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Aug 26, 2009
ksandberg
First timer :)
Okay, this is the first time I have posted on this website because I have just discovered it. Thanks to all you "veterans" for giving your great advice. My problem is probably not as major as some others, but as we all know, our problems are just that, problems. So here it goes. My 6 1/2 mo old has been diagnosed with nasal reflux?! It goes into her nasal passages and clogs everything up (had a "cold" for the first 3 months of life until we figured it all out). She was on Zantac and that worked for 2 weeks. Then she got worse and was put on Prevacid. We are now up to a 15 mg dose, which we dilute in her first bottle. She will only take about 15 ounces a day and most of those ounces are a struggle for her to take. She does not fuss a lot, she just does not want to eat. She will start a bottle, reflux it while taking those huge gulps and then be done. We try again in a few minutes and she still will not take a bottle. This will go on for hours. She is not arching or screaming in pain, just has severe food adversions. I hear that reflux can peak around her age, so what do I do? Do I keep trying to give bottles until she no longer needs them, which seems crazy as it is still 5 1/2 months away? Do I go back to the dr. to see what else we can try? I would really appreciate ANY suggestions because my first child had no acid reflux issues and I feel as if I have no where to turn.
Aug 26, 2009
ksandberg
oops... forgot
We do thicken with rice cereal and use Advent bottle with the special flow nipple. I know that all makes a difference.
Aug 26, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Welcome, mama. I've only got a few minutes, but here are some thoughts:

Prevacid needs to be given completely empty to work. The best timing is at least 2 hours after last feeding and at LEAST 15 (preferably 30) min before next bottle/meal. This is if you're using the solutabs or compound. The granules are a little different. Also, if you're using the compound, it's notoriously unstable. You'll get about 2 weeks of stability out of a month's supply. I'd ask about the tabs if you're using the compound.

If she's got feeding aversion already, now's the time to ask about intervention. You also may want to consider experimenting with different bottles and nipples. Many moms here love the Dr Brown, but we did much better with the Playtex Drop ins with the latex nipple.

Have you tried dreamfeeding? This was the one way I got my dd past 20 oz/day until she was about 9 months old. You could also offer smaller feeds more frequently. I think we did 4 oz at a time every 3-4 hours for *what seemed like* ever.

I've got to run, but you'll get fabulous advice from all the moms here. HUGS!

Aug 26, 2009
ksandberg
What is dreamfeeding? Also, did you let you daughter sleep through the night? Hate to brag, but ours sleeps 12 hours at night, but should I be waking her?
Aug 26, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i would definitly call your county's health department and speak to early intervention about feeding aversions and gerd. dream feeding is when you feed the baby a bottle or breast while the baby sleeps. this works for many gerd babies, but i will tell you, my audrey (who is not a gred baby but is very underweight) hated dream feeding! she would scream and throw a fit if i even went near her with a bottle at night, food was her idea and her idea only.

i remember there was a mom on here quite a while back who had a dd who had nasal reflux (i believe) her dd saw a ENT doctor the dr gave then nasal spray and GERD meds to help relieve the pain. i remember her saying it took quite a long time for her daughter to heal maybe 2 months?? i'll see if i can find the link for you.

always give prevacid on empty stomach 15-30 mins before food and 2 hours AFTER food. if she takes solutabs you can hold the tab in her mouth and give her a sip of water. if you use compound- ask to switch to soulutab. we have other tips to give soultabs as well!

Oh i almost forgot, keep her ELEVATED never flat! her bed/changing table at at least a 30-40 degree angel. if you need tips on this let us know too. there are wedges you can buy tucker slings or less expensive tips too. exersaucers are good too. if you want you can try sippy cups and see if she might drink out of those.

i think i hate you your dd sleep 12 hours a night! LOL but it's funny my gerd baby Emily slept through the night and my non gerd baby doesn't she's just addicted to the boob haha
Aug 26, 2009
johnniesnewmommy
Sorry I just had to chime in here. Are you SERIOUS, she sleeps 12 hours a night! Im lucky if mine sleeps for 2 and he 13 months old. Ok back to your problem- sorry I started daydreaming of a time when I wasn't awake every couple hours with a cranky baby. I switched to the Dr Browns bottles and while they are a pain to wash, they have been worth all the extra work. We started with the playtex but the liners got a little expensive. If she doesnt want to drink more than a few ounces at a time then maybe you might need to try a different formula or ask for a different medication to get the reflux under control. Once my LO was on the nexium he went up to taking 6 ounces at a time versus 2 or 3. I thicken his bottles with rice cereal. I use the same scoup from the formula and use 1 scoop rice with 1 scoop of formula. If it's not thickened he chokes and aspirates. Oh if you are thickening- you will need faster flow nipples too. Otherwise they cant get anything out.
Aug 27, 2009
mommato3
You can try a product called simply thick. Thickening it a little bit can be a huge help with nasal reflux. Have you had a swallow study done? When you say nasal reflux are you talking about nasal reflux like on the swallow. When the baby swallows the milk refluxes back into the nasal passages. This is more of a swallowing problem or do you just mean plain old reflux that is coming up into the nasal passages? My son would sound very nasally while he ate so they thought he had nasal reflux (I think it is called pharangeal or larangeal reflux) although it didn't show on the swallow study. The speech path told us for this type of reflux to add just a little bit of simply thick and that would help him when he swallowed for the formula to not go into the nose. Now he does have GERD as well so we added simply thick nectar consistency to help with that too. Good luck!
Aug 27, 2009
mommato3
I also second making sure prevacid is given on an empty stomach 30 min before a meal and trying to get with a speech pathologist (therapist) that deals with feeding.
Aug 27, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
What types of feeding issues are you dealing with, what happens when you try to feed bottles or solids, is the reaction different between the two???

We have worked with Early Intervention for almost 2 years now to get Jedd fully weaned off of tube feeds and onto oral feeds. We use an Occupational Therapist (OT) who is specailly trained to work with feeding disorders kids. She works on oral motor muscle issues involved in feeding.

I would call your local public school and let them know you are looking for an eval. They will come to your house and do one for free.

If you let me know what is happening during different types of feeds, I can point you in the right direction as well.

I will give you the #1 piece of advice though:

A child will only be a successful oral eater after ALL medical issues have been resolved.

Make sure you have fully addressed the GERD issues first. A child in PAIN will NOT ear. Sad, but true.

Aug 28, 2009
ksandberg
First off, you are all amazing! The frank advice and support you give is outstanding! My child eats solids just fine. She even eats crackers okay, she just will not take a bottle!!! This morning was the second morning we gave her the Prevacid dissolved in just the smallest amount of liquid since we had NEVER been told before the meds were more effective on a child's empty stomach! I can not believe that all the literature I read on that med failed to cue me in on that! Anyway- I was thinking about trying different bottles this weekend to see if that helps. The next step will be to contact her ped. I guess since she will have to make the recommendation to a specialist, right?!
Aug 28, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You can always move to a sippy cup....we tried that with Jedd. We eventually stopped trying to feed him but he had a feeding tube so we used that full time for a while. Feedings orally, were doing NOONE any good at our house.

Sometimes, even if the pain is under control, the infant will associate the bottle with pain. So, sometimes the therapist will recommend going to a sippy with a straw to see if they will take it. Other times, the child has already associated the formula with pain, and that is harder to overcome.

Check with your
doctor first!