Posted By Posting
Sep 16, 2009
refluxqueen
Scope from Monday EE? Rings ??
Well. We all survived the EGD, and we were so fortunate there was no vomiting or anything on the long trip home, although I have to say he was not very happy about the whole thing, can't say as I blame him.

GI said everything looked good on the way in, but that when he was on the way out, and that's when he really takes a good look there were a couple of spots that may have been healed ulcers, so biopsy done there, for H pylori. He took a total of ten biopsies, and then there was some granulatous(sp) tissues in the stomach, which might have been from not eating., biopsy done there as well...Now the chincher....

in the esophagus, there was trachealization of his esophagus, I can see it clearly on the pic he gave me. This raises the suspicion of EE, again waiting on the biopsy results, hopefully tomorrow or Friday.

I just wonder is it possible to have the rings in there and NOT have EE? If anyone has any knowledge on that, love to hear it. Thanks all you guys, you all rock! I will let you know when I hear results of the biopsies.....Until then a long wait,

Sep 17, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Hi, just wanted to say that my son was dx'ed with EE about a year ago. He is 3 1/2 now. Trachealization, white patches, & rings, esp. with uncontrolled reflux, gagging, choking, pain issues are all red flags for EE. In most cases (but not all) there is a history of allergies (food or environmental), asthma, or eczema in the families. Also, there sometimes seems to be autoimmune issues in some of the families (diabetes, lupus, rhuematoid arthritis). Of course, the ONLY way to tell is if your child is eating/drinking their EE trigger foods during the time of the scope/biopsy. If the Dr. has taken enough biopsies (sounds like he did), they will either confirm/rule out the condition. I believe up to 15 eosinophils (while on a PPI - like Prevacid) could still be reflux, over that amt. - an EE diagnoses. If you get that dx (and of course, I hope he doesn't), I recommend going to the Support Forum section of kidswithfoodallergies.org, click eosinophilic disorders. If you join, you can ask questions, if not - you still can read/search everything. I learned so much there. Best of Luck. El
Sep 17, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I think it is possible to have the rings and even have eosiniphils without actually having EE. Uncontrolled allergies and uncontrolled reflux can give the rings too. That is why the biopsies are so important. I hope you get lots of answers at your follow-up.
Sep 18, 2009
refluxqueen
Thank you both for your replies, I am awaiting the results, rather nervously and will let you all know the diagnosis.

blueleopard, How have you treated your son with the EE, is it with diet alone, or also with a steroid? Thanks! Interesting about the family history of autoimmune diseases, my father is Type I diabetic as were his mother and grandmother. Hmm.

Sep 18, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
As far as treating Eric, it has been a long journey since the diagnoses & we have a long way to go. First, we removed certain food that were positive on patch testing. He was already avoiding the foods he was allergic to: milk, eggs, soy, peanuts. Then, we scoped again. Still had 76 eos. So, we went to an elemental diet only (just Neocate). Scoped again. Down to 9 eos., which is consistent with reflux only. Then we added 5 new foods: sweet pot., g.beans, bananna, apple, & pears. His next scope is Sept. 28th. If he passes, we add another 5 foods. If he fails, I'm not sure what they will suggest. I'm praying he doesn't fail. I really don't want to do the swallowed steriods or tube feeding, but I don't know how this will play out. For some kids, they only have a few "trigger" foods, for others, it is nearly every food. El
Sep 20, 2009
refluxqueen
Good luck to you with the next scope on the 28th! I hope it shows those foods are ok, geez!! I hadn't heard the biopsy results yet on Friday, and am honestly anxious to hear, yet a big part of me doesn't want to hear anything, in case it is EE. I am right there with you, I really would like to avoid the swallowed steroids if my son does have EE. From what research I have done on it, it looks like when the steroids are discontinued that the EE comes right on back.

Did your son have the trachealization? If so, was it completely thru or just in a spot? Thanks again and will certainly let you know when I hear, even though I am a coward about hearing. :)

Sep 21, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Yes, keep us posted. I really hope it's something else. As far as the rings, they are very common with EE patients, but we heard more about Eric having long, thick folds, edema, & white patches. So, you never know. El
Check with your
doctor first!