Posted By Posting
Sep 12, 2009
refluxqueen
Scope on Monday
Ok, Well after having messed around with this reflux fun since last March with the Ped. my son will finally get scoped on Monday.

For a quick refresher, he's tried max doses of Zantac, Prevacid, Prilosec and then moved on to Miralax and then EES. All to no avail.

He just had to have two baby molars extracted from cavities the dentist said were from the reflux. So here we go. Please wish us luck, the GI is four hours away and I just hope that the anaesthesia they give him will not make him vomit and that we can make it home on Monday.

Does anyone have any suggestions for what questions to ask the GI on Monday both before and after the procedure? I would appreciate it. Also does anyone know if they can tell if there is a hiatal hernia while doing the EGD? I know to ask for biopsies to be taken....Am I missing anything? Thanks to all you experienced reflux mommies!

Sep 12, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Good luck on the scope. I don't have any other questions you should ask but I wanted to answer your question about the hiatal hearnia and the answer is yes you can see it on a scope. After the scope I would ask about damage to the esphoagus and what the course of action is if there is any. They should send you home with a plan even if you are going to have a follow up appt in a week. Make sure you leave feeling like you have a plan of action. Keep us posted on the results.
Sep 13, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I think sometimes they can and sometimes they can't see hernia's... you may also need to pursue an upper GI if you think hernia might be an issue. I would definitely ask that the biopsies be taken from several different areas and that they be checked for eosinophils. Before the procedure our daughter was given all meds by IV (not oral) to prevent aspirations so you may wish to discuss that with your son's doctor. Know that he may puke afterwords and it may have blood in it so don't freak out. The blood is usually due to the raw spots left from the biopsy. Bring stuff to clean him (and the car seat up) should it happen in the car. My daughter (thankfully) waited until we got home to puke. Since you have a long car ride you might ask if there is something he can take to keep from being carsick.

I don't know how old your son is but make sure you have some soft bland foods at home. Water can make you more nauseated right after so if he can do something else instead it might help. My daughter was fine until she drank water and then she hurled everywhere. It was only later that I read that water can make you more nauseous. Oops.

Waiting for the results was harder for us then the actual procedure. ;) It was pretty smooth for our daughter and I will be hoping the same for you as well.
Sep 13, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
FYI, we were told our daughter was on the max dose too. When they saw the damage the GI doubled the amount the pedi had rx'd. I think sometimes they need to verify the damage first. You may also ask about Nexium. I have heard from several that it works when the others didn't.
Sep 13, 2009
johnniesnewmommy
We also are having a scope done this week- not until Friday though. Johnnie has been on Nexium for the last 4 months and it has been the only thing that has worked for us. I just want to wish you well.
Sep 13, 2009
mommato3
I was just going to say my son is a retcher and gagger. I asked them to give him some antinausea medicine. They gave him some I guess just a little bit in his IV I'm not sure but he woke up from anesthesia a little disoriented and crying. He took a little thickened (simply thick) pedialyte. All his liquids must be thickened but about one hour later he was back drinking his formula and you would have never known anything happened. He also had a bronchoscopy and larangoscopy done at the same time as the EGD scope so this was called a triple scope. Good luck. Let us know how it goes.
Sep 15, 2009
refluxqueen
Thanks, Trachealization of esophogus?
Thanks everyone, Boy what a long day yesterday was.

Here's the scoop, it went smoothly and although he was very cranky when he came out, he didn't vomit, thank goodness and we made it home in one piece without any vomiting, just a very sore throat from the breathing tube.

They took like ten biopsies from three parts of the esophogus, some in the stomach and some in the duodenum. He said it all looked great on the way in, but it was when backing out he noticed some things.

Down at the lower end of his stomach, it looked like a couple of spots that may have been healed ulcers, so he took biopsies there, and then at the upper part of his stomach he said it looked maybe granulomous (sp) and took more biopsies there. Then on the way out of the esophogus, he saw something.

He saw rings in his esophogus, he gave me the pics and I can see them too. He said it's what they usually see with EE. But they are waiting for the biopsies to come, hopefully Thurs. or Friday. THen we might know for sure what it is, if anything.

I do wonder, and havent gotten far enough into the research of it If it is possible to have the trachealization of the esophogus WITHOUT having EE? Does anyone have any knowledge about that?

Anyway, thankfully there was no other visible damage,like Barrets or anything that could be seen.

He also said that if it is EE, they treat it with a puffer of steroids, swallowed instead of inhaled, but I have read about elimination diets and patch allergy testing, which I would rather try first....

And if it is H. Pylori, then he would need treated with an antibiotic protocol....So now we wait and see. I got so nervous when I read that EE causes thinning of the mucousa in the esophogus and that increases the risk of punture with the scope, but we are now twenty four hours out and hopefully he's ok.

Thanks to everyone so much for their replies, we spent Sunday and all yesterday on the road....I will keep you all posted.

Has anyone ever had their child with the trachealization of the esophogus? Thanks again, guys, you guys rock!

Check with your
doctor first!