Posted By Posting
Aug 31, 2009
sasara
Looking for some advice/suggestions.
Good Morning All. My cousin refered me to this site as she has experience with severe GERD with all of her children. My oldest son was diagnosed with reflux at about 6 months old. He never slept at night, would spit up projectile and very large amounts. The screaming whenever we laid him down was my first clue this wasn't just teething or seperation anxiety. The doctor started him on Zantac and he seemed to respond nicely. He started sleeping MUCH better and by 14 months was sleeping through the night. My youngest Timothy is 11 months. I KNOW he has reflux but I assumed for some stupid reason that it was not that bad. He is also exclusively breastfed and had a heck of a time eating at first. He would scream and scream at the breast. I finally managed to get him to eat with lots of patience (but not without feeling he was going to starve to death). I started him on homogenized milk last month in anticipation of daycare in 6 weeks (still offering breast whenever he wanted it). As a newborn Timothy would reflux so bad it would come out his nose. I started making sure he was always upright, even had an elevated pillow. Now this is where sleep deprivation makes things fuzzy. When he was about 3-4 months old things seemed to get better. He was sleeping 3 hours stints and I had ruled out some things I was unable to eat anymore (like broccoli). Then he began teething like a madman. Sleep became a memory. For the last few months he has been waking SCREAMING either as soon as I lay him down or within 45 minutes. He wants to nurse and be cuddled back to sleep...only to wake up screaming as soon as I lay him down. Here are some tests I have done at home and observations I have made: *Cut out dairy from his diet. No cheese, milk or yogurt. Within 24 hours he started sleeping 4-6 hour stints! *Last night I gave him a mini ice cream cone...he was up screaming all night. Immediately after he started eating it he had a rash on his face and back. Little red bumps. I felt bad he had a horrible night but I wanted to make sure the lack of dairy and his sleep changing is not a coincidence. *He sleeps like the dead in your arms proped up. You lay him down he becomes restless and wakes VERY easily. You blink too hard near his crib and he is up! *He is 11 months old and still refluxes back milk and even solid food. I have used litmus paper to test the liquid and it is definately acidic. *He eats solid foods very well. He will eat just about anything we put in front of him. I try and feed balanced meals with meat, veggies and fruit and grains. *He seems to be growing ok but much slower than I expected. He was 10lbs 9oz at birth. His brother was 11lbs 2oz at birth and gained weight really well. Timothy however is slowing down in his growth and has fallen from 95% to like 70?. *When he is in his crying fits (which happen mostly at night but can happen during the day too) he arches his back and flings his head back. He seems to be in pain and extremely upset. *I tried propping up the bed but that doesn't seem to help. He did use an AR pillow as a newborn but will NOT sleep on it now. I have no idea why. I have a doctors appointment for him on Wednesday. I am going to ask for some assistance in getting him feeling better. He is an extremely laid back and happy child in the day most of the time. He just has these little spells sometimes in the day and definately at night of screaming and not sleeping that have me concerned. Would you ask for some medication to see if it helps? Thanks for your time , Sara
Aug 31, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
I would not let the fact that he eats well for you detire you or the doctor from getting him the medication he needs. Sounds like clearly he is in pain, you have confirmed that his reflux is acidic and I would be concerned about the damage it is causing. It would not hurt him at all to be put on Prevacid for 4 weeks to see if things improve from a sleeping and pain perspective. If it works then problem solved. If it continues then you need to look for other answers. If you are able to get a sample back of Prevacid make sure you are giving it on and empty stomache and feed him 30 minutes later. If you dont give it to him that way the meds wont get in his system. Sometimes it is hard to get reflux meds for kids that eat well and gain weight well. They tend to get lost in the system. You really have to stress the screaming, aching, thrashing, refluxing and the acidity and the not sleeping. Dont even talk about the fact that he eats really well. My 2 cents...
Aug 31, 2009
johnniesnewmommy
I would seriously advise you to ask for a PPI that is NOT prevacid, especially if he is reacting to the ice cream you gave him. Mine has a severe milk allergy- cant even touch the stuff without hives and if he eats it- his mouth and throat are covered in blisters for days. When he was on the prevacid he had a SEVERE Ana reaction and I nearly lost him. After that episode I was told that prevacid has some milk protein in it. We have gone through all of the PPI's and have been on Nexium the longest and it is wonderful for Johnnie. I know prevacid works really well for most kiddos but if you have seen him react to dairy before- I would be careful. Reflux is horrible but when your baby quits breathing because of an allergic reaction, that's just something no parent or baby should ever have to go through! Good Luck
Aug 31, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Eeeks. Good to know. Scarey! Is it just the solutabs that have the milk in it or does the capsules have it too? The capsules you open up and sprinkle the balls on applesauce.
Sep 01, 2009
johnniesnewmommy
We just had the capsules compounded because we couldn't get the insurance to cover the solutabs. I have the nexium compunded the same way as the prevacid and it doesn't bother him at all, so we know it was the prevacid not the compounding that did it.
Check with your
doctor first!