for your dd and taking information to your dr and questioning it.

i had often wondered if prevacid was making my dd's reflux worse but it turned out that the dose just was not high enough. that just may very well be the case for your dd.
Oct 19, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
We had used Prevacid also with my older son, it took a good two weeks to kick in fully. We used zantac at the same time until then. Prevacid takes the longest of all PPI's to work, but works well for most after that if they are on a good dose. Check Marci-kids website for dosing calculator based on weight. My son's are both on generic prilosec now, it is working just as well, but was cheaper and kicks in faster, but if your insurance covers prevacid well, stick with it and do the zantac for another week with it. Good luck, I know how hard it must be to have your child suffering.
Oct 19, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
By the way, my 6yr old has had all the testing done. I was lucky to have a good enough GI doctor that he recognized that even if they don't have damage from reflux shown in the testing, doesn't mean they don't have reflux! Even the swallow test may have false results if the happen to not be refluxing at the time. My son's GI always said to me, "In my experience, the Mother always knows best" meaning if I told him my son was refluxing, then he was!!! I know what sour reflux breath smells like, and burping up in his throat, and waking up, etc. etc. I gets easier to tell as they get older. My 6yr tells me now that he "throws up in his mouth" and swallows it, it never comes our as puke, so when he was younger it was hard to get DR.s to believe me because he NEVER vomited. Don't let the doctors tell you your child doesn't have reflux, you know best. You don't need more tests to prove it to them in my opinion.
Oct 20, 2009
rissaroo
Picture: This is what happens when you raise a kid on health food and they get ahold of a Coke! Bad mom, that soda is NOT on the reflux diet.
UPDATE: Isaiah is now 12 and off meds! He is doing great, eating again and hopefully will be catching up in the growing department. I am still in the "hoping it sticks" phase, but we're so happy that he's better!
My son got worse for about 3 weeks on Prevacid, then gradually got better and better over the next 3 weeks. I know that it's not too uncommon for that to happen. I think it was unusual for it to be bad so long and then take so long for it to get better in our case, though. Once it was working, it was soooo much better for him...we also messed around with the dose a little and ended up cutting the dose in half and doing it twice a day rather than once, which really helped. My son was 10 at the time, though....so it may be different with an infant. Just my $.01, hope that she's doing better soon!!!
Oct 24, 2009
mom2bella
Lynn, mom to Brooke Emily 5/98, no GER
Isabella Grace 12/3/07, diagnosed 2/12 GER and Tracheomalacia. 7.5 mg Prevacid solutab 2x/day & Mylanta too! allergies to Sunflower & Almond**pic**ready to go home
I hope you are surviving! I know it is hard. Try to stick out the prevacid though. It took Bella 4 full weeks to show it was working. The longer it takes the more damage there is occuring and it takes time to heal. Ask if you can give Mylanta for break though pain. Our GI would not allow the zantac with a PPI but does still allow Mylanta. Please give it time! Hugs!
Check with your
doctor first!