Posted By Posting
Jul 30, 2009
mommy2k
update with Kody
Well we didn't end up having to go to the er. I was able to get him to start drinking again but very little of solids. He's used to eating solids 3 times a day. He also will cry after feeds like something is hurting him and then even worse when he eats solids. The gi called us back yesterday as well. He wants him to be scoped. Well that's great but the bad news is it won't be until Sept 3. That sucks! I think I might be pushing to try another drug at this point. When they called me yesterday I was really sick. I think the stress has brought my immune system down. So unfortunately I wasn't all that with it.

The gi is also putting him on Reglan. I'm a little nervous about this considering I'm not sure I'll know the side effects very well considering Kody is irritable most of the time right now and he's still shaking on occasion. He's so miserable right now. Also we're suppose to stay on the ees. I questioned them on that but they said since his motility is so bad (31% empty in one hour) they want him on both. Has anyone been on both drugs before? I think that's overload and considering the ees isn't working anymore I don't understand it. We'll try both just to see but we're struggling so bad right now. I'm ready to lose my mind. Gotta go my little guy is fussing again. I will try to let you all know how it's going with it if I get a chance. Thanks for any comments!

Jul 30, 2009
mommato3
I am glad he is going to getscoped. Sorry you have to wait. we did too. Holden was taken off his Reglan when we were on EES and when EES wasn't working and he was having many choking spells etc. we got back on our Reglan and off the EES. My GI said he didn't need both especially since EES wasn't working in fact he was vomiting more on it. So I don't know. Take care of yourself momma! Big hugs to you. Let us know how he is doing.
Jul 30, 2009
mommy2k
when the er?
Hi everyone Kody is still in pain today. I'm not asking anyone to tell me to go to the er but what warrants an er visit. He doesn't seem dehydrated because he's drinking. He just cries after everytime he eats and pretty much fusses all day and night. He's shaking I think from pain and he's not himself. We have dealt with thisa many times but I'm tired in general. So I want to make rational decisions. What would you do if your lo wasn't acting good for over a week, in pain, not sleeping, refluxing, and not eating his normal self?
Jul 30, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
It's so hard to say. You know that...my thought is there may not be anything they need to do immediately if he is hydrated, but you might get a diff dr with a new outlook. I would weigh out the cost vs what you think you'll get out of it. If you think a call back to the ped or GI will do any good Friday I'd wait, but I think I'd have him seen by someone before the weekend.

I'm sooo sorry he's still having such a hard time. Did you see the GI or just talk to him? What did they say about the shaking?

Jul 30, 2009
mommy2k
We opted to probably not go to the er because we didn't think anything would really help us immediately. We're going to call the gi for an x-ray of his bowel to see how blocked up he really is. That might be the reason for all of this going on right now.

They said the shaking was due probably from him being in pain. But they still won't see him for another month to do the scope. That's why we're trying to be a little more proactive to see if we can start eliminating things.

Jul 30, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Poor fella. Poor you. I hope they'll do the xray just in case or something to figure this out. Hugs!
Jul 31, 2009
mommato3
Good luck today!! I hope you got some rest last night. Holden slept horrible. Uggh.
Check with your
doctor first!