Posted By Posting
Aug 25, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Help Needed for a Friend
Hey gals. Hoping you can help me out with one. I have a friend with a 8 month old that is really struggling. I just found out a couple of weeks ago that she was having a rough go of it. Her baby is 8 months old and weighs 13 pounds and rarely eats more than 2 ounces at a time. She just changed docs and they have diagnosed her with GERD and bladder reflux. I think I can help her with the acid reflux stuff given all that I have learned with Ryan and from all of you but I need some help on giving her some direction on the bladder reflux. Have any of you guys dealt with that or know someone that has. I am trying to gather as much info for her as I can. She has a lot on her plate right now. Any help or direction that I can send her way would be great.
Aug 26, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
Emily has kidney reflux stage 2 and incomplete bladder voiding. The best advice i can tell her is to see a pediatric Urologist. is the baby getting a lot of UTI's? Did she have a ultasound and a VCUG or urine flow test? She might consider putting the baby on a low dose of antibiotics. They do wonders for many kids who have chronic infections. Emily was on them for a few months but because she had diarrhea they made it worse and dehydrated her, so she had to be kept off it. We deal with UTI's as they come. every time she is sick they always CATH. urine test too just to be sure. it's sad but bag tests are unreliable for kids with chronic infections. She can also buy UTI test strips in the feminine section but you have to be able to collect a clean steam of urine. this kinda avoids some/NOT ALL doctors visits.(always go to the dr if you suspect UTI even if strip is neg.)

You can tell her that the infections DO make GERD worse but once you get them under control the reflux should calm down to the level it was before the infection. you can tell her no baths- only showers, and if she can, clean the tub after every use. we were told to avoid diaper cremes around the vulva area and no soap or lotion there either. i hope things get better soon! Audrey was a little bit at that age too and wasn't sick and i was worried so i could only imagine what she is going through *hugs* to her!
Aug 27, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Thanks so much for the info. I will pass it on. She sent me a note this morning.They admitted her to the hospital last night and started her on a feeding tube and IV fluids. She lost more weight and was down to 10 oz in a day. I feel horrible for her and horrible that I didnt know she was going through all of this for so long.
Check with your
doctor first!