Posted By Posting
Aug 31, 2009
paytonsmom
Daughter Payton, Born 4/2/09, Diagnosed with Silent Reflux at 3 Weeks. Tried zantac, prevacid, axid, multiple formula changes. Presumed MSPI. On Elecare and Carafate.
Aspiration Pneumonia
Payton landed back in the ER and hospital over the weekend with her 2nd round of pneumonia in a month's time. They released us yesterday with augmentin (antibiotic) and prednisolone (oral steriod); we're continuing breathing treatments (xopenex) and carafate. Wow, the augmentin is so hard on her little tummy (she threw it up this morning), and giving her a burning diaper rash. Anyway, her ped wants to do a swallow study to rule out aspiration pneumonia, scheduled for tomorrow. I already know I cant get a call back from her GI doc before then....but last conversation (after the 1st pneumonia episode) he told me that it was "statiscally improbable" that she had aspiration pneumonia. Wonder if pnemonia episode no 2 changes that conclusion or is my ped running needless testing on my girl? The first episode came on as a result of a bad cold (or so it appeared). She never got rid of the cough....I took her to the ped office every week & got told she was "clear as a bell"....finally I just took her directly to ER when her breathing became increasingly labored, so I don't have much confidence in the ped, but he's the best this town has to offer. Any advice much appreciated!
Aug 31, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Well, the swallow study certainly isn't a bad idea that's for sure. Esp with the issues back to back soo quickly.

Were the drugs that were given this time different than last time?? I would think that if they thought the pneumonia was just left over they would have given stronger meds this time around to make sure it cleared.

You also have to remember that asp. pneu. can occuer from below and not always above. Meaning, the reflux can come up and go into the lungs instead of coming out as vomit. This would not show up on a swallow study.

Aug 31, 2009
johnniesnewmommy
Johnnie has fought with aspiration pneumonia since he was 2 months old. We did the swallow study and it was fine- just a delay in swallowing, but not aspirating. Our confirmation was when he aspirated the barium on the upper GI and they could see it go straight back up into his lungs. Had we not had that happen, im sure they would have just thought it was from being in daycare and another virus that happened to turn into pneumonia. The last 2 times he has had pneumonia we didn't treat with an antibiotic. We did the steroids, and albuterol and chest percussion and it cleared up without the antibiotic. The key for Johnnie is UPRIGHT ALL THE TIME! Seriously I even prop him up on a wedge to change his diapers. It's a tad inconvenient but so much easier than sitting up with a baby that can't breathe. He has even found a way to move around instead of crawling. Every one see's him and thinks that's the strangest way for him to move. He scoots like a monkey, but if you watch you can see that he NEVER leans over far enough to get fluid in his lungs. Smart baby! As soon as he leans over very far, he stops and sits up. I think its a true testament to how bad his reflux is that he has learned to adapt that way. Since making sure he has zero down time, we havent had a single episode of pneumonia. Thank God. I think the Nexium has helped alot as well. I am so sorry you are having to go through this- just hang in there.
Aug 31, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Oh, I hear ya on the elevated changing table for sure!! We did one forever!!! The church nursery couldn't figure out why Jedd was puking at every diaper change, I said, are you throwing a pack of diapers underneath it before changing him??? Problem solved!!!
Check with your
doctor first!