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Aug 03, 2009
alisont
7 year old daughter with gastritis/IBS then silent reflux since about 2007/8 also stomach pains - can't tolerate any reflux meds. Based in UK
Advice with 7yr old please!!
Hi my daughter Katrina has silent reflux and lots of really bad stomach pains! She can't seem to tolerate any acid blockers - they give her the worst stomach cramps ever!! We are pretty much trying to work out a safe diet for her. She seems worse on wheat and dairy and tomato based foods and is definitely better on low fat foods. Most fruit seems out too. Is there anyone else out there with a similar age child with success through diet changes? It is soo hard restricting her food - I am dairy intolerant and a vegan through food problems , but didn't have to go through that as a child! Katrina didn't have reflux much as a baby, but ended up like this after a year of illness in 2007/8 with tonsilitis and a final tonsillectomy. She is due an endoscopy again soon and an acid probe this time. Could do with some advice/ tips about food. Have read around subject as much as can too. Based in UK but this site seems best one around, so hope you don't mind a Brit!! Thanks any advice appreciated.
Aug 03, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We've got a number in international mamas here. My kiddo is only 2, but my hubby has had reflux for years. One thing we've found that helped to hit more mantainence is probiotics and prebiotics. There's another supplement available here in the US called Prelief (I think one other mom here has tried it with some success.)

Another thing to consider is CSID (basically, it's an inability to digest sugar, which may account for the fruit.)

As for food, it's just so hard to do by diet alone since the stomach needs to produce acid to digest anything. Which meds have you tried? Most of them do have the side effects of abdominal cramps and constipation/diarrhea. Can she try Maalox or Mylanta? I'll keep thinking of things, but you'll get a lot of support and advice here!

Aug 03, 2009
alisont
7 year old daughter with gastritis/IBS then silent reflux since about 2007/8 also stomach pains - can't tolerate any reflux meds. Based in UK
Hi thanks for that - we use probiotics and use magnesium for motility too. Which form of magnesium do you use? Read loads about efficacy of magnesium but it only seems to help with constipation. Not sure what Mylanta is in Uk but will google it. We have tried prevacid and zantac and also a motility drug. Recently tried ranitidine but that produced stomach cramps really quickly. The gastro Doc has ruled out an op as he said it that whislt it would sort the throat out, it would mean food takes longer to digest which would produce more acid and pain. We have got Gaviscon Advance a barrier med which gives partial relief, but not brilliant!
Aug 03, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
We use magnesium glycinate, which is supposed to be one of the most gentle forms and easily absorbed. We use it for chronic constipation and not digestive motility. I'm not sure what Mylanta or Maalox would be sold as in the UK, but pretty much they're the liquid antacids found in local pharmacies.

There are a lot of other acid blockers out there, both H blockers (Axid, Pepcid, Tagamet..) and PPI's (Prevacid, Nexium, Prilosex) Ranitadine is the same thing as Zantac.

Has she been tested for allergies? Celiac's? Protein intolerances?

Aug 03, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Whoa
Sorry - must be tired, PRILOSEC. Finger slipped when typing in the dark and didn't proofread
Aug 04, 2009
alisont
7 year old daughter with gastritis/IBS then silent reflux since about 2007/8 also stomach pains - can't tolerate any reflux meds. Based in UK
We used prilosec successfully like a wonder drug for gastritis last year (heavy use of ibuprofen after tonsillectomy) and it was great for a month then bham major stomach pain and IBS for 6 months. This finally sorted itself with lots of dietary changes, magnesium and probiotics, but all came back after Christmas this year in form of silent reflux. Tried prevacid but gave Kat awful stomach cramps and headaches almost straight away, same with ranitidine. Don't know what else to try! Think your mylanta is our Gaviscon which gives tiny bit of relief. Can't decide if going without all these foods is worse or stomach pains and feeling sick!! Have added red meat to list of bad foods now, even lean cuts. Soon there won't be anything left to eat! Still not sure if wheat causes major problems or not , elimination diet didn't solve pains/ reflux. Kat doesn't know either. Does anyone else find wheat a problem? Food tests for allergies are all negative, but the hosp say she is def an allergic person with food intolerances very likely. She is allergic to dust mites and has hay fever too!!Have ordered glycinate magnesium thanks for that - we have mag oxide which works for constipation well but doesn't seem to help reflux. Would be good to hear success stories of prilosec and doses, I think kat was on fairly low dose about 20mg then tried 10mg. Am tempted to try it again, but might as well wait for acid probe now.
Aug 05, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I'd also agree with waiting for the ph probe results. I'm not sure what else she could try. Elimination diet seems to be a good way to go to see what intolerances and/or allergies she might have. We've lucked out with the no allergies yet. There are 8 big allergens as far as I know - dairy, edd, peanut, tree nuts, shellfish, seafood, soy, and wheat. There's also a mom on here whose little one seems to be having problems with ALL protein, but she's not on much anymore.

