Posted By Posting
Sep 10, 2009
I'm to blame for my son's reflux.
My son is now 13 months. He has been on Prevacid since he was 2 months old. Every time we see his pedi, he says "I'd really like to see him off the Prevacid. It is unusual for a child his age to need Prevacid". I know what they think. They think that my son never had reflux, that he had colic and that I pushed for medication to make myself feel better. Now that he has become dependent on it, we can't just ween him off. They think I gave a perfectly healthy baby Prevacid and caused him to have a reflux issue. I have an appointment with a new gastro in October. I am hoping she can give me some guidance. But, I am scared that this doctor will treat me the same way since she knows my son's pedi. I feel like I've abused my child by pushing the reflux issue. I feel like maybe it was colic and it was ME who couldn't deal with it. I think I hurt my son by trying to "help" him. I really paid attention to his symptoms and they seemed to be classic relfux. But now I am doubting myself. Now I wonder if I made it seem worse than it actually was. I mean, his pedi has years of experience with this stuff so he must be right. Oh, and I was also told the same thing by another gastro. This one said that it WAS colic and that he didn't need to be on Prevacid, but that we couldn't just take him off. Anyway, I feel horrible. I've screwed up my son's life with my desire to make him a happy comfortable baby. I should have just sucked it up and maybe it would have gone away on its own. I feel so stupid. I feel horrible and ashamed and embarrassed. I don't deserve to be a Mom.
Sep 11, 2009
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
You did what any good Mom would do for their child. I had the same problems with my son's Pediatrician, and I switched Pediatricians two more times until I found someone I liked that would help me. Don't take that abuse from anyone. Ignore him or find another doctor. Have you tried taking the Prevacid away a few days to see if the reflux comes back? If it does, there's your answer and stick to it with the doctors. A good GI doctor will know that many kids do NOT outgrow the reflux at a certain age and some continue to have it until older like my 6 and 9yr old boys with reflux. I got a lot of the same answers as you such as they had colic, or they were just teething, my older son they even said he was depressed! But once he got on the right dose of PPI, he was a very happy healthy boy! Keep pushing, you're doing the right thing, stand up to the doctors, they are the stupid ones for not listening to you!
Sep 11, 2009
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
((HUGS)) to you... First of all, if the DR gave your son meds just "because" then how is that YOUR fault? Obviously there was something going on or the Prevacid wouldn't have worked and they wouldn't have rx'd it. Weaning off meds can be hard for kids who have had reflux. Even if he had it and has outgrown it weaning can be hard. That doesn't mean that he never had it or that you caused the problem. Can you ask the DR if you can cut the dose in half, wait a few weeks and then try to wean? I have found that it helps to have a backup (like Maalox) for the minor flare ups that can come with weaning off these meds. I would ask the new DR #1, does he still need it and #2 can we develop a plan for weaning him off if it that will cause the least discomfort? If you are not doing probiotics or yogurt I would try those things as well. They can help a sensitive tummy. I like the Activa yogurt for my girls. :)
Sep 11, 2009
First of all hugs to you! I will let you know that doctors don't know your child like you do. I agree with the pps, that the doctors put him on the meds so obviously it was something that they felt he needed. I would say definitely go to a second opinion or more and find a doctor supportive of things going on. Reflux can be a real roller coaster. I have days with my 9 month old that I think things are going so well and then wham we're downhill again. It's taken a lot out of me and has been the hardest thing. We just recently went to a second opinion for my son and it was the best decision we made. You need to feel validated. Not every child we be able to be off meds at one year or some even at two years. It all depends on the child. Good luck and hang in there.
Sep 11, 2009
You need a new Pediatrician. My son was on Prevacid then moved to Nexium at 7 months when it stopped working. We tried weaning him off several times and it failed more times than I can count. But every three months after 1 year, he was 22 months before we were able to wean him off it completely. Each child is different. But if he needs the medicine, you WILL KNOW.
Sep 11, 2009
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Get a new ped. Not because they want you to start weening him off but because they have made you feel the way you do. That is totally unacceptable.
Sep 11, 2009
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Last time I checked, it's illegal to give a prescription medication when someone doesn't need it, so don't beat yourself up about that. So many on this board have been pushed around, and the "standards" just don't apply to these kids.

I'd say get a new ped (and possibly GI) even if it means driving a little farther. A doc who gives you meds to shut you up is NOT a good doc. Did they order any testing? If not, I'd push for that to get an answer either way. Getting a endoscopy and a pH probe (when off meds for a while) will give you your direction to go.

And my dd, who had a mild case of reflux, was on a H2 blocker AND a PPI until 12 months, then the PPI until 16 months. So even the minor and mild cases can still need meds to combat the pain and inhibit damage.

HUGS mom. You've done NOTHING wrong. You're doing what you can to keep your baby happy, healthy, and strong. And most of us have fired an MD or 2 in our time!!!!!

Check with your
doctor first!