| Posted By |
Posting |
Sep 21, 2009
noor117
Strong, Beautiful, daughter who is thriving beyond imagination and a healthy, happy 3 year old. | OT Mitochondrial disorder Some of you know me, some don't since I have been inactive for a while. Meggy-my daughter and I both have had continuous health problems. I had them before she was born and she has been sick since birth.
Today I received confirmation that I have mitochondrial disorder type 1 and 3. For me, it is nice to have answers because we know where to start looking, reasearching, ect. We can start getting appropriate medical care and be taken seriously by medical doctors.
My hubby is not so fond of having an answer. He is grieving and in the anger faze at the moment. His response was "NO more children--period-& NO u don't get a choice in the matter." :(
I just needed to get it out and talk to some one. Thanks for listening. | Sep 21, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease. | Hi Engi, I am so sorry that you guys have to deal with this. I hope having answers brings some relief for you. Hopefully for Meggy too!! HUGS | Sep 21, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds | I am so sorry Engi!
I haven't been around much due to what we have had going on, but I wanted to let you know I have been thinking of you and will continue pray for you and Meggy, and your husband. I'm sorry he is dealing with it in such a bad way, he should be comforting you, but he is probably scared. I hope he comes around soon for you.
Super Big Hugs!!! | Sep 22, 2009
wenbomama
| I am so sorry to hear that. Your husband probably needs some time, he will come around. Your daughter is so cute! | Sep 22, 2009
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid | Oh, Engi, I'm sorry to hear this. Although it's probably a relief to finally have some answers, it couldn't have been easy news to hear. I'll keep you in my prayers. |
|
Check with your
doctor first!
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