Posted By Posting
Oct 12, 2009
bronstew
Mommy to Evan 02 June 09
Refusing to eat
Has anyone had experience with this? Our son was born prematurely on the 2nd of June 2009. He vomited almost daily until we put him on Prevacid. Now, he vomits only very rarely, but he refuses to eat. We struggle to get 20-22 ounces into him on a daily basis. He is currently at 5th percentile for weight (12 lb 5 oz at 18 weeks of age) and is in danger of falling off the growth chart. I have asked my pediatrician for a referral to a pediatric GI specialist. If you've had experience with this, what helped? We really don't want to put him on Reglan. At the same time we put him on Prevacid, we changed formulas to Carnation GoodStart. Is it possible that he just doesn't like the taste of the formula? Any suggestions welcome.
Oct 12, 2009
bronstew
Mommy to Evan 02 June 09
thanks, morgan's mommy
Just saw Morgan's Mommy's thread and replies. It sounds like maybe going to a Ped GI specialist would be a good move for us. Evan hasn't been officially diagnosed with GERD. We just wish the boy would EAT! He was born at 4 lbs 3 ounces and is already extremely small for his age.
Oct 12, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Welcome to the wonderful world of reflux. All of us have kiddos that we struggle feeding. Blame on not being hungry, meds not high enough, association of pain and eating, constantly regurgitating what they do eat... pick one... Whatever the source, they never learn to associate eating or the bottle with pleasure and soothing. Quite the opposite. Sorry to be the bearer of bad news. It gets better though. - Karen
Oct 12, 2009
mommato3
Have you tried a hypoallergenic (Alimentum, Nutrimigen) formula? It is very possible he could have a allergy or intolerance. Plus they are much more easier for our GERD babies to tolerate. My son is on Elecare (very expensive) but worth every dime and saves a lot on medical bills in the end. If bought through e bay, online it is not much more than other formulas. How much Prevacid? Do you give it on an empty stomach and wait at least 20 minutes before feeding him? Def. go to a pediatric GI. The wait can be long to get in but call them everyday asking them if they have cancellations. Drive them nuts. We did and got in within a weeek when they were booked 3 months out. Also if they think his stomach is slow to empty they can try Erythromycin before trying Reglan. It is a very safe drug. It didn't work for us but does for many moms. Reglan has literally kept my son from having surgery, but we watch him carefully for side effects. I would say that if he becomes failure to thrive it would be justified to try it. Like vigilant mom said though a lot of it can just be bad experiences with the botttle=feeding aversion. We all struggle to get our little ones to eat. Also, call your state's early intervention and ask for an occupational therapist or speech therapist to evaluate him for feeding problems. early intervention has been a blessing to many moms on here. My son gets feeding therapy weekly along with a nutritionist every other week. She has helped me bump my son's formula from 20 calorie per oz to 26 calorie per oz. Doesn't seem like much but it makes a HUGE difference over the course of the day and has helped him grow off very liitle food. She also figures up how much calories, fluids, etc. he needs and plots his growth every time she comes.
Oct 13, 2009
bronstew
Mommy to Evan 02 June 09
Thanks for your replies. We actually did put him on Nutramigen for a while. He gained no weight on it and had terrible diarrhea. We switched him to Carnation GoodStart, which he seems to be doing pretty well on, aside from the fact that he doesn't eat much of it. I have never heard of Elecare. We have had him on Lipil, which gave him terrible gas, and soy, which he did well on but made him very constipated. We give him 2.5 mL of Prevacid once a day. I have not noticed that he eats any better after a dose. I usually wait 20-30 minutes to feed him after dosing. However, all vomiting has ceased, which is wonderful. I have called my pediatrician to ask for a referral to a GI. I have tried calling the GI specialists directly but they tell me a referral is needed. I haven't heard back from them yet. It is terrible the way you have to *hound* doctors to get them to act. We are actually immigrating to the UK in January, so I'm beginning to think that we won't have time to see a GI, particularly if the waiting list is months long. More reason to keep hounding. Thank you for the great suggestions. I thought the pediatrician had to give a referral for Early Intervention. I will contact their offices and see what they say. I would LOVE to have him on a higher calorie formula.
Oct 13, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You should not need a referral from a doc for Early Intervention. It take a little while to get through the system so if you are leaving the country soon I was get a hold of them right away. You can also ask your doctor about Periactin. It is an antihistamine witha side effect of increased hunger. It does amazing things for some kids.
Oct 14, 2009
bronstew
Mommy to Evan 02 June 09
Thanks
Thanks for all the great advice. I took Evan back to the pediatrician today. He had lost an ounce since last week. That lit a fire under the doctor. She is going to request an urgent appointment with a GI specialist. She put him on Zantac in addition to the Prevacid he already takes. She also gave me a prescription for Mylanta. She recommended OT for a feeding aversion. I contacted Early Intervention a couple of days ago and so hope to hear from them soon. The weight loss has me a bit worried. I hate to think that his failure to thrive will cause him more problems in the long run.
Oct 14, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I wouldn't be too worried about what FTT can do in the long run unless it's really severe FTT. Jedd lived in FTT land for a long long time and he's considered perfectly healthy today. He weighed a tiny 12 lbs at 6 months old. At a year he was about 19 lbs. 2 years he shot up and now at almost 3 years old he is about 32 lbs. He's a growing boy!!!

((HUGS)) Just trying to give you one less thing to worry about.

Oct 15, 2009
bronstew
Mommy to Evan 02 June 09
thank you!
Jeddsmommy, Thank you so much for that! I feel like a weight has been lifted. All this time, the foremost worry in my mind is that he would grow into a 4'10" grown man or something like that. They can catch up and they do catch up. That is wonderful to know. We're doing all we can to help. I started him on the Zantac today, which he's taking in addition to Prevacid. I hate pouring all these meds down his throat, but we've got to do all we can to get him eating. Thanks again, Bron
Check with your
doctor first!