Posted By Posting
Aug 05, 2009
kris10
Kristen
Twin girls born 1/9/09, Kayla (my really bad refluxer) and Kamryn (my semi-bad refluxer)
GERD and Ear Infections?
I'm still new to this forum so helping some of you experts can help me out!! My little one has silent reflux and is on Prevacid and now Axid to help control it. It seemed to be getting worse and she was maxed out on her dosages. My pedi was basically dismissing my concerns as her being "fussy" and just deal with it, but I kept pushing because she was running a low grade fever and coughing more and MISERABLE at night. She didn't want to be put down at all and was very clingy and fussy. So I took her back to pedi again and begged her to think of anything and she checked her ears and turns out she has significant amount of fluid buildup in her ears. She didn't think it was causing her reflux to be worse, but I'm not so sure. She put her on an antibiotic (Amoxicillan) and I'm worried about her reflux getting worse on that too, because it did with another antibiotic she was on before. She's also teething which isn't helping matters. So my questions are: 1) Can reflux cause ear infections or can ear infections make reflux worse? 2) What do you do when they are teething and on antibiotics to help keep the reflux from flaring worse?? 3) And off-topic, is there a specific timing for giving Prevacid and Axid?? On an empty stomach for either? I've been bad about doing this, I just give it to them usually right before a bottle or whenever is convenient, ie...I don't wake them to take the medicine if I don't have too. I don't give at the same time, but usually the axid is about an hour and a half before the Prevacid. Thank you!!! kristen
Aug 05, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! Ear infections are definitely common with reflux. If I remember right, the liquid that is refluxed can get into their ear passages (can't remember the medical terms) and cause inf. Also any sickness can cause their reflux to flare. So really it works both ways.

As far as teething, it'll make reflux flare too. Many of us believe that's why reflux seems to get worse around 6mos.

I'm not sure about axid but I know prevacid has to be given on an empty stomach I think 30mins before eating. That may not be exactly right...I didn't use prevacid but somebody will correct me if I'm wrong :)

I don't remember anybody ever having a problem with amoxicillan & reflux, but all babies are different.

Aug 05, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Most people prefer to give the PPI in the evening and the H2blocker in the morning. I would give at least the PPI on an empty stomach. so, try not to feed for at least an hour prior to that dose. I would def. split the meds up. Don't give them together. Kids just do better with 2 doses a day.

Jedd had constant ear infections before he got tubes. For us, tubes were a Godsend, really they were. After getting them placed he has NOT gotten a single infection and we are more than a year post placement. His speech has also gotten on target as well. Where as before he was VERY very delayed.

We also liked to add in a probiotic when Jedd was on a ABX. This will help combat the nasty side affects from the ABX while taking it. We just ended up keeping him on one full time. It's just better all around for his GI tract.

Aug 05, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Please go to Marci-kids.com to learn about the affects of reflux on ears. Tubes were a godsend for us too. Even if the fluid in the ears is not infected it is still very painful for them. Prevacid- 2 hours after a meal and 30 minutes before. AMX is hard on their tummies. That is why tubes were the answer for us. Probiotics help with the AMX side effects. Teething is a killer for reflux and ears both. Increased saliva and acid levels. There is another site out there that a gal named Laura has put everything she knows about reflux in a couple of posts. Read at your leisure.. http://www.infantreflux.org/forum/forum_posts.asp?TID=1936&PN=0&TPN=1 It is the last entry on the post. and http://www.infantreflux.org/forum/forum_posts.asp?TID=853 Karen
Aug 05, 2009
kris10
Kristen
Twin girls born 1/9/09, Kayla (my really bad refluxer) and Kamryn (my semi-bad refluxer)
Thank you! I forgot to mention that she is on Prevacid and Axid 2x a day...so I'm not sure how to split them up?! And is Prevacid a PPI and Axid an H2 blocker? I have no clue as you can tell...lol. OH and she IS on a probiotic now too (Biogaia drops) and she also is on Nutramigen with Enflora which is also supposed to be better for the gut. Since this is her first confirmed ear infection, I'm sure they won't talk to me about tubes any time soon, but I wanted to know what to look out for, if she gets this again...which I have a feeling she will...sigh...
Aug 05, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yes, and if you can have her ears rechecked after the meds are gone. Maggie has tubes too and I think she had pretty much constant infections bc they never actually cleared up. I think the golden rule is 6-7 infs in a year for tubes.
Aug 05, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
You can do the H2blocker (Axid) in the a.m. and a lunchish dose and then do the PPI (Prevacaid) at night time.

We got tubes pretty fast because the ear infections were messing with our G tube weaning and Jedd's oral eating. We kept back tracking every.single.time. Jedd got one. The last one he was on ABX forever it seemed and still wasn't clear the day they did his tubes.

they give you LO time though to see through the winter how things go.

What doses of the meds are you allowed to give?

Aug 05, 2009
kris10
Kristen
Twin girls born 1/9/09, Kayla (my really bad refluxer) and Kamryn (my semi-bad refluxer)
Kayla weighs 11 lbs right now (at almost 7 months old) and is on 3 ml of Prevacid twice a day (3 mg/ml), which is the max they want her on. And she is on 1.6 ml of Axid twice a day. So I guess I should be doing Prevacid only once a day instead of twice?
Aug 05, 2009
kris10
Kristen
Twin girls born 1/9/09, Kayla (my really bad refluxer) and Kamryn (my semi-bad refluxer)
Karen - THANK YOU so much for the marci-KIDS website!! I've been searching for something like this!! As I sit here and read some of this info, I start to tear up because my little one is a classic example of the silent reflux and ALL of her so called specialists don't believe she has it because it came up negative on a PH probe study. I knew in my heart that she did and now I plan to print all of this out and take it with me to her next appointment with important things highlighted for her doctor to see. In the meantime, I'm going to look for a new GI doctor and probably pedi too!! I read on there that Prevacid that is compounded may not be as effective either, which is what they are on. This makes sense because it seemed like everytime I got towards the end of the bottle, both of my girls started flaring up on their reflux. Again, going to bring that up with the doctors too! Thank you!
Aug 05, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
YES YES YES do that for sure!!!!! The compounds aren't worth it. We only did a compound because we HAD to have a liquid as Jedd was completely non oral and everything he took needed to fit into his feeding tube. Believe me, we tried the other meds, they clogged the tube which isn't good..LOL

See if you can get the solutabs because others here have said they are really good.

good luck finding a new GI and Ped. What area of the states are you in, you might be able to get a reference off of us.

Aug 05, 2009
kris10
Kristen
Twin girls born 1/9/09, Kayla (my really bad refluxer) and Kamryn (my semi-bad refluxer)
I will look into it for sure! I live in the Houston, TX area and would LOVE any and all referrals!!! Do you just dissolve the solutabs in water or something? We did that before, but I give her meds in a nipple, so the medicine got clumped up in the nipple...she's a little older now though so I guess I could just syringe it right into her mouth now.
Aug 05, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
You can either syringe it or better yet contact Marci-Kids and they will send you what you need to make your own compound. I make a weeks worth at a time and i love it because i dont have to worry about timing it around food anymore. So glad you found a resource to give you answers and ammo to demand some changes. Good luck!!
Aug 06, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Kristen- If you e-mail me I can send you a link to the pedi GI's listed for your area. I can officially recommend any but aren't you near TX Children's?? E-mail me at RackleyFive@cox.net
Aug 06, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Ok.. that was supposed to say CAN'T recommend anyone.... apparently I CAN'T type either. LOL.
Check with your
doctor first!