Posted By Posting
Sep 18, 2009
nyahsmom
Qn to vigilantmom & mommy2k
Hi have been reading your posts for a while but haven't posted myself. We are going thru a situation that is kinda similar to what you guys have gone thru. do please give me your inputs

we always seem to be following a sine curve. I have no idea why she is doing so good for a month when she is doing good, and why the food refusal comes back without us changing a single thing. She is 8 months completed. And the entire 8th month was like a good dream. Suddenly she stoppedburping well after drinking, silent refluxing and refusing food. Hasn't cut any tooth yet, and no other symptoms of teething yet. What do you guys consider when you suddenly hit the bottom? One single thing I noticed is she is slightly more constipated from around the time this started. Could that be a reason? She is on zegerid from 5 months old.
Sep 18, 2009
nyahsmom
More info - on similac sensitive ( we tried alimentum for a while by slowly adding it to the sensitive that's when we started seeing the upside. But as we reached 100% alimentum she started throwing up due to the taste and stopped drinking even the sensitive/ali mixture. So we quit and went back to only sensitive. Reflux and eating continued being good for the next 30 days. So we decided Ali was not the reason for the improvement. Not on any probiotics.
Sep 18, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Welcome! Glad to know we didn't scare you off.

Ryan was on Similac Sensitive too. That is great stuff. Nice job finding that. Also, nice job of getting Zegrid. I could never get that prescription so I had to play mad scientist in my kitchen and make it myself with Caracream.

You have hit the hard months of reflux. I wish I knew why 8 to 12 months is hard, but it is. I think a big part of it is the teething issue. Reflux babies tend to have a hard time with teething. The extra saliva, increased acid production and the pain. It seems to spure things even before you can see the tooth coming.

A couple of things to think about.... 1. If you are giving pain meds you might want to try Tylenol instead of Motrin. I was always a Motrin user but found out that it increases acid production, Tylenol does not. I know Tylenol isnt as effective for pain as Motrin is but decrease in acid is worth the trade off. 2. Constipation gets Ryan everytime. My theory is that it makes them feel full and puts pressure on their stomaches thus they get barfy, nauseated and reflux more. For example.. Ryans daycare accidently gave him bananas yesterday which instantly stops him up. This morning he didnt want to drink or eat and threw up what little he did drink. (That hasn't happened for almost 3 months.) A little while later he had a bowel movement and then he was readyand wanting to eat with no issues at all. Strange... I know. Teething alway made Ryan constiptated... I know for most kids they get diarhea but not for him. One thing that really worked well for him was to give him aluminum free Mylanta Cherry Supreme at about 10 pm. It cut down the extra acid production and he made him have a bowel movement in the morning. I gave it to him every night till the tooth came through. I wish I had figured out that little trick a whole lot sooner than I did. Night and day difference 3. Pain- Most of these reflux associate pain with fluids... So.. matter the source of the pain, they blame the milk and dont want to drink. 4. Could it be time to up the dosage of the zegrid??

I would start with clearing up the constipation. That just might be your source and it is a quick and easy fix. Also just to be safe take look at the dosage for the zegrid.

Keep in touch and GOOD LUCK!- Karen

Sep 18, 2009
mommy2k
Hi and I'm sorry that you're onto the detective work it takes to figure out the reflux roller coaster. It took us lots of trial and errors of a lot of things to get to the bottom of how to make Kody feel better. Part of why he was going up and down a lot on reflux was because of two main things...constipation and teething. Right now he's cutting some more teeth and so his reflux has gotten worse as well as his sleeping. It sneaks up too and it can throw us off for almost a whole month sometimes. I can tell you that since he's been on miralax it has helped his reflux tremendously. Have you thought about maybe doing a food journal? I started to figure out the foods that really slowed the emptying of his stomach and triggered his reflux. Made a huge difference in his symptoms. Also I agree with vigalantmom about the dosage of meds. Sometimes that's all it takes or even sometimes changing meds. We recently switched from prilosec to prevacid and it made a huge difference. I feel for you because it's such a roller coaster and so tiring to figure out sometimes. I drive myself insane trying to figure out why I can do the same thing two days in a row but one day is good and the other not. I know this is what I hate hearing but it really does improve with age. Kody is so much better then he was even a month ago. So hang in there. Teething really bites though! lol
Sep 19, 2009
nyahsmom
Thanks a ton ladies ! Will work on both the constipation and med dosage and let you know how it goes... Your experience and help is invaluable.

I can take the 'it will get better with age' phrase very well from other reflux mommies. Not from other people esp the Ped! Lol....
Sep 19, 2009
nyahsmom
Sep 19, 2009
nyahsmom
My ped doesn't want to give Nyah miralax. She wants to do prune juice instead. She hates it, and you know how easy it is to get these guys take something they hate. I guess miralax is OTC, is it the same for adults and babies? How is the dosage like?
Sep 19, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
if she won't drink prune juice try plum smart- or feeding her prune baby food. apple prune juice or even pear or white grape juice is good as well. 4-6 oz a day is a good start.

mirilax is not a good med to give advice to. one dose for one kiddo is not good for another. mirilax is often not used on children under 1. this is a tricky med b/c it pulls fluid from the body to the colon and can cause an electrolyte imbalance or dehydration in small children. many of the doses that are given need to be titrated (changed often) cause they tend to cause diarrhea. I would recommend (in my opinion) only using mirilax if dr says it's okay.

INSTEAD ask if milk of magnesia is a better option for her. milk of magnesia is a pretty benign med similar to mylanta.
Sep 19, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Ryan wouldnt drink prune juice either. Milk of Mag was our best friend for the first year. Always produced a bowel movement over night. Very gentle and safe. Try the Milk of Magnesium or aluminum free Mylanta Cherry Supreme first. I think you will like the results. You can ask your pharmacist for the dosage. Stick with it for a few days till you know she is really cleaned out then add prune babyfood to her daily diet to keep her moving. Remember to space the Milk of Mag or Mylanta away from the Zegrid. PS. 1 oz of pear necture in the bottle of milk works well to keep things moving as well and sweetens the milk a little. Extra bonus to entice them to drink. : )
Sep 20, 2009
nyahsmom
wow, that's a lot of great suggestions, Thanks again ladies... will try the different things and let you know what does the trick!
Check with your
doctor first!