Other less common allergies I can think of - strawberry, pineapple, avocado (often with this is also banana), rice, etc. I guess with the wheat intolerance I would have her checked for Celiac Disease as well - or try a gluten-free diet for a bit and see if that helps.

Maybe ask your MD about digestive enzymes. They help to break the food down in case your girl is lacking in any of them. We used then for a bit, but it didn't do much since she was on a hypoallergenic formula already and not much left to break down. I'll keep trying to think of stuff - my brain has been in "off" mode this week.

Aug 05, 2009
debbieb
Debbie, Mom to:
Derek,10/29/02 GERD,Can't have any legumes(soy, being the worse), allergic to PN/Tree Nuts, struggled to gain weight for years, my "picky" eater,Takes Zegerid. Johnny, 12/05/99 GERD, managed by diet, allergic to cashews/pistachios.
Hi, I have an almost 7yr old that has has reflux since birth, and a 9yr old that was just diagnosed last year. From what you say, I personally would try the Prilosec again, since it worked for a time, maybe she had a flu or something that messed it all up for a time? With my kids they do best on twice daily dosing for good reflux coverage. The 9yr old is on 40mg twice a day, and the 6yr old on 20mg twice a day...both on Prilosec, but now I buy the Generic online real cheap. Have you looked at the dosing chart on the Marci-Kids website? It helped me a lot! All the foods you talk about are definite reflux triggers, but once my kids were on the meds for long enough they could have more of them. My youngest is quite sensitive, can't have much chocalate or spice, or citrus either. The older one can have more.When my 6yr old was younger, we tried a very restrictive diet, thought he was intolerant to most everything, had him tested for everything including Celiac, lactose intolerance and inability to digest sugars, he had 4 endoscopies in total. He was on Prevacid, zantac and Nexium. The Prevacid game him diarrhea and severe stomach pain, zantac gave him diarrhea, Nexium-turns out he was allergic to it, it is related to Penicilin, which he is allergic to. Prilosec worked the best. Keep pushing, try another med and stick to it for a while unless she has a severe reaction of course. We use Mylanta in between when they need it. E-mail me anytime, if you'd like to chat. My older son's reflux surfaced after a bout with antibiotics for chronic sinus infections, now we can't seem to get rid of the reflux!
Aug 10, 2009
alisont
7 year old daughter with gastritis/IBS then silent reflux since about 2007/8 also stomach pains - can't tolerate any reflux meds. Based in UK
Hi thanks for all the great advice - katrina is finding the food restrictions too hard to stick to, so we are thinking of trying the omeprazole (prilosec) again after the endoscopy and acid probe. Just hope she can tolerate it as don't think we can go on like this - we get maybe two days a week with minimal pain then the rest of the week is rubbish!! Lots of tearful nights and ruined trips out ! Have let her have wheat again now, as feel a bit of wheat might actually soak up the acid that builds between meals. Do you find that you don't have to restrict much food with the prilosec and does it cure the stomach aches. Will prob email you too.thanks
Aug 10, 2009
alisont
7 year old daughter with gastritis/IBS then silent reflux since about 2007/8 also stomach pains - can't tolerate any reflux meds. Based in UK
Hi can't work out how to email anyone - also tried to change my profile to allow email but it doesn't do it!!
Aug 11, 2009
vigilantmom
Ryan was born May 20th 2008. 9 lbs 2 oz. Ryan’s magic bullet was 30mg of Prevacid capsules mixed with Caracream from Marci-kids (I am forever indebted to the team at Marci-kids), Claratin for the mucos, and Mirlax for the constipation. Within 2 months of this combo he jumped from the 6% to the 50% for weight and continues to climb. Be strong, listen to your instincts. Read his story for more specifics that just might help you too - Karen
Have you tried Zegrid? Not sure if it is available in the UK. Some info for you. http://www.marci-kids.com/Zegerid.html Also for the constipation have you tried Miralax? Some people have a lot of luck with it. I just started it with my son as the GI did not want me giving him Mylanta every night. I fought him on it but gave in this weekend. Can we say pooping machine?? He has also become an eating machine so I guess it's working....
Check with your
doctor first!